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Lol...that’s what I would do...reply at the other place so that he can see it...

https://forums.phoenixrising.me/threads/the-ido-metabolic-trap-guy.62727/page-11 "I need to know, from relapsing-remitting CFS patients, whether the cycle of relapse and remission is regular or variable. In other words, if you measure the time from one remission to the next remission, or from...

@JaimeS Thanks. I thought Ron Davis was a proponent of rapid data sharing in lieu of/in addition to normal publication.... Therefore it would be really great if the nanoneedle data could be shared on their web site..... [Sorry for off-topic]

@JaimeS Was lorazapam (ativan) the only benzo that improved the blood of PWMECFS using the nanoneedle? Were all (major) benzo's tested? If many benzos were tested and only lorazapam worked, do they have any idea why this might be the case? Thanks.

This is a journal for people to publish their experimental design with no result data? Strange. This should be the methods section of their results paper. But the real problem here is lack of comparison—they should compare Jin’s three needle technique with Chen’s four needle technique and most...

FYI https://www.nytimes.com/2019/03/03/health/fecal-transplants-fda-microbiome.html?action=click&module=Top%20Stories&pgtype=Homepage

Can’t some of these ME action groups write a letter indicating that aquatic excercise trials are not seen as a priority research need for pwmecfs? I’ll sign it.

Hello Scandinavians (particularly Norwegians), Have you heard anything about the publication of the F & M Cyclophosphamide study? Seems to be taking a while. Also do you think it might be possible for someone to contact Haukeland to find out what happened to the ME/CFS patients who were not in...

I think @Jonathan Edwards says nay to this (inflammation).

What are the miracle chemicals?

"I have been dying to write here and tell you all how I am doing, but alas I am still not allowed." Do you think she would be dying to tell us how she is doing if she had no effect from the treatment..hmmmmmm

Thanks @Ron. I’ll look into this...or travel to India....

Also, FYI pwmecfs are the only ones who report the super wired feeling from antivirals. It is not reported at all as a side effect for normals (lots of side effect data for valtrex as it is widely prescribed). Here is Nauviaux on a proposed mechanism for antivirals in me/cfs...

In my experience, Valtrex worked—it increased my energy significantly and decreased brain fog. But eventually it stopped working. I think we can agree that these drugs definitely do help some people, even though we have no idea of the mechanism involved (probably has nothing to do with...

https://www.google.com/amp/s/www.forbes.com/sites/robinseatonjefferson/2019/01/29/israeli-scientists-say-they-will-have-a-complete-cure-for-cancer-within-a-year/amp/ Well now that there will be a complete cure for cancer, we can load up on the cyclophosphamide.....no problem....

Thanks

Hi, Has anyone tried colchicine? According to the Davis group article on blood cell deformability, colchicine can affect cell deformability. “Based on extensive literature search, we found only one of the drugs, colchicine, which was prescribed to one patient, has been shown to slightly...

Hmmm Harriet Hall— remember her? Someone referred to one of her CFS articles as “a very intriguing piece of psychopathology.” https://forums.phoenixrising.me/index.php?threads/harriet-hall-cfs-rituximab-revisited-in-science-based-medicine.42499/page-2

Ok I’m confused... if the actual treatment is the [temporary] destruction of the immune system, then why are the stem cells needed? Are there diseases where the stem cells are needed to reboot the immune system?

https://www.vox.com/2019/1/15/18182095/ms-multiple-sclerosis-stem-cell-transplant She is usually a good journalist, but this article misses the boat I think.