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    World Conference on Research Integrity

    I hadn't heard of Patricia Murray before. https://www.liverpool.ac.uk/people/patricia-murray Interested to see that she began her career as a nurse. Perhaps this helped her to see medical claims in terms of their impact on patients rather than on the researchers' careers.
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    World Conference on Research Integrity

    Saw this in a Mastodon thread today about the World Conference on Research Integrity. https://mastodon.online/@tomstafford/114301415246307147
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    Caffeine against persistent fatigue in long-COVID: a randomized clinical trial, 2025, Cardoso

    Researchers missed a trick not including healthy controls. If caffeine also improves the walk distance, perceived fatigue and so on of control participants, then they've found a treatment that can support healthy people being rehabilitated from, um, healthiness.
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    Can a simple screening test distinguish between ME/CFS sufferers and patients with ME/CFS-like symptoms?, 2025, Habermann-Horstmeier (German)

    Did they check whether all the confirmed ME/CFS diagnosed patients passed this test?
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    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    And followed up the subjects for a year, so we could see how many *actually* recovered enough to resume their old lives, and how many ran on fumes for a few months and then crashed.
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    ‘A gift and a curse’: the benefits and limitations of self-tracking Long COVID, 2025, Jayadeva & Lupton

    It's a shame things sometimes get sensationalised to make an eye-catching title. Plenty of people don't find tracking a gift or a curse, just something that helps a bit (or doesn't).
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    Long-term effects of SARS-CoV-2 infection on blood vessels and blood pressure – LOCHINVAR, 2025, Lip et al.

    Long-term effects of SARS-CoV-2 infection on blood vessels and blood pressure – LOCHINVAR Where did they get the H?
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    Identifying and renaming inaccurate, inappropriate or minimising words, phrases, etc. in ME/CFS

    I can say the first three or four syllables of 'Deteriorative' but my chances of getting anyone else to understand the whole word would be slim! What's a word meaning the same sort of thing but easier to pronounce?
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    UK House of Lords/ House of Commons - relevant people and questions

    Thank you for keeping up with all these.
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    Predictors of fatigue progression in long COVID among young people, 2025, Brodwall

    Chalder Fatigue Questionnaire. [sound of someone scrunching up paper and dropping it in the bin]
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    Asymmetrical glymphatic dysfunction in patients with long Covid associated neurocognitive impairment- correlation with BBB disruption, 2025, Chaganti+

    I've tried to see how this compares with the asymmetrical results found in 'Glymphatic system dysfunction in recovered patients with mild COVID-19: A DTI-ALPS study' https://www.cell.com/iscience/fulltext/S2589-0042(23)02724-4 but it's too many words for me Forum thread here...
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Which frontbenchers have indicated that they might resign?
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I mean in the ME Association piece.
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    https://meassociation.org.uk/2025/03/the-me-association-fervently-refutes-the-psychosomatic-model-of-causation-applies-to-me-cfs-or-indeed-long-covid/ "The ME Association fervently refutes the psychosomatic model of causation applies to ME/CFS or indeed Long Covid" Unfortunately, just saying...
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    United Kingdom: Dr Suzanne O’Sullivan (BPS neurologist)

    “[The media] presented long Covid as an unequivocal pathological result of a viral infection. [A psychosomatic] cause wasn’t even touched on." This obvious untruth alone ought to get her laughed out of any serious discussion. But instead she does the rounds of podcasts and promotional...
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    C-reactive protein, CRP

    Just got some routine blood test results so I've added my vote (for 1-2). Previous tests 3 months into Long Covid: CRP was 2, eosinophils high, plasma viscosity high, everything else tested was within normal ranges. Recent tests 3 years into Long Covid: CRP is 1, eosinophils still high, plasma...
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