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I take some comfort that there are people in psychology like Joan Crawford and Brian Hughes getting on doing a good job. it’s just a pity there is a gang who spend all their time self promoting and pushing their BS onto everyone else

6 months or whatever It’s all academic to people with gradual onset. I was probably over 6 years before I discovered ‘CFS’ and got my dr to agree that’s what was wrong with me. Of course there are some people with ME who probably wouldn’t count me as having ME because of that.

The standard of translation of some of these alleged scientific papers appears to be as shoddy as the science. At least I’m assuming this terminology - soothing factors - is due to poor translation rather than a term that’s actually used by academics. But even as I write I’m realising I could...

Pastry with cheese sauce....... I really don’t get the product formulation even if they threw in some mashed potato to the sauce that would bulk it out into pastry with actual filling in it - an actual pie Sorry you got relegated to custard creams. Maybe custard cream crumble on your peaches.

So pleased Jessica has got this recognition. It is a great book well written and easy (cognitively) to read although emotionally tough to find out what she experienced

Ugh.

Some posts from this thread have been moved to a new thread Personal stories of CBT for ME, blogs videos https://www.s4me.info/threads/personal-stories-of-cbt-for-me-blogs-videos.16024/

IAPT = sausage machine. McTherapy. Good point by @rvallee that even a bog standard fast food chain would not have ‘performance’ data at the shoddy level demonstrated by IAPT.

Deliberate obfuscation.

The fact Vogt is needing to go out and proactively engage like this on social media shows he’s non league level in terms of influence. The usual suspects won’t be using social media to influence key peers they’ll be speaking through professional channels, on the phone etc.

. Ok but this is for an ME organisation they need to make it easier without people having all that extra hassle. Thanks for suggestions unfortunately I don’t know what one control is I’m on an iPad mini and I can’t easily access this document in an editable format. Sorry if that’s a bit...

It has been suggested we create a new thread for people to discuss lipomas etc. here are some links that have been highlighted as possibly of interest. the Fat Disorders Research Society (FDRS), https://www.fatdisorders.org/ Karen Herbst, Phd does a lot of research on this family of diseases...

Who writes these minutes I feel like a record with the needle stuck for going on about this a lot but the long blocks of unbroken text are really too hard to read. I want to email them to ask for it to be addressed.

I’m assuming some Patients really means all MUS patients are malingerering secondary gains types to those medics etc who are ‘in the know’ but they don’t want to be too blatant in case they get challenged. Just fudge so if you get called out you can wangle out of it by saying whatever you think...

Yes definitely.

Prof Lynne Turner Stokes should spend a month living under the same roof as someone she labels as MUS - see what she thinks about the ‘social mystique or importance’ then. eta I mean really - social mystique is right up there with catastrophising on the talking bullocks scale

It’s going to be interesting to see how these long Covid folks react when they realise how lightweight this NHS app thing is going to be. And I doubt the rehabilitation service is going to offer that much. See CFS clinics.

Yet more evidence it truly is a template model of ‘research’ if you churn out ‘study’ after ‘study’ and there’s barely any difference not surprising you can’t even remember the titles - they all blur and you can’t tell them apart. In practice you’re just making the same points whatever the...

:wtf:

NYD-N? Please spell out this acronym I’ve never heard of it.