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  1. Forbin

    Nanoneedle technology licensed for early disease detection, biomarker discovery, and more

    It sounds somewhat like "VirScan," a nanotechnology that also came out of Harvard around 2015 that was said to be able to reveal your entire history of viral infections from a single drop of blood. This newer technology seems like it might be even more sensitive. This would be different from...
  2. Forbin

    Over which physiological abnormalities in ME/CFS is there a scientific consensus about?

    Though not a literal replication, Hornig followed up the blood cytokine study with a similar study examining the cerebrospinal fluid of patients. This group of patients had been ill an average of about 8 years, so it likely was not a large group for the study of short term patients. However...
  3. Forbin

    A person-centred test of multidimensional perfectionism and health in people with chronic fatigue syndrome versus healthy controls, 2021, Sirois et al

    I always wanted to be a perfectionist, but I was never satisfied no matter how close I came to that goal.
  4. Forbin

    A person-centred test of multidimensional perfectionism and health in people with chronic fatigue syndrome versus healthy controls, 2021, Sirois et al

    I believe that multidimensional perfectionism is more perfect, or, to use the correct scientific term, "perfecter" than unidimensional perfectionism. :rolleyes: I further believe that this study represents that level of "perfection" that Wolfgang Pauli was contemplating when he famously said...
  5. Forbin

    Warning Signals of Post-Exertional Malaise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Retrospective Analysis of 197 Patients, 2021, Ghali

    Personally, the only "warning" I've had that some experience might result in PEM the next day is the knowledge that some similar level of exertion has caused PEM in the past. I've never noticed any warning sign indicating that I might have crossed (or might be about to cross) some threshold...
  6. Forbin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Hey, cheese it you guys! The jig is up! ;)
  7. Forbin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I'm not sure where to ask this question, but this seems like a good place. I almost certain that I've seen a quote somewhere about a group of ME/CFS researchers getting together (pre-covid) and asking the question of what it would take to get greater interest, recognition, funding, etc... for...
  8. Forbin

    Designing a questionnaire on ME/CFS onset

    You might want to consider either changing "virus" to the more general term "pathogen" or list the general pathogen types, i.e.: Bacteria, Viruses, Fungi, Parasites, etc...* You already have "mould" on your list, which is a fungus, but you might want to keep it separate from the pathogens since...
  9. Forbin

    ME/CFS Alert Episode 126: Interview with dr. Walter Koroshetz, Director of the National Institute of Neurological Disorders at NIH

    He mentions that some, but not all of the long covid patients report post-exertional malaise (PEM). This doesn't really surprise me. There might be several reasons. I didn't notice PEM until a few years after onset. I'm sure one reason I didn't notice it was that it was "delayed" PEM. Feeling...
  10. Forbin

    "Exercise in a pill" - potential for ME/CFS?

    Since M.E. patients would likely have some muscle atrophy in the first place, maybe the pill would would just produce something more like normal muscle mass in those who took it (instead of huge muscles). I'm not really sure if extra muscle mass confers additional strength without exercise (as...
  11. Forbin

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    The 50 "controls" are patients who had COVID and got better, so they're trying to figure out why some people recover and others don't. This might be a faster, more productive study than one done on ME/CFS patients because, in long covid, there's presumably only a single pathogen involved, as...
  12. Forbin

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    I think the explanation was given by Dr. Nath in the March 30th 2021 NIH ME/CFS Advocacy Call. Sounds like COVID-19 took precedence, but it gave them an opportunity to analyze the ME/CFS data they had sooner than they otherwise would have. [ETA: A "BSL3 lab" is a "Biosafety Level 3...
  13. Forbin

    Encephalitis lethargica - The forgotten epidemic

    The Wikipedia article on EL also implicates an enterovirus as a possible cause of the disease: 2012 article "Evidence for an enterovirus as the cause of encephalitis lethargica" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3448500/
  14. Forbin

    Impaired Endothelial Function in Patients With Postural Tachycardia Syndrome, 2021, Abby H Chopoorian

    I wonder if the lesser amount of dilation in patients correlated to higher blood pressure on standing. You'd think more blood trying to get through a less dilated blood vessel might do that. It's also not clear from the abstract if there were differences in vessel diameters in patients and...
  15. Forbin

    The Royal Swedish Academy of Sciences' report on long covid

    An argument that has not been proven is an "allegation." If an author feels compelled to include unproven arguments, they really should say "It has been alleged" to make that clear.
  16. Forbin

    USA: PBS NewsHour segment April 2021 features disability advocate Rivka Solomon discussing ME/cfs and long COVID

    Direct link to story on PBS NewsHour website: https://www.pbs.org/newshour/show/a-brief-but-spectacular-take-on-advocating-for-people-with-chronic-illnesses ETA: Seems like it asks you to confirm what your local PBS station is, so it might not work outside of the U.S.
  17. Forbin

    Covid-19 vaccination experiences

    I had the SECOND shot of the Pfizer vaccine yesterday. The effects of the FIRST shot were unremarkable. Just the usual thing of pain developing deep inside the shoulder, although it was possibly more intense than usual - like the after effects of someone punching you in the shoulder hard with...
  18. Forbin

    .coda - "A controversial program for chronic fatigue syndrome faces scrutiny" by David Tuller

    Boy, you'd think that, if "the vast majority of participants" achieve good and lasting change, then the program could easily afford to offer a money back guarantee. I mean, think of how many more customers they'd get if they initiated such an incentive. Factoring in economies of scale, I can't...
  19. Forbin

    The use of the labels ME, CFS, ME/CFS

    You can indicate that a term is alleged or "so-called" by placing it in quotation marks - so maybe ME/"CFS" (or better: ME/"CFS") as an intermediary step to hasten its demise?
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