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  1. Forbin

    Article: Spain, "Lleida scientists discover a marker that allows diagnosing chronic fatigue [syndrome]"

    Unless there's another "hippotherapy," it's a form of Equine-assisted therapy. ["Hippo" is Greek for horse, as in "hippodrome." Hippopotamus actually means "river horse.") From the article, it sounds like horse-riding is used as a form of physical therapy. I would assume that for ME patients...
  2. Forbin

    Twins get some 'mystifying' results when they put 5 DNA ancestry kits to the test

    Doesn't seem like you'd really need twins to conduct this test yourself - just send in two samples from the same person under different names.
  3. Forbin

    Haemochromatosis: 'Most common' genetic disorder test call

    Oddly enough, once it became apparent that I was not simply recovering from the flu, the first thing my GP suspected was haemochromatosis. This was in the early 80's prior to the designation of "CFS," and if the neurologist I saw a few weeks later had ever heard of "ME" he certainly didn't tell...
  4. Forbin

    What could be done about the Science Media Centre (SMC) in the UK

    When seeking to challenge those (like the SMC) who would appoint themselves as the arbiters and guardians of "truth," I think a good meme might come in handy. [ "Quis custodiet ipsos custodes?" / lit. "Who will guard the guards themselves?" / "Who'll watch the watchmen?"] Or am I being too...
  5. Forbin

    Director of Danish Health Authority Letter to the Editor JoPR

    Sorry if this is a bit flippant, but when I come across doctors like this who are so certain of their psychological explanations, I'm often reminded of this scene from the 1956 version of "Invasion of the Body Snatchers." In the video above, small town physician, Dr. Miles Bennell (Kevin...
  6. Forbin

    Since ME breathing rate significantly slower than normal/used to. Further evidence of metabolic dysfunction?

    I once wondered if I might have sleep apnea, so I hung a microphone over my bed and recorded the entire night. What I discovered was not obstructive sleep apnea, but what my doctor called "Cheyne-Stokes respiration." This is apparently a kind of "central sleep apnea," meaning that it is...
  7. Forbin

    Onset patterns and course of myalgic encephalomyelitis/ chronic fatigue syndrome, 2019, Chu et al

    Since this adds up to 123%, it's pretty clear that some patients, perhaps many, had multiple "peri-onset events." I'm not really concerned that 39% reported peri-onset "stressful incidents." Chronic stress might well alter the way the body responds to an infection and/or exposure to an...
  8. Forbin

    Since ME breathing rate significantly slower than normal/used to. Further evidence of metabolic dysfunction?

    I remember noticing that both my breathing rate and my heart rate were lower immediately after onset. As @JaimeS said, there was a sense of "forgetting to breathe." I suspect my doctor didn't take my observation of low breathing rate too seriously, since it's something you have more...
  9. Forbin

    Chronic fatigue syndrome in the emergency department (2019) Timbol and Baraniuk

    Feel free to start a thread on it, @DokaGirl!
  10. Forbin

    Chronic fatigue syndrome in the emergency department (2019) Timbol and Baraniuk

    Ironically, rather than being the attention seeking hypochondriacs they are sometime caricatured as, a real issue for ME/CFS patients is the degree to which their experience with the medical profession eventually makes them averse to contact with it. (It certainly has in my case.) It's all but...
  11. Forbin

    Charles Darwin’s ailments are ‘typical of Lyme disease’ in UK - The Guardian

    I'm not sure if you're looking for Shorter's paper "Chronic fatigue in historical perspective" from the May 1992 CIBA conference, but it can be seen here starting on page 6. The book was originally published in 1993, but this citation seems to say it was first published online in 2007. There's...
  12. Forbin

    Charles Darwin’s ailments are ‘typical of Lyme disease’ in UK - The Guardian

    The article I linked to above touches on the issue of class in the diagnosis of neurasthenia...
  13. Forbin

    Estimating Prevalence, Demographics and Costs of ME/CFS Using Large Scale Medical Claims Data and Machine Learning, 2018, Valdez, Proskauer et al

    I don't think it accounts for everything, but... Leonard Jason's figure of 422/100,000 (.422%) is only intended as an estimate of the adult US population with CFS. If this current study is not confined to adults, you'd expect it to come up with a somewhat larger number - though a doubling of...
  14. Forbin

    Charles Darwin’s ailments are ‘typical of Lyme disease’ in UK - The Guardian

    I would have thought so, just because the word conjures up images of 19th century tintypes of women splayed on fainting couches - but it turns out that it was mainly men who were diagnosed with neurasthenia, which was thought be a consequence of the fast-paced, energy-sapping qualities of...
  15. Forbin

    Charles Darwin’s ailments are ‘typical of Lyme disease’ in UK - The Guardian

    Strange. It's just seems to be the website of a small county newspaper in Montana. It's a 2011 article by a local doctor about how peptic ulcers are now treatable with antibiotics.
  16. Forbin

    Charles Darwin’s ailments are ‘typical of Lyme disease’ in UK - The Guardian

    According to this article: Of course, there was a time when peptic ulcers were considered a self-reinforcing product of "emotional stress." That time has passed. Has anyone alerted Sir Simon, I wonder?
  17. Forbin

    Pulsatile Tinnitus

    I've definitely experienced this at times. For me, it's more or less of a "whooshing" sound that might suggest turbulent blood flow. Some believe that it is caused by high blood pressure in the carotid arteries, perhaps due to plaque buildup there - but I've heard this kind of thing...
  18. Forbin

    United Kingdom: Science Media Centre (including Fiona Fox)

    In Oscar Wilde's "The Picture of Dorian Gray," Lord Wotton says that he likes to choose his enemies for their good intellects. Unfortunately, even in this regard, it looks like ME patients are once again screwed.
  19. Forbin

    Signs of Hypoxia - anyone had this?

    I wonder if you would see signs of hypoxia, like blue lips and fingernail beds, if the blood simply couldn't be delivered in an adequate amount to the smallest vessels - perhaps as a consequence of reduced blood cell deformability, or maybe as an effect of some impairment of nitric oxide's...
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