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CFS clinic motto fake it till you make it :rofl: They’re certainly faking having anything that could honestly be described as “specialist knowledge” of ME/CFS

Well I guess if it’s being considered as potentially of use with people who are unable to communicate their pain it’s not too much of a leap for them to grasp that it could potentially validate people who do communicate pain but are disbelieved. Complicated though - if it’s roughly accurate it...

“experts”

He needs reigning in to limit the risk of his bogus approach causing harm to people. I fully support ME Associations actions in complaining to Advertising Standards and if people highlight that to social media platforms all to the good.

Or maybe they are aware and it is a deliberate step to dominate with one view of pacing.

Well it looks like you were too optimistic

I’ve found it quite helpful when I used to respond to stuff on Facebook when theLP evangelists come on to post a link to advertising standards ruling it seems to be quite effective at shutting down exchanges.

Do we really want rats to live longer

My relative who has Parkinson’s has the frozen up state but when meds kick in and they are mobile again actually is pretty mobile and does a lot of walking. Goes between being in a wheelchair and walking about four times as fast as me. I’ve seen them looking exhausted but it doesn’t seem to be...

Is central sensitivity syndrome an actual diagnosis or is it made up like Fink

Which would be fine if he wasn’t actually selling a product. In which case it’s entirely appropriate to report something making misleading claims.

Maybe they’ll be interested in doing one of your q&as @Andy

Did they do anything with the non subjective data?

How do you see comments?

I think people should be kept to same standard as being clear of cancer ie if you’re symptom free for 5 years you can said to be clear. Although apparently some cancer doctors only use remission even then.

Gradually increasing goes against the normal useage of pacing which is to maintain a STEADY pace to enable you to reach a goal without becoming exhausted before you reach it. https://www.merriam-webster.com/dictionary/pace%20oneself Gradually increasing is the therapist acting as a pacemaker-...

It’s been shown on tv now so might be available

Made me think of this I saw recently on twitter https://www.mirror.co.uk/news/uk-news/boy-died-meningitis-just-hours-16248796. Paramedic in particular seems to have been incredibly dismissive of the poor mother.

IAPT is pretty well established as I understand it the CBT I had in 2015 was under IAPT It appears to have begun in 2008 https://www.england.nhs.uk/mental-health/adults/iapt/iapt-at-10/

The cat ate it