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  1. NelliePledge

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Morrison’s putting limits on loo rolls and disinfectant not due to stock shortages but proactively to prevent bulk panic buying https://www.bbc.co.uk/news/uk-england-leeds-54283153
  2. NelliePledge

    Sore throats swollen glands

    Presumably assumptions have been made that there’s nothing exceptional about it but are there other illnesses where you can get sore throat and swollen glands from participating in activity?
  3. NelliePledge

    POLL: physical vs cognitive PEM - same or different?

    I do most of my time online these days slouched down on sofa with my feet up and I’m ok for quite a long time for browsing and simple messaging. Doing more complicated tasks that have more steps need a lot more concentration like filling in a form or editing text definitely has an egg timer on...
  4. NelliePledge

    POLL: physical vs cognitive PEM - same or different?

    It’s hard to separate out the orthostatic intolerance effect from the cognitive exertion. I didn’t realise about orthostatic intolerance when I was still working. sitting at my desk working on the laptop was pretty exhausting, taking part in teleconference meetings was really draining...
  5. NelliePledge

    Psychosomatic medicine and the psychologising of physical diseases

    This topic is also discussed on this thread in the members area https://www.s4me.info/threads/why-do-people-believe-in-psychosomatic-explanations-for-illness.15327/
  6. NelliePledge

    Characterization of Post–exertional Malaise in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (2020) Stussman, Nath et al.

    If I have to queue up or spend a long time socialising sitting up at a table without any breaks it is going to make me feel worse at the time but also I am definitely getting PEM the following day. I don’t know if I’m interpreting this right but it feels like standing in one spot drains my...
  7. NelliePledge

    BMJ letter from LongCovid doctors.

    I am ok walking round in the pool and floating. If I start trying to swim I get cramp in my calves very quickly so I can only potter about in shallow water. I can walk for longer/further than I can swim. It was a heated pool but not actually warm. As I’m having work done on my house and...
  8. NelliePledge

    Characterization of Post–exertional Malaise in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (2020) Stussman, Nath et al.

    when a member of my extended family asked me at a Christmas get together a couple of years ago what is ME and I said it’s like having flu a lot of the time it was understood and I Think registered as pretty serious. In my experience flu like symptoms is reasonably well understood by the...
  9. NelliePledge

    [UK] Pain medication from GP

    I can’t use NSAIDs because of the hypertension medication I take
  10. NelliePledge

    New Sleep Poll

    I count that as the first stage in PEM. I get wired then energy crashes and symptoms ramp up.
  11. NelliePledge

    BMJ letter from LongCovid doctors.

    Of course we shouldn’t be surprised he is trying to be seen to be saying the right thing and of course that makes all us PWME who say he’s a hypocrite just look like the terrible people picking on him he’s always had to deal with - poor sausage
  12. NelliePledge

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    And apparently hasn’t explored the history of post viral illness
  13. NelliePledge

    BMJ letter from LongCovid doctors.

    Utter hypocrisy from his ‘eminence’
  14. NelliePledge

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    When I’m in a positive frame of mind about it this is what I hope, that trying to use their psychosomatic bs on this new group simply won’t wash. when less positive the concern is there will be a blinkered attitude by all concerned Patients medics health professionals that Covid is somehow...
  15. NelliePledge

    UK writer with ME Susanna Clarke - press articles

    Nowadays in retirement i try to plan things so I have enough time to think things through before any big decisions. Treat it like a work task and make notes. Also at times have to say no I need time to think I’m not deciding now I will come back to it tomorrow. As moderate ME at my worst end...
  16. NelliePledge

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I wouldn’t know - is there information to compare this with other viruses
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