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I've seen this claim before about trimipramine not affecting sleep stages, but haven't ever really seen good scientific data on this.

Some correspondence with Bergen... "There have been no further updates since the cyclophosphamide study was published in April this year (https://www.frontiersin.org/articles/10.3389/fmed.2020.00162/full). I cannot tell you which proportion of the patients are still in remission, as we have no...

Also posted the above in the sleep meds thread

Discussion about day-time dosing of melatonin by Robert Phair here https://forums.phoenixrising.me/threads/dramatic-improvement-in-mental-symptoms-from-melatonin-dosed-in-the-day.43606/page-2#post-2307414

OK, but the trade-off is that the patient misses out on the best sleeping pill. The benzodiazepines for sleep are mostly half-measures. I’ll bet you that the benzo drug manufacturers over-promoted benzodiazepines and over-hyped the dangers of barbiturates to capture market share. Also Valeant...

Ummm you forgot the gold standard. https://www.drugs.com/comments/secobarbital/ A perfect 10/10 rating. Physicians are so scared to prescribe this stuff, probably to the detriment of many patients. What is the status of barbiturates in the UK/EU? (E.g., very rarely prescribed, etc.)

Another example of a dopamine agonist/partial agonist helping with CFS symptoms

Why not? I have daytime fatigue and would like to not have it. However, I would prefer to see a trial of pitolisant (Wakix) which works by a completely different mechanism. Wakix is very expensive in the USA, but not as expensive in Europe. In general I support all non psychological clinical...

https://www.medpagetoday.com/blogs/vinay-prasad/89564?xid=nl_mpt_DHE_2020-11-10&eun=g1139006d0r&utm_source=Sailthru&utm_medium=email&utm_campaign=Daily Headlines Top Cat HeC 2020-11-10&utm_term=NL_Daily_DHE_dual-gmail-definition Op-Ed: More Science, Less Speculation on COVID Long-Haulers — We...

This disease should have its own dedicated journal.

Dopamine agonists, which treat RLS may also treat MECFS https://forums.phoenixrising.me/threads/how-i-solved-my-neuroinflammation.81625/

Any ideas for questions for Allison Kanas?

https://link.springer.com/article/10.1007/s00702-020-02166-2

https://www.neurologyadvisor.com/topics/multiple-sclerosis/the-role-of-ketamine-infusion-for-patients-with-ms-related-fatigue/ Primary outcome of the study was negative. Reference Fitzgerald KC, Morris B, Soroosh A, et al. Pilot randomized active-placebo-controlled trial of low-dose ketamine...

https://www.healthrising.org/blog/2020/10/15/fatigue-nucleus-multiple-sclerosis-fibromyalgia-chronic-fatigue-syndrome/ Cort’s write up.

https://www.nytimes.com/2020/10/21/arts/music/keith-jarrett-piano.html?action=click&module=Editors Picks&pgtype=Homepage Mentions his CFS

@Jessie 107 how long have you been on Abilify? Thanks

80% of patients improve on Abilify according to RD

Rescheduled A Message from Survivor Corps: We are pleased to inform you that our rescheduled COVID Live Webinar with Dr. Anthony Fauci will be taking place on Friday, October 30 at 2PM EST. We wanted you to be one of the first to know. Please pre-register at this new eventbrite link The...

See errata https://lupus.bmj.com/content/6/1/e000254corr1