Search results

  1. Forbin

    UK CMRC Conference 2018 - David Tuller

    My impression is that, when he said he felt like he'd been looking over his shoulder for the last five years, it was a comment about how the 2013 PACE trial results and their controversy had sucked all the oxygen out of the room during that period, forcing them to look backward and making it...
  2. Forbin

    Suggesting an additional advocacy direction

    It is possible to do a documentary on the potential of a scientific breakthrough. You give the background/history of the subject in question. You interview scientists/researchers on the approaches they are developing and why they think they will work. You highlight the controversy and the...
  3. Forbin

    CDC Roundtable, Multisite Study and Dr. Klimas’ Attempt to Permanently “Reset” Chronic Fatigue Syndrome (ME/CFS)

    I don't like to speak ill of the dead, but can you imagine this happening under the tenure of the CDC's Dr. William Reeves (who unexpectedly died in the summer of 2012) ? To quote German physicist Max Planck, "A new scientific truth does not triumph by convincing its opponents and making them...
  4. Forbin

    Petition: Per Fink Should Not Spread Lies about ME at Columbia University!

    It's interesting that about half of the faculty connected to this conference (several from Germany) seem to specialize in "Psychosomatic Medicine." Apparently the term "psychosomatic" is so loaded that the American Board of Psychiatry and Neurology (ABPN) no longer offers board certification...
  5. Forbin

    Cases of Acute Flaccid Myelitis in Minnesota and other states

    There was an article about this today in USA Today (10/08/18). In the last four years, the CDC has received 362 reports of acute flaccid myelitis (AFM) cases. https://www.usatoday.com/story/news/nation-now/2018/10/08/rare-polio-like-disorder-sickens-6-children-minnesota/1563295002/
  6. Forbin

    Petition: Per Fink Should Not Spread Lies about ME at Columbia University!

    I think I dreamed I was at this conference...
  7. Forbin

    Cases of Acute Flaccid Myelitis in Minnesota and other states

    There were 9 suspected cases in children (1 to 18) in Denver, Colorado in August/September 2014, according the Wikipedia article on acute flaccid myelitis. By October 2014, 100+ cases had been reported across the US.
  8. Forbin

    Is the 'fatigue'/'tiredness' experienced by pwME a form of Dynapenia?

    A couple of weeks ago, I was trying to come up with some alternative name for ME/CFS that did not involve "fatigue" or "exhaustion." The problem with those words is that they are predicated on "exertion." Although people with ME worsen with exertion, my experience with ME is one of being in a...
  9. Forbin

    CFS Research Center at Stanford Second Annual Community Symposium Sept. 29-2018

    I hope the symposium winds up on Youtube. The recorded Livestream still takes up too much bandwidth - probably due to compression, or lack thereof. I can see 720p videos on youtube, but this Livestream version plays for 3 seconds, waits for 5 seconds, plays 3 seconds, etc...
  10. Forbin

    Proprioception Dexterity Balance

    I don't know how common this is, but, when my "dizziness" was at its worst, my vision would sometimes appear to be tilted maybe 5~10 degrees clockwise. It was most noticeable when walking down a hallway. It may have had something to do with my eyes not converging correctly, but I'm not sure...
  11. Forbin

    Stanford Community Symposium 2018: Phair, Metabolic traps, Tryptophan trap

    Back in the mid 1980's, on a doctor's recommendation, I took L-tryptophan for sleep once - and only once. That night, I had the weirdest dream experience of my life. It was like I was rapidly shifting between random images - fragments of dreams which only lasted a second. The worst aspect was...
  12. Forbin

    LP coach on research, Lightning Process and ME (Norway)

    This is like saying that there's little documentation that the blind are visually impaired. After all, studies show that their TV's are on more often than those of sighted people!
  13. Forbin

    Ronald W. Davis, PhD's presentation at the IIMEC13

    Speculation ahead: Fluge and Mella thought that it was the concentration of some unknown factor in the blood ("X") that produced symptoms. Below a certain concentration of "X" in the blood, symptoms abated. They reasoned that the patients who responded most quickly to Rituximab were those whose...
  14. Forbin

    Jarred Younger confirms neuroinflammation in brains of ME patients

    Even if the test turns out just to be for non-specific brain inflammation, it would show that ME patients have such inflammation, which would still be a big deal in world where people claim that ME patients can exercise their way to health.
  15. Forbin

    Jarred Younger confirms neuroinflammation in brains of ME patients

    It was a small study, "15 ME/CFS women and 15 age and sex matched healthy controls," but... If this hold's up, it will be a biomarker. That alone would probably qualify it as the most important discovery in ME/CFS... ever. And that could change everything.
  16. Forbin

    What I learned about weight loss from spending a day inside a metabolic chamber

    Apparently, a healthy adult creates 50 to 70 billion cells per day just to replace those lost due to normal attrition. If you've ever seen those Inner Life of the Cell videos on youtube, you get some idea of how much activity is going on in a single cell (albeit requiring only minute amounts of...
  17. Forbin

    Lightning Process - discussion thread

    It must be an effective video. I mean, all through it, the one thought that kept going through my mind was "I feel physically ill."
  18. Forbin

    Ronald W. Davis, PhD's presentation at the IIMEC13

    It might not be easy to get the samples, but I wonder how the blood of sleeping sickness patients would perform when subjected to the nano-needle - or, for that matter, checked for t-cell clonal expansion.
  19. Forbin

    Ronald W. Davis, PhD's presentation at the IIMEC13

    Well, it can't be exactly African Sleeping Sickness, since, untreated, that will kill you in a few months to a few years, depending on which type you get. The East African version kills you most quickly, which is interesting, as it is the type in which it is more difficult to detect the...
Back
Top Bottom