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  1. NelliePledge

    Effect of Melatonin Plus Zinc Supplementation on Fatigue Perception in ME/CFS: A Randomized, Double-Blind,Placebo-Controlled Trial,2021,Castro-Marrero

    my only experience of lack of motivation was early 2000s when I had a spell of minor depression whereas I only feel held back by ME.
  2. NelliePledge

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    @dave30th To add to points made by @dratalanta civil servants will also need to cover any significant issues likely to be raised whenever they have to provide a briefing for ministers. Written questions is one aspect of parliamentary scrutiny, there are also regular sessions in Parliament where...
  3. NelliePledge

    BPS attempts at psychologizing Long Covid

    Thanks @Kalliope Good to have another Psychology Professor speak up.
  4. NelliePledge

    Trial By Error: CBT and Irritable Bowel Syndrome

    Dunno why IAPT basic level is self referral
  5. NelliePledge

    Blog: Hilda Bastian, "A Cartoon Guide to Criticism: Scientist Edition"

    This is possibly an excessively grumpy comment but how is this piece more important than addressing a review that is influencing health policy and contributing to pushing people into so called treatment that has already caused significant harms to patients.
  6. NelliePledge

    Canada - Unknown brain disease in New Brunswick

    Diagnosis-resistant :wtf: Really, so it’s the illness’s fault there is no diagnosis for it yet......
  7. NelliePledge

    Central sensitisation in chronic pain conditions: latest discoveries and their potential for precision medicine) Nijs et al.

    The hospital based CFS clinic in my previous area was closed and merged with the community based pain service 3 years ago. After that we heard of people with ME/CFS who had been referred who had GET proposed......
  8. NelliePledge

    Cervical (neck) lymph nodes poll

    I have had occasional episodes of actual swollen glands. One time my already chubby neck was so swollen my head looked like a melon and the GP thought I had mumps, this was part of a series of laryngitis in the decade before I got diagnosed. But tender glands much more frequently and indicates...
  9. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Yes that is a very reasonable interpretation @Lucibee obviously we are in difficult times for the last 12 months nevertheless I don’t think anyone would have expected in June 2020 that there would be literally no progress certainly no transparency it is very disappointing I feel it is...
  10. NelliePledge

    Australia: Congrats to Daniel Missailidis: Young Achiever Award winner 2021!

    I’ve voted a few times possibly not every day. Feels a bit odd you can vote multiple times and it discriminates in favour of those nominees whose supporters can remember to vote every day...still as a whinging Pommie I should appreciate the opportunity to vote at all ;)
  11. NelliePledge

    Who is Simon Wessely?

    Yeah - a chance to talk about yourself to the R4 audience - how eminence flattering
  12. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    It’s standard establishment tactics keep stonewalling with non responses for years in the hope people will give up, run out of money or motivation to pursue their complaint. Another standard establishment tactic is to kick something off into the long grass of a review, at the beginning this...
  13. NelliePledge

    United Kingdom - National Insitute for Health Research (NIHR) news

    The work @EducateME @PhysiosforME is doing would be relevant to this I reckon
  14. NelliePledge

    An epidermal patch for the simultaneous monitoring of haemodynamic and metabolic biomarkers, 2021, Sempionatto et al

    I have in the back of my head that Ron Davis was talking about doing something like this a few years ago. But I could be wrong.
  15. NelliePledge

    United Kingdom: Action for ME (AfME) news

    Yes I think this service is much needed i hope that means they are getting an additional person not just filling a vacancy
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