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I have something in the back of my mind telling me Jackie Aston is Parker’s wife. Possibly from the Advertising Standards complaint.

Well done @Andy and the DecodeME team. That’s amazing to get so many people interested even before the project starts.

Fair point

Well that was what someone giving evidence said that’s not necessarily the opinion of the APPG group and I would hope they would be open to input from the ME APPG eta in fact in view of that comment I think the ME APPG have a responsibility to try to build bridges to the CV APPG. I’m sure they...

They might learn something

Hopefully all they are doing is making the pile of tripe so huge that NICE can’t ignore the smell.

The Powis letter was drafted by a junior official and reads like a standard letter intended to be churned out to anyone raising concerns. It is not in any sense a response to the issues raised or reflective of the fact that the two ME organisations speak on behalf of substantial numbers of...

how very dare you think any of the eminent “fatigue specialists” would stoop to such behaviour. it’s all unhelpful thinking on your part.

Exercise the panacea

Because you want everything to get back to “old normal “ and you hear messaging from the government that tells you it is getting back so you don’t look or think any further. So many times on social media people posting crap about let’s stop being negative what’s the good news. So many people...

A Marks & Spencer’s sandwich supplier in Northampton has got 300 positive cases https://www.bbc.co.uk/news/uk-england-northamptonshire-53762233

Yes me too

I reckon they work on the basis that as long as the study exists it’s adding to their case. However once you actually get reviewers or in this case a Committee that looks beyond the abstract and doesn’t take conclusions on face value the fact the content is so shoddy should work against their case.

Useless non response regurgitating stuff it is clear from his comments that JE already knows.

Yes it is posted and apparently the site displays most recent comments first.

It’s possible to put in redirects when you make changes like that. I can see why they tidied it as it was an odd file name but sending your website users scrabbling round to find the replacement is not good practice.

I think it’s pretty good too for anyone with minimal knowledge of ME.

https://www.telegraph.co.uk/news/2020/08/12/new-zealand-investigating-freight-source-covid-19-outbreak/

Let us know if there’s anything we can do to support your nomination

Agreed but it’s not a bad start and hopefully they could be persuaded to revise it with information about PEM as patients begin to register that the time frame for any anticipated recovery is stretching and get a better understanding of what PEM is and how it affects them in practice.