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Presumably this has been generated by the drug company and of course involvement in this will enable that team to present themselves as bio as well as psychosocial.......

What a surprise :banghead::banghead::banghead::banghead::banghead:

it took me 2 years post diagnosis of struggling to keep working part time. I was lucky to be advised in a private consultation that pushing to work would be detrimental to my health going forward. This was so helpful in helping me to realise I needed to put my health above continuing to work...

I have been to a couple of sessions yoga class organised through a local ME group. I could manage the stretches lying down but kneeling etc were too difficult. a good 1/3 of the hour was a lying down with lights dimmed guided meditation this was a lot more feasible than anything involving...

Given this type of exercise normally involves standing I wonder if the researchers have given any consideration to orthostatic intolerance.

Sounds a really positive development :thumbup:

Rarely acknowledged.......

Yes and this is what she manages on a good day

Yes definitely have used this. Although as phones don’t tend to have the same battery problems nowadays compared to the earlier days I think this might not work so well for younger people.

There’s an image that’s a drawing of a woman lying face down with batteries that aren’t in the place in her back where they should be. I can’t find it will look again later.

This cartoon is a pretty good way of communicating the less severe end of ME https://laurachamberlain.co.uk/2016/06/24/a-printable-version-of-the-me-adventures-comic/

I have had and continue to have a very positive experience of humanistic counselling and I’ve said many times the low intensity IAPT CBT I went through in 2016 was robotic.

Two points about making general assumptions about other people with ME 1. people with ME active in forums, on Twitter aren’t the whole ME community - the understanding of science among people I’ve met in Facebook support groups is pretty much that of the general public 2. in the U.K. and...

Google might have been an idea......:whistle:

it is a classic bureaucratic fudge

I support ME Association on Amazon Smile which I reckon is a pretty good option given their support for the U.K. ME Biobank and other research

Oh hang on I think @dave30th has a term he uses to describe this sort of circle:whistle:

That is such a feeble letter by Cochrane. As if it was written by some trainee with literally no understanding of the situation. Doesn’t even qualify as weasel words.

A lot of people with ME on social media aren’t doing advocacy blogs etc don’t represent the ME community in any way probably don’t see themselves as activists just ordinary folks who go there to find information and support. As such in my opinion other than not breaking the limited rules of...

And there we go. Blatant. These people simply can’t help themselves in applying their b s thinking to anything that moves. Needs bringing to the attention of the Long Covid community