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  1. NelliePledge

    Patient submission to BMJ: "I feel I am missing a piece of the puzzle", about FND

    Same thing for me with social media I feel I shouldn’t be questioning people’s diagnosis but then you see posts where they’re saying they have diagnosis of Fibro and FND which is the umbrella term which I know is dubious type of stuff pychosomatic protagonists would tell someone and others that...
  2. NelliePledge

    Anti-malaria drug used by armed forces and travelers "plausible cause of CNS toxicity syndrome"

    I don’t know if it was this anti malarial in 1999 I went to Sri Lanka the medication was two tablets one type I had to take daily and one once weekly. On the night I took the weekly one I “woke up” “saw” this human sized spider on the ceiling sat up in bed and screamed oh my god waking myself...
  3. NelliePledge

    UK - Resources for help getting food during quarantine and other supermarket related problems

    I’ve got a Sainsburys click and collect slot for end of the week. It turns out that it can be collected by someone else for me I just have to Forward the confirmation email to them so they can show that to the staff in the collection area. I’m putting their shopping on my order so they don’t...
  4. NelliePledge

    Emotional Awareness Correlated With Number of Awakenings From Polysomnography in Patients With [ME/CFS], 2020, Friberg et al

    More tripe. If I’d participated in this ‘sleep study’ and they showed me their conclusions I would be fuming.
  5. NelliePledge

    Crowdfunding: Trial By Error: [David Tuller] Reporting on ME, CFS, "medically unexplained symptoms," and related stuff, 2020

    Well this gives those of us who are normally able to do a bit of social activity, breaks away, lunch out etc a very worthwhile alternative to put that part of our budget towards :thumbup:
  6. NelliePledge

    NeuroPsychiatric conditions Post COVID-19

    I was thinking more Freudian slip :D
  7. NelliePledge

    UK: UC50 (Universal Credit) or PIP diary

    When I did my ESA claim I did a symptom diary in the form of a table with columns Activities - bullets of types of main activity I did eg any appointments how long out of the house for Sleep - hours slept from my Fitbit, my subjective view on sleep quality - v low, low, fair were the only...
  8. NelliePledge

    NeuroPsychiatric conditions Post COVID-19

    Encephalitis and other mental disorders? Have I misread this or is Dr Tony Rao’s tweet really saying that encephalitis is a ‘mental disorder’
  9. NelliePledge

    Coronavirus - worldwide spread and control

    Wondering how come a certain heir to the throne travelled quite a few hundred miles after developing symptoms and how many contacts have caught the virus
  10. NelliePledge

    Keeping Up Appearances - How to look good while feeling ill

    I’ve got shoulder length thick hair and have found dry shampoo good. My hair doesn’t get noticeably greasy for a couple of weeks tho. So I often go two or more weeks, never more often than weekly.
  11. NelliePledge

    Article about London homeless - Paul Atherton

    Maybe @Action for M.E. can reach out to him to help get him some support
  12. NelliePledge

    United Kingdom: North Bristol NHS Trust: ME/CFS clinic

    It took me about 2 years to realise that the content of the CFS clinic course I did in 2016 wasn’t benign but was PACElite
  13. NelliePledge

    The Steph show channel 4 U.K.

    Indeed - see post #6 above
  14. NelliePledge

    The Steph show channel 4 U.K.

    The link was to the original information about the show published a couple of months ago. Since then they have adapted the format. Today was the first show I’ve not watched it yet.https://www.channel4.com/programmes/the-steph-show
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