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Feels like it’s based on deconditioning theory. Singing, like exercise and yoga, is lovely.

Ok but I’m not unusual in not having the strength to speak much, let alone sing! Why do people keep trying to do music to us? It’s a sensory nightmare.

I guess a “simulation” might use genuine info from a case of a severe person standing or sitting and answering questions, showing that they have Orthostatic intolerance and their HR and BP are going crazy so maybe don’t stride in shouting “good morning patient” and firing off a load of demands...

“illogical” Captain Spock.

And yet…they don’t. As someone who ran the dreaded workplace training, there is value in people “practicing” how they react in certain situations (even if role-play is cringe) as otherwise people have a real tendency to default to their own opinion/experience and in our case that doesn’t help...

Oh sure, but I’d like to see their faces and hear the little cogs trying to spin it though… (I had Chalder’s dumb book, back in the day, at the behest of an NHS CBT)

Subjecting who to harm? An actor or a physio?

I think if I were to go (which I won’t) the question I’d like to ask would be- Given the circumstances outlined by Garner as to how he achieved full recovery via brain training (or whatever it’s called) then isn’t it the case that Chalder’s body of work on pacing and GET is entirely debunked...

I don’t think it’s a bad thing, for reasons Bobbler has said, we do sometimes need to interact with physios for non-ME reasons. Even removing the “big old explanation of what ME is” because they already have an understanding, is something helpful. I don’t see any reason why an actor can’t...

ETA I shan’t be going I take it back, am willing to sit with a sign saying “Trudie Chalder can’t do basic maths”

I think the message is a bit complicated when it’s “someone else doing a thing a pwME can’t but also pwME can join in doing a thing” can we do it or not? what is ME taking away from us? Also probably just rankles as it reminds me of the Neil Riley carry on “we need to move!” Stop making us do...

I mean, I suppose if an individual has started a “move for ME” campaign that’s one thing, but why are all these campaigns a bit…off? Walk for ME…ok someone else does the walk, except sometimes it’s someone recovered Move for ME except you’re also supposed to do something moving Seeds of Hope...

I think he’s on board with it all

Bagsy not me, it’s bad enough I occasionally see him on a rare trip “out and about”. Has he cured himself of the shortest ever Long Covid again now, or is it ME again that he might have had before he got Covid when he was perfectly healthy, it’s so hard to make sense of the nonsense.

How about What the F:emoji_blossom::emoji_bouquet::emoji_four_leaf_clover:

Yeah. Now you put it like that, the colouring in makes sense.

It’s giving something about us, without us. It really feels like a healthy person has come up with this and made it “easy” for the ME’s. Be part of a community by doing a thing. Nobody communicates with you. You don’t communicate with anybody. I’m not getting the sense of a community, and...

That’s a confusing name

What’s a digital biomarker please?

@nanay please note this extract from NICE clinical guidance NG206 1.11.14 which states not to offer generalised physical activity or exercise programmes developed for healthy people or people with other illnesses There are also many other parts of the NICE guidance which outlines why this...