Some meds stopped working after a while, but I didn't find that this ended up making me worse overall. Specifically, valtrex worked brilliantly for a couple of months then it stopped working. Similarly Arcoxia worked at a more mild level for a while, now it doesn't really do much for me...
There is no push. People are trying it and getting better. If you don’t want to try it that is your prerogative. Be aware that there are also many health risks associated with untreated MECFS. People die from MECFS.
https://www.healthrising.org/blog/2020/10/03/celebrating-whitney-dafoe-awakening-37th-birthday/?fbclid=IwAR2Vn-Q6gQUNgCMLnQIA8qsyT4sLeboxDQR6VCWBFZ1dXvLBRZvyWndMT2Y
Celebrating Whitney Dafoe and his “Awakening” on his 37th Birthday
ABILIFY!!!
**POSTPONED** Conversation with Dr. Fauci to be re-scheduled
A Message from Survivor Corps:
We regret to inform you at this late time, that due to current events and circumstances beyond our control, Dr. Fauci has had to cancel his participation today.
We are in the process of re-scheduling...
Survivor Corps COVID Live Webinar Series:
2:00 - 2:30 PM EST
Covid Conversation: #LongCovid
Founder Diana Berrent will have a one on one discussion with Dr. Anthony Fauci , the nation’s leading expert on COVID-19.
Topics: Long Haul Covid, Post-Covid Care and future of treatments for Survivors...
https://forums.phoenixrising.me/threads/from-very-severe-to-moderate-in-two-months.81447/
Another positive Abilify account
From very severe to moderate in two months
@Jonathan Edwards
Any experience with baricitinib? I know you are not a fan of JAK inhibitors for ME/CFS, but might there be some potential for this drug to reduce glial activation?
Thank you.
Merged thread
Is Ron Davis’s ME/CFS Collaborative Research Center at Stanford Poised for a Breakthrough?
https://www.healthrising.org/blog/2020/09/24/davis-collaborative-chronic-fatigue-research-center-stanford-breakthrough/
New Nanoneedle
Hi,
No not planning to come of it now, but agree with your point about potential withdrawal issues.
HLA risk alleles for ME/CFS discussed in threads below. I got tested to see if I had the risk alleles, and I don’t. Patients with risk alleles, especially the DQB1 allele had very high response...
Answers to questions.
Can you please explain the biological significance of the quadratic transformation of the data?
The quadratic transformation of data allows us to understand and interpret the connections between protein analytes and ME/CFS, since these connections are not linear. The...
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