Search results

If deconditioning doesn’t cause ME/CFS, what possible reason is there to push, I’m sorry, encourage, the patient to increase their activity level? Who says it’s possible to increase activity level? As others have said, this is an obvious rhetorical shift to save their jobs. That’s the problem...

Sad state of affairs. No ideas, no clues - nothing.

When the very first posts started appearing on forums about CCI, my gut reaction was that this would end up being a bigger public relations disaster for us than XMRV. Everything that's happened since has only reaffirmed my view on this. Ironically, this sort of "advocacy" will ultimately...

The purpose of this sort of work seems to be to subsume ME/CFS within their model of FND.

Wow, it didn't take long for these grifters to expand their grift operation to the new goldmine of rapidly growing numbers of post-covid ME/CFS patients. Utterly despicable.

Surprisingly ok letter considering the BPS positions he has previously taken. Apart from the false claim that 1% of the population has ME/CFS, it seems reasonable.

I think another part of it is that our diagnosis is highly stigmatised and therefore very low status. People, consciously or not, don't want to be associated with that in any way. In addition, doctors are taught during training that if you ignore "functional" symptoms, they improve. Any...

It's quite an insidious trick that guys like this are up to and I'm sad to say it's working to hoodwink a lot of people. They present themselves as brave enlightened warriors against the nasty old medical establishment that told people with unexplained symptoms that their problems were 'all in...

You're right Mij. When I was in the process of becoming disabled & diagnosed, all the doctors, nurses, psychologists etc. that I had worked with (and in some cases also been friends with) for years instantly threw me under the bus. It was like being accused of witchcraft in medieval Europe...

It's like a deja vu seeing a whole new cohort of perplexed, frightened people who until recently thought they had rights and that the medical system was there to help people running into the same wall of lies and abuse we've been dealing with for decades.

Lol

Years ago this guy published a study testing his persistent arousal hypothesis of CF using clonidine. If I recall correctly, in that study activity levels also declined in the intervention group. I don't recall if it was statistically significant but the graph was rather startling. Undeterred by...

Fauci and the other NIH swine were dismissing ME/CFS for decades before this grifter arrived on the scene.

The aim of these newfangled names for MUS is to get the patient to accept the diagnosis.

So basically cats get better healthcare than humans with unexplained neurological symptoms.

Good stuff. Quite a few metabolic disorders can present as psychiatric, at least initially.

The scatterplot looks like there's nothing there to hang your hat on.

"rehab" :arghh:

Yup.

Speaking of warts & quackery, about 20 years ago I got one on my thumb. It was there for about a year and drove me insane with the constant urge to pick at it. A friend saw it one day and told me her elderly mother had a plant in her garden that gets rid of warts. I was extremely skeptical but...