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clinging on by their fingernails to remnants of CFS/ME clinic approach they think they can save Retreating to the castle keep of ‘but CBT is cost effective’

Garner doesn’t get let off from criticism about gaslighting people with MECFS just because he had long Covid. He’s said doesn’t listen to those people who are still ill. Meaning by this what we say has no value. He is far from an average person who went through longer period of post Covid...

Comment in discussion on a post on MEAssociation Facebook account “I have drawn a red line under any further involvement with Dr Paul Garner and we are not giving him any more publicity. Dr CS MEA”

I’ve not researched CFS........ yes mate that’s blindingly obvious.

Thanks Adam I appreciate you doing the clips. I posted your tweet on my FB and recommended the programme to friends and family any general public suitable pieces like this are the best option for trying to increase the level of awareness those around us :thumbup:

It is a storm in a teacup. But it is galling as well. I’m grateful for @Hilda Bastian responding on social media.

Oh I can think of two or three persons who would be up for doing that to ingratiate themselves further with the eminent ones.

So I think this is what @PhysiosforME have highlighted as symptom contingent pacing as opposed to time contingent pacing, symptom based picks up from E Goudsmit etc. One patient centered the other one size fits all push through.

Ugh

With so much covered in the programme I think it is a positive that there was a segment on long covid and that MECFS actually mentioned and good points made. I agree with the comments about Dr Strain. Hopefully his contribution will help some lacking in awareness see ME in a different light.

:rofl:

Every so often he fishes for a fresh lot of replies from PWME to show to colleagues as examples of how terrible we are

Interesting @Kitty i had in my head from somewhere, probably watching OMF presentations 3 or so years ago that the aim was for it to be a diagnostic tool.

Exercise for the sake of it is such a privileged perspective isn’t it. What about people who work in physically demanding jobs filling Amazon orders or washing and dressing elderly frail people. What about people who rely on public transport. They don’t have any scope to ‘resist’ physical...

Given they lose such a high percentage of tribunals so have to pay the benefits and the cost of taking the case to tribunal, the approach of taking so many cases as far as tribunal can only be cost effective if seen in terms of how many people it deters from claiming or deters from fighting...

Yes we always have to take a step back when reviewing content about MECFS aimed at the general public or MECFS patients generally remembering that as people engaged in the ME community, especially those who have been for decades, we aren’t that general audience.

I got a text from GP surgery and sorted booking by phone just as I did for flu in the autumn, no letter received

Thanks for the laugh

Good point about what happens in practice @Wonko i asked in advance for my ESA assessment in 2018 to be recorded but when I arrived for the appointment the equipment didn’t work and they didn’t have a spare.....

One way of redesigning the role to reduce the impact on your boss might be if you have another maybe relatively new team member who has potential maybe to get them to work with you so they can learn from you and also get the opportunity to cover for you when you’re not able to work. So you would...