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  1. NelliePledge

    Trial By Error: CBT and Irritable Bowel Syndrome

    Maybe their whole announcement was just sarcasm to test out the journalists
  2. NelliePledge

    How badly have UK proponents of Medically Unexplained Symptoms misled the medical community?

    Can’t manage to read that Facebook is very dense text and with limited formatting and no white space it is not ME friendly.
  3. NelliePledge

    Advice on mask-wearing to protect against Covid-19

    I’m sticking with the scarves I already possess lots of for now as I’ve only been out 3 times in the last month. I have spotted lots of crafty folk on Etsy seem to be turning their hand to home made mask production and sales. If it becomes the norm I’ll probably ask one of my relatives who has...
  4. NelliePledge

    Patient experiences and the psychosocial benefits of group aquatic exercise to reduce symptoms of ME/CFS: a pilot study, 2020, Broadbent et al

    When I was undiagnosed and still working I spent about 3 months going to aqua zumba with a friend it was on my non working day when I had reduce to 4 days. The class was 9.30 start I used to have to push myself to get up to get there in time and would end up in bed for the afternoon. Had to stop...
  5. NelliePledge

    Advice on mask-wearing to protect against Covid-19

    BBC countering with if the public have masks it will affect NHS supplies o_O https://www.bbc.co.uk/news/uk-52363378?intlink_from_url=https://www.bbc.co.uk/news/health&link_location=live-reporting-story
  6. NelliePledge

    Mini-crashes in late afternoon / early evening?

    I don’t get up til late morning early afternoon 4pm is a pretty good time for me. However if i don’t let myself have a lie in and get up say around 8 am for workmen or any other no choice type appointment I will often end up dozing in the afternoon. I just assumed it was because I was having 4...
  7. NelliePledge

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Specialist input = CFS clinic or service - I suppose he’s going to say that because there’s nothing else but it’s a risk - who knows which covid patients will be made worse by their approach
  8. NelliePledge

    Patient experiences and the psychosocial benefits of group aquatic exercise to reduce symptoms of ME/CFS: a pilot study, 2020, Broadbent et al

    If you do something extra like that you’re going to be at the milder end of ME like me and if you’re lucky enough to have family who will do literally all the chores and cooking I imagine it might be a nice thing to choose to spend all your energy on. In my experience I can’t do stuff like that...
  9. NelliePledge

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Cheese & butter freeze ok @Hell..hath..no..fury... how do you go about freezing eggs though I didn’t think that was possible?
  10. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    oh we’re all on tiptoes waiting to read about the new choreographies @Caroline Struthers :whistle:
  11. NelliePledge

    Advice on mask-wearing to protect against Covid-19

    Agreed @Keela Too I have been outside my home/garden/drive twice in the last few weeks both times to walk round the corner to my relatives house. Both times I put a normal scarf made of cotton round my face. I have many such scarves. The second time there were a few people out washing cars/...
  12. NelliePledge

    Advice from 'experts' on post-viral fatigue following Covid-19 (NHS Oxford Health, Science Media Centre, ...)

    Those dratted perfectionist workaholics who insist on spending all their time resting and sleeping in the daytime??
  13. NelliePledge

    UK - Resources for help getting food during quarantine and other supermarket related problems

    https://www.ajourneythroughthefog.co.uk/author/jomoss/ Posted this blog by Jo Moss hopefully not duplicating Useful tips on getting shopping summarising everything she’s found out in recent days.
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