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  1. Forbin

    Butterfly symbol for ME/CFS

    All I can think of is that, at that time, it might have had something to do with the butterfly logo that was (and apparently still is) used by The Whittemore Peterson Institute, which was founded in 2005. In 2009, a study by WPI researchers was published in the journal Science which seemingly...
  2. Forbin

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    I doubt that this is intended to imply a direct link between the psychology of a “Type A” personality and ME/CFS. People with “Type A” personalities are probably more likely to get into car accidents than other people do, but that doesn’t mean that their injuries are psychological in nature. It...
  3. Forbin

    JK Rowling new book — chronic illness references

    This doesn't ring true - for me at least. After coming down with ME, I didn't have any other kind of infection for years. I wasn't all that isolated either. I attempted to return to work several times. Though the jobs by their nature were episodic, the effort involved, given my condition, was...
  4. Forbin

    JK Rowling new book — chronic illness references

    Yes, I suppose that on-line correspondence has been depicted on film since “You’ve Got Mail,” and maybe before that. The Sherlock series did a creative job when it came to depicting “texting.” [ I wonder if, in the film adaptation, the antagonists will only be enemies on-line, while in real...
  5. Forbin

    JK Rowling new book — chronic illness references

    I wonder how you film Twitter posts. "No one will be seated during the spellcheck scene!"
  6. Forbin

    JK Rowling new book — chronic illness references

    Sounds like the social media version of an epistolary novel...
  7. Forbin

    USA: News from the Bateman Horne Center

    I thought it was good, too - although there is an aspect of PEM (at least for me) which I feel like I don't see mentioned much, if at all. When it was at its worst, my experience of PEM was not just one of weakness and exhaustion. There was this pervasive sense that I should not move at all - or...
  8. Forbin

    The chronification of post-COVID condition associated with neurocognitive symptoms, functional impairment and (...), 2022, Nehme et al

    Adding "-fication" to a verb of action ending in "-fy" is a way of turning the verb into a noun, as when "magnify" is turned into "magnification." The problem seems to be that almost no one uses the word "chronify," although it is a word meaning "to become chronic." I suppose a doctor might...
  9. Forbin

    Neurological complications of SARS-CoV-2 - Webinar with Dr. Avindra Nath 7/27/22

    Very interesting webinar on the neurological impact of Long COVID as well as recent findings - such as platelets and adhesion molecules leading to microthrombosis and vessel wall inflammation in the brain. Mentions blood vessel occlusion of the inner ear as a possible explanation for 15% of LC...
  10. Forbin

    Why Exercise Doesn’t Help People With Long COVID - WebMD article by Lou Schuler (8/3/22) [article links to reviews and studies]

    Why Exercise Doesn’t Help People With Long COVID https://www.webmd.com/lung/news/20220803/why-exercise-doesnt-help-people-with-long-covid
  11. Forbin

    Neurasthenia: Unexplained Tiredness: Exploring your mind blog: Spain based.

    With a little more work, they may determine that it's a kind of metaphorical "flu" experienced by "yuppies."
  12. Forbin

    Mind Body Intervention for COVID-19 Long Haul Syndrome

    Oh, sorry! I was looking for the onomatopoeia thread, not the "sentence word" thread.
  13. Forbin

    Persistent capillary rarefication in long COVID syndrome, 2022, Rovas et al

    I wonder if this might be related to the findings in this paper (posted by @LarsSG), in which serum from post-COVID syndrome (PCS) patients prompted the formation of new blood vessels in the microcirculation (angiogenesis) to a much greater degree than serum from patients with post-COVID...
  14. Forbin

    Fear conditioning as a pathogenic mechanism in the postural tachycardia syndrome, Norcliffe-Kaufmann et al, 2022

    One of my favorite "Far Side" cartoons. I will avoid the obvious joke about research going to the dogs. (Ooops!)
  15. Forbin

    Stellate ganglion block reduces symptoms of Long COVID: A case series (2021) Liu et al

    The qualifications to be a nominator for the Nobel Peace Prize include: University professors, professors emeriti and associate professors of history, social sciences, law, philosophy, theology, and religion; university rectors and university directors (or their equivalents); directors of peace...
  16. Forbin

    Co-morbidities - prevalence in people with ME/CFS

    There might be confusion between IBS and IBD. The symptoms overlap to some degree, though IBS is not thought to lead to IBD. I was not diagnosed with IBD until I had a colonoscopy, some four years after onset. Prior to that, my symptoms had been more consistent with IBS (and those symptoms...
  17. Forbin

    Recording of Dr James Baraniuk's May 17, 2022 webinar, "Nociplastic pain in ME/CFS and overlap with migraine and other disorders"

    I had constant, severe dizziness during the first decade of ME. It got worse as my other symptoms got worse. It did not abate when I was sitting or lying down. However, it was not the spinning, “lightheaded” dizziness one might associate with OI. It was principally a sensation of “bobbing”...
  18. Forbin

    Lightning Process - discussion thread

    You have to admire the youtube translation. It had five opportunities to get "long COVID" correct and it blew every one of them. "long covered" "long covert" "long coving" "long coved" "long-covered"
  19. Forbin

    Lightning Process - discussion thread

    Moved posts I don't know if this has been previously noted, but, apparently, the "Lightning Process" is now being advertised for Long Covid too.
  20. Forbin

    Lightning Process study in Norway - Given Ethics Approval February 2022

    So, since this is supposed to be a "scientific study," I would assume that the participants will not be expected to pay for the "treatment" they receive. This really would be absolutely necessary to ensure that patient responses are not unconsciously biased by the fact that they have made an...
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