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  1. J

    Kynurenine pathway is altered in patients with SLE and associated with severe fatigue, 2018, Akesson et al.

    https://lupus.bmj.com/content/5/1/e000254
  2. J

    Potential Role of Neuroactive Tryptophan Metabolites in Central Fatigue: Establishment of the Fatigue Circuit, 2020, Yamashita

    https://journals.sagepub.com/doi/full/10.1177/1178646920936279
  3. J

    Upadacitinib (rinvoq)--could it reduce fatigue in ME/CFS?

    https://www.medpagetoday.com/rheumatology/arthritis/89124 Upadacitinib, Abatacept Go Head to Head in RA
  4. J

    Aripiprazole - Abilify

    Yes, please see my post on the first page of this thread.
  5. J

    Aripiprazole - Abilify

    https://www.medscape.com/viewarticle/938707 Antipsychotic Added to Antidepressant Linked to Higher Mortality
  6. J

    Aripiprazole - Abilify

    Some meds stopped working after a while, but I didn't find that this ended up making me worse overall. Specifically, valtrex worked brilliantly for a couple of months then it stopped working. Similarly Arcoxia worked at a more mild level for a while, now it doesn't really do much for me...
  7. J

    Aripiprazole - Abilify

    There is no push. People are trying it and getting better. If you don’t want to try it that is your prerogative. Be aware that there are also many health risks associated with untreated MECFS. People die from MECFS.
  8. J

    Aripiprazole - Abilify

    https://www.healthrising.org/blog/2020/10/03/celebrating-whitney-dafoe-awakening-37th-birthday/?fbclid=IwAR2Vn-Q6gQUNgCMLnQIA8qsyT4sLeboxDQR6VCWBFZ1dXvLBRZvyWndMT2Y Celebrating Whitney Dafoe and his “Awakening” on his 37th Birthday ABILIFY!!!
  9. J

    Dr Fauci - Survivor Corps Webinar (no live links)

    **POSTPONED** Conversation with Dr. Fauci to be re-scheduled A Message from Survivor Corps: We regret to inform you at this late time, that due to current events and circumstances beyond our control, Dr. Fauci has had to cancel his participation today. We are in the process of re-scheduling...
  10. J

    Dr Fauci - Survivor Corps Webinar (no live links)

    Please send questions here to indicate that long haul Covid with neuro symptoms is MECFS at 4 or 6 months. Thank you. HQ@survivorcorps.com
  11. J

    Dr Fauci - Survivor Corps Webinar (no live links)

    Survivor Corps COVID Live Webinar Series: 2:00 - 2:30 PM EST Covid Conversation: #LongCovid Founder Diana Berrent will have a one on one discussion with Dr. Anthony Fauci , the nation’s leading expert on COVID-19. Topics: Long Haul Covid, Post-Covid Care and future of treatments for Survivors...
  12. J

    Dr Fauci - Survivor Corps Webinar (no live links)

    My question is why are you calling MECFS “long Covid” ?????
  13. J

    Dr Fauci - Survivor Corps Webinar (no live links)

    https://www.eventbrite.com/e/a-conversation-with-dr-anthony-fauci-md-registration-123280809219
  14. J

    Aripiprazole - Abilify

    https://forums.phoenixrising.me/threads/from-very-severe-to-moderate-in-two-months.81447/ Another positive Abilify account From very severe to moderate in two months
  15. J

    Baricitinib reverses HIV-associated neurocognitive disorders in a SCID mouse model and reservoir seeding in vitro, 2019, Govegnano et al.

    @Jonathan Edwards Any experience with baricitinib? I know you are not a fan of JAK inhibitors for ME/CFS, but might there be some potential for this drug to reduce glial activation? Thank you.
  16. J

    Baricitinib reverses HIV-associated neurocognitive disorders in a SCID mouse model and reservoir seeding in vitro, 2019, Govegnano et al.

    CNS penetration of potential anti-COVID-19 drugs https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7195609/
  17. J

    Baricitinib reverses HIV-associated neurocognitive disorders in a SCID mouse model and reservoir seeding in vitro, 2019, Govegnano et al.

    https://jneuroinflammation.biomedcentral.com/articles/10.1186/s12974-019-1565-6 https://en.wikipedia.org/wiki/Baricitinib
  18. J

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    Merged thread Is Ron Davis’s ME/CFS Collaborative Research Center at Stanford Poised for a Breakthrough? https://www.healthrising.org/blog/2020/09/24/davis-collaborative-chronic-fatigue-research-center-stanford-breakthrough/ New Nanoneedle
  19. J

    Aripiprazole - Abilify

    Hi, No not planning to come of it now, but agree with your point about potential withdrawal issues. HLA risk alleles for ME/CFS discussed in threads below. I got tested to see if I had the risk alleles, and I don’t. Patients with risk alleles, especially the DQB1 allele had very high response...
  20. J

    Plasma proteomic profiling suggests an association between antigen driven clonal B cell expansion and ME/CFS, 2020, Lipkin et al

    Answers to questions. Can you please explain the biological significance of the quadratic transformation of the data? The quadratic transformation of data allows us to understand and interpret the connections between protein analytes and ME/CFS, since these connections are not linear. The...
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