Shows total lack of understanding of the ME community not expecting it would be shared widely. Shows what the agenda is that they didn’t in fact set it up in the first place to be shared widely. Presumably expecting recent attendees to be more under the impression that the CFS clinics are “a...
So the “gold standard” Chalder Fatigue Questionnaire is used in these official stats to report the performance of IAPT Long Term Conditions aka MUS as a measure of “recovery” for CFS Executive Summary Appendix 3,
interesting story - he had NPH normal pressure hydrocephalus
I’d not heard of that before but apparently it does get mistaken for Alzheimer’s
https://www.bbc.co.uk/news/world-us-canada-49375308
Agree with what @Andy said about undiagnosed people I also was one for at least 8-10 years. I felt unwell pretty much every day but managed to work 85% of full time with quite a lot of travel each month to other cities 12-14 hour working/travelling days. On the face of it I wasn’t far off...
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