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We now have an acknowledgement

I did copy the submission to my (work) email so I know it got sent and received at least by my email.

No they haven't replied. I've checked with someone else who submitted and they also haven't had a reply. I will email again tommorrow morning to check. Given the timing it wouldn't surprise me if they are all on holiday.

This report talks about it I think https://virological.org/t/preliminary-genomic-characterisation-of-an-emergent-sars-cov-2-lineage-in-the-uk-defined-by-a-novel-set-of-spike-mutations/563 One virologist talks about cell infectivity but that it is unclear how this relates to transmission

It did make me wonder about whether they use questionable figures like this in getting ethics approval. If they are treating them I assume this represents people still on the books of the clinic and at one point Crawely was throwing out kids who she didn't believe were compliant. So it feels...

I wonder if there are a fair few with Long Covid from the medical community who have a strong belief that ME isn't real or is due to psychological weakness and hence don't want links to be made. An alternative view is that there are those pushing CBT/GET who realize they are discredited so see...

I suspect it reflects how the medical profession thinks of ME.

There is a link to comments on comments and I think they basically dismiss the relationship with ME but I've only skimmed through very quickly https://www.nice.org.uk/guidance/ng188/documents/supporting-documentation-2 They summarize comments as "Several stakeholders expressed concern that...

Emails can bounce from time to time - they may have a log of any bounces which could be resent. There can also be delays in the system sometimes I wonder if bulk emails get delayed. One of the things I have noticed here is that one ISP bounces a lot of emails from us. Other bounces seem to be...

I wonder if one issue is no one specialism really looks at ME so its not a natural area for existing research groups to do - unless they have some links or someone else has a hypothesis and evidence which overlaps with their area of research.

My initial reading of this made me wonder what useless treatments Tuller (@dave30th) and Lubet were proposing that got rejected (I was perhaps expecting some satrical piece). But then I realized that the the article about the useless treatments was written by Tuller and Lubet (and the useless...

I can see support (including psycological support but also practical support) can be really useful for new patients. But is CBT the best way to deliver psychological support. It seems very inflexible and manual driven and I believe is often given by 'CBT therapists' rather than fully trained...

Yes following from what Trish said. I think we will go through the points made and expecting a far bit of duplication and overlapping points we will try to summarise the various points for the different aspects of the proposed guidelines. So well written isn't necessary although understandable...

I've opened it in acrobat reader and it will read it aloud - On the view menu there is a read aloud option and if you click on some text it will read it to you.

I found this blog useful in explaining https://phastar.com/blog/250-statisticians-view-on-pfizer-covid19-vaccine-data If I understand correctly the 43000 is the number of people enroled in the trial and they sample when 90 people get covid and then look at effectiveness. So 8 in the vaccine...

I think studies like this could prove important in terms of looking at likelihoods of getting ME (or other complications) and then a good follow up. I assume they have a good random sample. Although a longer follow up than 18 months would be good. I wonder if different diseases have different...

But its not because there evidence is meaningless and most of the world now knows and understands that. They relied on their status and networking skills to push the message to people who believed them and didn't look but once people look then trust is lost.

This is an interesting video about covid testing and PCR and interpreting the results (especially at high CTs) from Vincent Recaniello

I think there could be a much better balance than what is happening in the UK. I get the impression that the current UK strategy is to try to keep figures at a 'lowish' managable level and when, like now, they have got high then to clamp down a bit to reduce them. It feels like a result of...

I suspect people like Crawley are harmful to research (not just ME research) in that they get a publication record sufficent to get senior academic positions by very poor quality work. Others may see that and take that route rather than trying to do good quality research where there is probably...