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  1. NelliePledge

    RoB 2: a revised tool for assessing risk of bias in randomised trials (2019) Sterne et al.

    Does he realise by working with his mate on this dodgy paper he’s put his professional reputation at risk?
  2. NelliePledge

    On line ‘survey’ re UK CFS/ME specialist services

    Shows total lack of understanding of the ME community not expecting it would be shared widely. Shows what the agenda is that they didn’t in fact set it up in the first place to be shared widely. Presumably expecting recent attendees to be more under the impression that the CFS clinics are “a...
  3. NelliePledge

    RoB 2: a revised tool for assessing risk of bias in randomised trials (2019) Sterne et al.

    I’m betting he’s wondering why he ever let them put his name on that one. Oops.
  4. NelliePledge

    IASP's Proposed New Definition of Pain Released for Comment

    When they get the all over aching pain of a flu type virus are they having an emotional experience?
  5. NelliePledge

    UK NICE - Projects to support the development of the NICE guideline on ME/CFS: diagnosis and management

    Ah but it wasn’t the patient who was the first to mention tasing :whistle:
  6. NelliePledge

    UK NICE - Projects to support the development of the NICE guideline on ME/CFS: diagnosis and management

    It’s ridiculous that they didn’t foresee the need to address this in their communications.
  7. NelliePledge

    UK NICE - Projects to support the development of the NICE guideline on ME/CFS: diagnosis and management

    Merged thread https://www.actionforme.org.uk/news/involving-young-people-in-the-nice-guideline-development/ Not sure if this has already been posted
  8. NelliePledge

    Andy's attempt to create a reasonable descriptive model of ME.

    Yes @Barry i feel I have my battery on trickle charge while coming back from PEM.
  9. NelliePledge

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    Be interesting to know what the £500k was spent on
  10. NelliePledge

    MUS services in UK and other MUS related issues

    So the “gold standard” Chalder Fatigue Questionnaire is used in these official stats to report the performance of IAPT Long Term Conditions aka MUS as a measure of “recovery” for CFS Executive Summary Appendix 3,
  11. NelliePledge

    BBC treatable disease mistaken for Alzheimer’s

    @Arnie Pye :hug: I’m glad you were able to get some benefits from the surgery
  12. NelliePledge

    BBC treatable disease mistaken for Alzheimer’s

    interesting story - he had NPH normal pressure hydrocephalus I’d not heard of that before but apparently it does get mistaken for Alzheimer’s https://www.bbc.co.uk/news/world-us-canada-49375308
  13. NelliePledge

    Positive Psychology; Positive Thinking

    Ignorant of statistics person question here how can they be sure that their adjustment for demographic issues is completely effective?
  14. NelliePledge

    Andy's attempt to create a reasonable descriptive model of ME.

    Agree with what @Andy said about undiagnosed people I also was one for at least 8-10 years. I felt unwell pretty much every day but managed to work 85% of full time with quite a lot of travel each month to other cities 12-14 hour working/travelling days. On the face of it I wasn’t far off...
  15. NelliePledge

    Positive Psychology; Positive Thinking

    Not the BBC but........oops ........not going there
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