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I wonder if they were capable of capturing cases of ME/CFS that did not follow mononucleosis, or if they just followed cases with a positive mono test. If they did log non-mono MECFS cases, they might then be able to see if anything distinguishes the mono-induced cases from the non-mono cases...

I'm doing this mostly from memory, but at the bottom of on Page 35 of the hardback edition of "Osler's Web," Los Angeles internist Herbert Tanney is asked if he had ever seen the "constellation of symptoms" representative of CFS prior to 1983. His reply is "Absolutely not." At the bottom of...

From the abstract: There may also have been a history of cases labeled as "sporadic" because those involved were unaware of just how many "sporadic" cases were occurring. There was apparently a significant cluster of cases in Southern California in 1983. It wasn't located in an institution...

I don't know if this relates, but one of the weird symptoms I noticed when I first became ill was that my heart would start pounding within five to ten minutes of eating anything containing a lot of carbohydrates, like bread. It was worse if I ate something noticeably sweet, like ice cream...

Well, that's good news. My cardiologist seems to think that "Long QT syndrome" refers to a QT interval longer than half a second. I'll tell him it has to be longer than a year. ;)

Yeah - as I've mentioned before, I only noticed PEM a couple of years after onset, after my symptoms had improved somewhat. I wouldn't first hear the term "PEM" until decades later. How does the BPS crowd explain PEM following mental exertion? What would "boom and bust" even mean in relation...

Sounds like "behavioral symptoms" may be those that can not easily be objectively quantified (as opposed to, say, temperature), but rather rely on the patient's subjective descriptions and/or the doctor's observations. The patient reports fatigue and/or the doctor notes patient behavior that...

When I read this, I thought, well, the only explanation for retreating into a voluntary catatonic state (if that's even possible) would be madness. Then I remembered that this is basically what happens at the end of Alfred Hitchcock's "Psycho." Norman becomes his mother, but his mother is dead...

I didn't initially see the number of severe cases of ME/CFS (it's is not in the abstract), but it is down further in the paper. From the study: I can't figure out what a "symptom behavioral measure" is. In terms of the behavior of college students, the first thing that comes to mind is...

Not descriptive, but something that occured to me a while ago (inspired by the short ELO song).

On second thought, "The Man Who Came to Dinner" may not be such a great example of secondary gains in that it relies on the "patient" being able to hold others responsible for his medical condition. What the patient "gains" is control over other people due to their fear of legal/financial...

The insanity of the concept of "secondary gains" in ME/CFS exposes a fundamental lack of understanding of seriousness of the disease. No one would consciously or unconsciously exchange the devastating effects of ME/CFS for the imagined "benefits" of the "sick role." Why would so many patients...

The CDC has issued some guidance regarding the possibility of allergic reactions to Coivid-19 vaccines. Apparently, 6 people in the US have had a "severe" allergic reaction to the vaccine (out of 272,000 vaccinated so far), but no deaths...

When I saw this I thought that if autoantibodies are the cause of 'long Covid' then 'long Covid' and ME/CFS couldn't be the same since the Rituximab trial was negative. Then I wondered about chronic ulcerative colitis, both because I was diagnosed with it (though it "vanished" after a month on...

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I assume this is referring to the discovery of increased ASPH in the cells of patients, but can you patent a discovery of this kind? You could probably patent a unique test for ASPH, or a treatment - but can you patent a "finding"?

I never noticed this before but... In the 1961 science-fiction film (not the TV show) "Voyage to the Bottom of the Sea," a psychiatrist aboard the submarine Seaview diagnoses several bedbound members of the crew with stress-induced hyper-neurasthenia. It turns out that the psychiatrist is...

So there's a chance my brain could be harboring tomato spotted wilt virus? :cautious: Just as I've long suspected. :)

I must admit that I am prejudiced by my own experience of a really severe URI followed by ME onset just at the point at which I thought I'd recovered. I see a lot stories begin with "the worst flu I ever had," but what percentage of the total cases that is, I don't know.

Another version of this might be that of the "driven" person, or just a person who happens to have a demanding job, who gets insufficient sleep, eats on the run, has no time to relax - who then gets hit by some sort of infection. The resulting illness may be more severe do to his depleted...