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  1. Forbin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    True. I suppose, though, that you might say that "CFS" is about 40 years old, because that nomenclature evolved out of U.S. outbreaks from the very early 80's that were originally thought to be EBV. The original article published in 1984, "Chronic Mononucleosis Syndrome" (in the Southern...
  2. Forbin

    Video: ME/CFS Alert, Episode 119: Interview with Tom Kindlon

    So far as I know, King became interested in ME because his friend and colleague, retired Wall Street analyst Deborah Waroff, has been afflicted by it since 1989. Together they created a YouTube series called "ME/CFS ALERT" which is devoted to investigating the disease from many different angles.
  3. Forbin

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    I don't mean to sound ghoulish, and maybe this has been discussed elsewhere, but I wonder if they are considering recruiting long-covid patients for the NIH ME/CFS study. If long-covid patients meet the ME/CFS criteria, I'm not sure why knowing their infectious trigger would disqualify them...
  4. Forbin

    Nobel Prize of Medicine 2020

    It's interesting to note that Harvey Alter won the Nobel Prize for work conducted in (and prior to) 1988 and which was published in 1989. He was in his mid-50's then and is 85 now. There is usually a very long delay between doing the work that wins the Nobel Prize and actually winning it. My...
  5. Forbin

    Video: ME/CFS Alert, Episode 119: Interview with Tom Kindlon

    Around 6:00, Llewellyn King says, "Trinity is the great University of Ireland..." and the computer-generated subtitles say "Trinity is the great University of Iowa..." :) [To be fair, the audio is a bit garbled at that point.]
  6. Forbin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I have too, but the author talks about developing the "worst breathing symptoms" she has ever experienced, as well as keeping a bag packed in case she had to rush to the hospital. Her oxygen levels were "borderline," but her x-ray didn't show pneumonia.
  7. Forbin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    An article Forbes Magazine - Sep 30, 2020: Six-Months As A Covid Long-Hauler: Unending Symptoms, Many Unknowns https://www.forbes.com/sites/lealane/2020/09/30/six-months-as-a-covid-long-hauler-unending-symptoms-many-unknowns/#77443d2b3dc8 Sounds quite similar to many M.E. symptoms - though...
  8. Forbin

    'Lab' testing - could dogs smell ME/CFS?

    I hope Amazon doesn't find out about this.
  9. Forbin

    'Lab' testing - could dogs smell ME/CFS?

    Re: 'Lab' Testing I once saw video of a doctor advertising his practice. He concluded by saying something like "And for your convenience, we have our own on-site lab." Cut to shot of happy Labrador Retriever sitting in the waiting room.
  10. Forbin

    Quantitative Electroencephalographic Assessment of ME/CFS. Support for a novel diagnostic protocol, 2019, Pellegrini. Student thesis.

    In 2011, Anthony Komaroff et. al published a paper in which they used "eeg spectral coherence" data to accurately distinguish between ME/CFS patients, heathy controls and patients suffering from clinical depression [aka "major depression"]. I'm not sure if this would be called "qeeg" today.
  11. Forbin

    Sore throats swollen glands

    I had this for years after onset and assumed it was probably connected to the sore throat feeling, although I could have them independent of each other. The kind of odd thing was that when I told others that my voice was hoarse, even members of my immediate family said it sounded normal to...
  12. Forbin

    UK writer with ME Susanna Clarke - press articles

    To be honest, the reason I thought of "paralysis by analysis" is because the author is trying to write a follow-up to a successful first novel. There's a lot of pressure when you're trying to repeat a first success and doing so has frustrated countless writers. Among other things, you suddenly...
  13. Forbin

    Characterization of Post–exertional Malaise in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (2020) Stussman, Nath et al.

    I've only skimmed over this, but I'm a little surprised that among the physical activities listed that can lead to PEM there is no mention (on the chart at least) of simply "standing." Maybe standing isn't considered a physical activity (though I think it is). Prolonged standing was a major...
  14. Forbin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Yes - I'm just comparing infectious onset (like in the Dubbo study) where severity seemed to be a factor, with infectious Covid onset, where severity doesn't seem to be a factor. I guess the point I was trying to make is that if infectious severity is not a factor in longConvid, then the virus...
  15. Forbin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I noticed in the video that @Arnie Pye posted (in message 1701) that the UK official was pretty adamant that developing longCovid was not related to the severity of the illness. This runs contrary to the 2006 Dubbo study, where post-infectious development of ME symptoms was linked to...
  16. Forbin

    The biology of coronavirus COVID-19 - including research and treatments

    Good questions. I think my biggest question is how long it would take for it to get approval for use in humans. I believe it's only been used in mice and hamsters so far. If it takes as long as a vaccine trial, the pandemic might be largely over by the time it gets approved. It might be that...
  17. Forbin

    The biology of coronavirus COVID-19 - including research and treatments

    9/14/2020 Tiny Antibody Component Highly Effective Against COVID-19 https://www.upmc.com/media/news/091420-mellors-dimitrov-covid-ab8 University of Pittsburgh Schools of Health Sciences [ETA: Same research @anciendaze posted about above.]
  18. Forbin

    UK writer with ME Susanna Clarke - press articles

    What the writer describes sounds somewhat like "paralysis by analysis," which is an inability to make decisions because there are so many options that it becomes impossible to weigh all the possible arguments for and against each one. Ultimately, I think the solution is to select a reasonable...
  19. Forbin

    Using Plasma Autoantibodies of Central Nervous System Proteins to Distinguish Veterans with GWI from ... Controls. Abou-Donia, Klimas 2020 RETRACTED

    Generally speaking, GWI sounds like it's mostly triggered by exposure to chemicals, whereas ME/CFS seems mostly triggered by infections, though it seems like there are some cases where the opposite has been true. This makes me think that the thing that they may have in common is that something...
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