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Better here

https://www.biorxiv.org/content/10.1101/2020.05.07.082917v1 Preprint twitter thread here

Not sure this is working for me......

Don’t think there is anything to this claim—seems to be mostly speculation from some researchers. My CFS physician has seen at least 14 testing-confirmed Covid cases among their patients. And most/all cases were contracted via a household member

https://www.nytimes.com/2020/05/10/world/europe/coronavirus-italy-recovery.html?action=click&module=Top%20Stories&pgtype=Homepage Surviving Covid-19 May Not Feel Like Recovery for Some

https://www.brittanyrcollins.com/ Can contact her through here

Also in the Appendix, it indicates that they scored cognitive function. I wonder why this wasn't reported. "The Cognitive score is recorded every two weeks as the mean score for the following three parameters: Concentration difficulties, Memory problems, and Ability to think clearly"

Also, supposes that the cyclo actually worked (not a placebo effect). If you have progressive MECFS, and you wait 5+ years for the Phase 3 study to be completed, by that time you may have progressed to severe. This study indicates that cyclo did not work for the severe patients--so it's...

Super-liking the comment above from Marky. It's been like crickets. And it's possible that a Phase 3 trial may not give much more useful data given the issues associated with blinding cyclo, a nausea inducing drug. There is a suggestion to try alemtuzumab (Campath) in lieu of cyclo for t-cell...

I'm not sure why the authors mentioned doing a controlled study in the future. I thought that we had discussed in an earlier thread that it would be impossible to develop a control for a cyclo study due to the nausea induced by cyclo. @Jonathan Edwards recommended a dose response study instead...

https://www.aier.org/article/the-monumental-failure-of-the-cdc/ Unfortunate article—implies that billions are spent “on things like CFS” @dave30th

@Sid I respectfully disagree with your assessment. There was not a null result in this study. "Fatigue score and other outcome variables showed significant improvements compared to baseline." "At baseline, only two of the responders had part-time work participation. During follow-up, at...

Thanks for posting. First I’ve heard of the Kyn trial. Wonder what the dosage is/is it administered orally or via IV?

Cyclophosphamide is already approved and on the market, so not 17 years.

Anyone see appendix G or G1? Thanks.

Multicenter phase 3 if you want to wait about 6+ years. The current study began in 2015 and was published in 2020. A phase 3 study is more complex, plus they have to secure funding. So maybe published in 2027 or 2028. This is not a great option if you have progressive MECFS.

Finally published!!!!!!! How do I test if I have this? HLA-DQB1*03:03 and/or HLA-C*07:04