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Most of these would get FND on their chart.

So many powerful posts on this thread. I can definitely relate to this feeling of catastrophic loss or absence of personality. Most days I feel utterly disconnected from the rest of the world, as if I'm not a real person. I absolutely dread socialising or even workplace conversations. Other...

There’s an urgent need to stop publishing crappy reviews calling for more crappy studies. I had high hopes for this before I read the conclusion. I thought someone was finally taking on the cult of toxic positivity.

This sounds worth following up on. I’m surprised that this lab is doing N=15 studies considering how well funded they are.

The point is that this is mainstream technology accepted in mainstream medicine, not some highly speculative fringe science paper. If what he says is true, and remember he first published these results many years ago when we were still on the previous forum (the initial paper on unexplained...

You’re right. There’s nothing that happens at these conferences anyway, other than academics getting several free (by that I mean paid by the taxpayer) vacations per year in attractive locations conveniently arranged near the weekend. This conference travel is in addition to the obscene amount...

I’ve now watched Systrom’s presentation in its entirety. I find it hard to reconcile some things. He strikes me as a serious person who doesn’t give off that used car salesman vibe that 99% of “CFS specialists” do. Yet, his statements don’t map onto the data shown on slides. He says preload...

There are cases of people never seem to overcome the grief and get on with their lives. Even years later all they seem to talk about is their dead relative. Usually though a mood disorder or substance misuse diagnosis will cover this pathological reaction. So I’m not quite sure why this new...

This seems quite similar to the inpatient “rehab” programmes you see these days for FND. Walking a few steps further between bars is interpreted as treatment success. In actuality, a reduction in overall physical activity took place if you consider that you don’t have to do any chores or food...

Good old activity substitution.

Coyne’s article rings true. The peer review system is crazy and must go. I’ve experienced many weird, incorrect reviews over the years. Not ad hominem abusive like what he describes at the BMJ (which is a huge cesspit) but just people not reading your article or saying wrong things and the...

That’s the thing. The psych framing presupposes that the patient hasn’t tried the blindingly obvious solution first which is to exercise your way out of it. They are saying we are that stupid and insane that we just took to bed and never tried to take any action to get out of it.

The whole negotiation thing implies that the patient is refusing to do more activity for no reason and that the job of the therapist is to coax them into doing the right thing by negotiating little increments each week. It’s very insulting and wrong.

Another one bites the dust.

Not surprised to see this link. IC is one of the symptoms I’ve struggled with as part of my ME/CFS.

You’re doing too little AND too much.

Another scam.

In practice FND is anything they can’t diagnose as real D.

The losses far exceed the gains as far as I can see. Losses include moronic pimply junior doctors feeling entitled to speculate about your mental state and motivations.

FND is just the name neurologists give to ME/CFS (and other unexplained symptoms). So it’s not surprising at all that FND people are involved in this.