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But it seems to be long-lasting—they didn’t want to use the word cure. Stem cells might not be needed—authors mention this.

@Jonathan Edwards, interested in your opinion of this JAMA study ( for ms, not Cfs). Thanks

These are pretty strong findings

https://jamanetwork.com/journals/jama/article-abstract/2720728 Link to original study

https://www.medscape.com/viewarticle/907414 Chemotherapy for Relapsing-Remitting MS? Might need to logon to access

This is in NYC, not Cornell/Ithaca

This.... http://reductress.com/post/how-i-survived-my-battle-with-unsolicited-advice-about-my-battle-with-depression/ Actually, the main reason I'm not so keen about telling people I have this thing....the great, always helpful advice I get....

Hi, Does anyone know what her mystery potions are for 1) premenopausal women 2) post menopausal women and 3) men are? I assume it’s different from the GWI potion?

No increase in cancer incidence detected after cyclophosphamide in a French cohort of patients with progressive multiple sclerosis. Le Bouc R, et al. Mult Scler. 2012. Show full citation Abstract BACKGROUND: Cyclophosphamide is still used in progressive forms of multiple sclerosis (MS) in view...

True. It could be placebo effect or natural improvement. It might also be a treatment effect. As mentioned above, it is not possible that people with ME/CFS respond to cyclo differently or at lower levels than people with cancer or rheumatic disease?

@Milo mele kalikimaka is Hawaiian like here or here..more entertaining

Yeah for more clinical trials......(less for fecal microbiome studies?) There are now 4 or 5 five drugs that might work for ME/CFS Ampligen (needs another study, apparently) Cyclophosphamide (from Fluge/Mella)--but maybe no phase 3 study possible Suramin and Copaxone (From Ron...

Maybe. But this will take a long time ~15-20 years (including drug development/approval). Even if targeted ME/CFS drugs are developed, they are also likely to have potentially detrimental side effects. I'm guessing that the developed drugs will look something like the Disease Modifying Drugs...

@TrixieStix I think for cyclo, total dosage for auto-immune diseases can exceed those used for cancer, especially, if they have to retreat over a long time period. The dosages used by Fluge/Mella are similar to those used for the treatment of breast cancer, for example...

@Jonathan Edwards Thank you for clarifying the 40% number. But I also want to point out that some (at least one person) had a long lasting effect ~4 years from the initial infusion series. So it is possible for people to get long-term remission from one series. Do you still think that...

Dear Dr. Edwards, You are correct about the blinding (you had brought this up before, but I forgot--must be the brain fog). But the 40% bladder cancer number is overstated. See here https://onlinelibrary.wiley.com/doi/full/10.1002/art.25061 There is a bladder cancer risk for high dose daily...

Hopefully, the Fluge/Mella cyclophosphamide trial results will be published shortly. https://clinicaltrials.gov/ct2/show/NCT02444091 (CYCLOME). This was a phase 2 unblinded study. Jumping the gun a bit, what if the trial is positive, that is there was a response in the patients (let's say...

And do we know of any physicians/clinics in Argentina that are administering Ampligen?

https://www.medpagetoday.com/blogs/revolutionandrevelation/76863?xid=nl_mpt_blog2018-12-12&eun=g1139006d0r&utm_source=Sailthru&utm_medium=email&utm_campaign=Packer_121218&utm_term=Packer%20Blog%20-%20Cardio%20list Interesting...if only I had a good barber....

My ESR was almost 0 at onset (maybe it was zero/undetectable), but has been more or less normal since then. The low ESR was how I (not the physicians) figured out I had this shit thing.