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Some great films mentioned on this thread. A matter of life & death is excellent it’s a great time of year to record films off TV I’m too cheap to get Sky Movies or Netflix or whatever. There are a couple of channels in the basic sky package that play old films and Film4 Sonymovies. I was...

Thanks @Naomi10 ive shared this on my Facebook people who follow me are just friends and family who don’t have ME. I took the opportunity of new year to do my own post about my 2 highlights of the year one of which was MillionsMissing and included a photo of myself at the event. So you...

Yes I realise that you’re not covered by the screening. I’m just trying to say that the issue of bowel cancer is higher up on the NHS agenda than it was.

They have introduced screening for bowel cancer for over 60s and a one off test at age 55 so I think notwithstanding the experience of the person you mentioned it is probably going to be taken seriously if you raise it with your GP.

So GET is now called psychosomatic therapy? At least that’s an honest description.

I suppose if he looks in on the forum he will see the comments and if there’s anything he can say to allay concerns he will pass that on to Andy. I presume he’s actually seen how this set up works and seen their data before commenting as he seems to think they have enough to present so maybe...

I think they’ve got unhelpful teaspoon beliefs. Definitely catastrophising.

Oh :wtf:what’s the betting she”ll be bringing out the Times magazine “letter” slide again.

held my nose and clicked on the link. It’s not what I would write but there aren’t any major issues with it. John Siddle and ME Association strategy of using personal stories to get their message into local and national media seems to be reasonably effective. Hopefully they will be able to...

Here’s an article by ME research U.K. which mentions some research on ataxia in people with ME http://www.meresearch.org.uk/walking-co-ordination/

Money being spent on this “research” is a catastrophe

Definitely flu-ish and with a hint of hangover on worst days

An interactive paper based approach perhaps - all that jumping onto paper squares..........or is it circles

:wtf:

Yes brilliant news @Woolie Ties up with the NIH finding a number of people have other conditions. NICE and NHS to take note!!!

FITNET 5th Protocol sounds like some dystopian science fiction film.

I reckon I will never be able to see or think about a BP monitor without thinking ah the Moron

Read this and thought it ok until the last paragraph which spouts the usual this can be helped with GET/CBT. If they would cut that paragraph......

I think it will be beneficial for the perception of ME generally the more the message about the study gets out there through different routes.

Agree @MerryB. It’s like political parties and factions within parties. When it comes down to it its people that aren’t engaged with politics you have to get support from. The people who are engaged in the ME community have to reach out to those who aren’t.