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They have a list of local groups as does AFME. But the charities don’t have any involvement in running them or supporting them. Some local groups are charities in their own right, others are very informal basically just a private Facebook group. any links to the charities is pretty much...

I don’t think ME Association has local groups or AFME for that matter.

Ooh yes those various things happening within in the body can be very debilitating :banghead:

Good grief that stuff is horrible and I’m a hefty adult still had sedation on 1 10mg tablet a day goodness knows what it’s doing to little kids.

:rofl::rofl::rofl::rofl::rofl: That is so cool

Yes what on earth. Made up BS.

I was hopeful my sleeping pattern would be a bit more normal due to the hour change for autumn/winter but no if anything it seems to feel more out of kilter because I’m not getting up any earlier and it goes dark early now. This time last year I was busy moving house so didn’t notice this...

Really appreciate your work @Michiel Tack very thorough and well written

Another survey by Scope about online supermarket shopping https://reporting.bighack.org/answer-questions/supermarket-shopping-online/?utm_source=facebook&utm_medium=paid_social&utm_campaign=BH_fs&utm_content=gifbag&fbclid=IwAR0xHL1O0-gG2B93QndOcptNEp11zdqBGXHy7q3LbQxJNt3y6D2acpBiUvk

80% 48k now. Hopefully there is an end of the month factor as some receive pay, pensions etc on the next couple of days.

Usual tripe

Very Interesting @Barry we definitely need this highlighting in responses - would be good if there could be an equivalent of the PACE reanalysis paper

Exactly my thoughts. I have been a cynic for over 40 years. ;)

harsh to bracket the whole profession with the worst. We know there are great people like Brian Hughes, L Jason, Joan Crawford in psychology

Mine still to come too now at 58% $35k

BACME position - guardians of the model retreat to the redoubt and don’t give up the fight for the true GET and the true CBT

Boulazreg and Rokach Armed forces slang provides me with a term to describe your efforts - bumf

Posts from this thread have been moved to new threads: U.K. National Institute of Health Research review Living with COVID-19 USA National Institute of Health post covid management guidelines

Multiple anecdotes are fine as long as it’s clear that’s what they are. And if the numbers are clear so the value of the evidence can be weighed up.

Giving it a % makes it seem like properly researched results rather than multiple anecdotes.