Search results

Agree @Barry I would say that just because something is internet based doesn’t make it less likely to be harmful - people are subject to online bullying and get groomed into all sorts of unpleasant activities - even if there’s no engagement with a live person at the other end in some ways...

I think the internal vibration in the torso I experienced only very rarely is a form of tremor. It was similar to the normal all over shaking I’ve experienced when I’ve got cold in seawater or getting drenched in a very heavy downpour. But limited to inside my torso and not visible. in my...

Glove and sock neuropathic pain that I get is like my hands and feet have got low level electric charge running through them and they’re warm. It’s usually fairly mild in terms of the level of pain but gets worse whenever the temperatures are high at nighttime and definitely has a negative...

Abra ca bloody dabra

I think this is neuropathic pain?

I would imagine that’s because @dave30th had posted responses on that twitter thread that they’d rather delete the post so that his comments wouldn’t be seen.

That’s great :thumbup:

So you can sedate a patient up to the eyeballs with tricyclics - are these even proven for pain? but paracetamol and ibuprofen are bad. As ibuprofen and paracetamol, even the lower dose paracetamol & codeine are available over the counter and quite a lot is even available in supermarkets this...

I think both are important and needed to leverage more substantial funding from public or private funders. We can’t wait for research breakthroughs to overthrow the current status quo in how people with ME are dealt with. We need to get to a position where ME patients are not at risk of harm...

My tactic is a physio gel pack frozen wrapped round a couple of times in a cotton scarf. Applied to the back of my neck. I find it very effective at cooling me down. If extremely hot a second pack deployed to front torso like the opposite of a hot water bottle. If able to take a bath lying...

Sorry I have sent us off topic. Still off topic Clive James autobiographical book Unreliable Memoirs caused me to laugh so hard I snorted while reading it on the tube when I lived in that London.

Difficult for me to say as I’m rather chunky middle aged woman so naturally have a tendency to sweat when I do any demanding physical activity.

Your style reminds me of Clive James :thumbup:

Nah sorry @Amw66 ice cream all the way for ‘soothing’

They are all coming out all guns blazing now with the NHS app and various articles highlighted on the news from Scandinavia post. I truly hope that long Covid people are able to push back sufficiently - with support on offer to them from PWME I would like to think that in 12 months time we’ll...

No probs just wanted to flag his comments to you :thumbup:

And JE has also commented on the disclaimer at #83 on this thread

Shopping bags

Whatever your original motivation when you spout rubbish for so long you end up believing it.

More belated coffee smelling by U.K. government the isolation period for symptomatic people to be increased from 7 to 10 days https://www.bbc.co.uk/news/uk-53588709