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Yes I get the paywall as well.

:wtf:

Awesome work @dave30th. Obviously the shambolic standard of Chalder’s latest effort does leave you with an open goal to use the football (soccer) terminology but you scored an absolute top corner belter.

Hope you can get some rest now @Rosie fingers crossed the results come back ok :hug:

Some posts from this thread were moved to another thread 2020 ME/CFS community wins and ideas for how the forum can help in 2021

I stopped after 18 months. I can absolutely attribute sedation to Amitryptiline.

Thanks for highlighting the response @Andy well done ‘Peter White’ whoever you are excellent reply to Minna Johansson’s rose tinted view.

It’s a pity that sentence isn’t clearer - would be simply remedied in my opinion by the addition of seen as or portrayed as quintessential MUS But it is very good that the underlying agenda of MUS is clearly exposed so definitely a positive contribution.

Yes @adambeyoncelowe sedative hangover of amitryptiline and the fact it stopped being effective for sleep made me give it up. I can’t tolerate caffeine although I did rely on caffeine when I was in my long (7+) undiagnosed period. If I have any caffeine I will be awake all night in a tired but...

So even if you have a well documented and medically mainstream very serious disease you are still blamed for feeling seriously ill. :banghead:

Quite a few of these people have doctorates in other academic fields rather than are medics

Link not available in most European countries.

100%

Hopefully @dave30th will agree and use what you’ve done. Then you can claim an assist as they call it in sport these days when you set up the other player to score a goal

Ah ok i didn’t realise you’re not in the UK sorry

Who is he @Leila and do you know if he has any knowledge of ME? Maybe if you’re a regular follower of his and you can manage it you could message him links to the MEAssociation?

Thanks for sharing your experience @vsou. Unfortunately with the snowball effect that happens around improvement stories and recovery stories. Information about people who have had negative effects and or no improvement often seems to be overlooked and ignored.

Agreed - but still interesting. Timescale he’s talking about seems very short.

Yes I’ve checked the website nothing on there yet.

No published information on the steering group members yet.