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When I google uk population I get a figure of almost 68 million.

Would be good if she could have a word with a lot of her colleagues to let them know that.

But only gooey if you’re regressed :wtf: eta tripe alert!!!!

As long as the idiots keep wearing the t shirts @Leila at least then you know to give them some extra metres.

Yes i seem to remember there were much better (not difficult) than Chalder existing tools I think there was one that had been used in MS research could be a good step forward to replace it possibly with a few changes to adapt to ME.

I think people naturally want to increase activity when they have a bit more energy and saying it should only be done very gradually over a long period of time - if there is some energy available and not continuing if symptoms worsen isn’t anything at all resembling a mechanistic PACE style...

A fair point @Invisible Woman i think it can be dangerous to assume that those with no experience of ME understand what very gradual means. For clarity it would be better to give an indication in terms of periods of time eg saying you’re looking at very gradually over several months rather than...

:sick:every time I see this thread title pop up. what’s the betting he’s got it bookmarked :whistle:

The only basis that would be worth anyone’s while is if there was a genuine overhaul of their approach. Of course there’s likely to be some degree of revamping IF the ME guidelines change next year. The battle after the guidelines will be over the manual. And the one after that will be how...

Agreed @SlySaint I suspect the team involved aren’t aware their comments are being exploited in this way. Among a selection of “the cured” the logo is doing a lot of dubious validation there. Maybe you should email the biobank team to ask them to raise it with their colleagues. Does Parker...

come on. What you’re really saying is it’s positively iffy. Innit

If you’re dependent on a clinic for providing some support with employers or benefits claims you’re less likely to be filling in questionnaires at the end of your course of treatment saying it has had no effect or made you worse. You might give a neutral score or slightly positive, you might...

If it was me I would contact Carol Monaghan MP about this

Circling the rickety wagons of eminence

From Twitter she seems to be invested in the link up her group has made with UK Sepsis Trust which obviously must be an acceptable connection....... eta @rvallee this was the thing I saw ETA 2 and here’s the pinned tweet on sepsis trust. I’ve not watched the video yet ETA3 ok so maybe...

Nice one @TiredSam :rofl: I can report an increase in swearing but I suspect I already met the standard for being a sweary person before being included in the study :whistle:

As someone only diagnosed 5 years ago I’d say it takes time to understand the situation and listen to and hear those who have decades into this. It’s probably a bit easier if you’re one person looking for support and a community. If you’re a whole cohort you’ve got your own community there...

Yes @Peter Trewhitt i don’t think those who report relatively positive experiences of CFS clinics are all having the wool pulled over their eyes or have other conditions causing fatigue. I think it is quite likely that some staff within those clinics are either deliberately operating under the...

True and if you’re not face to face with a therapist probably at greater risk of them not engaging some humanity and saying you should actually stop. The robot therapist mentality is likely easier to maintain at a distance. And that opportunity won’t exist in a programme that doesn’t involve...

Agree - the BPS foolishness is no longer second hand through the example of how patients with ME or MUS are dealt with. Long Covid is well and truly in their domain as they see it.