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I assumed I had this so I got a 5-hour oral glucose tolerance test which turned out to be normal. I think the symptoms some people attribute to hypoglycaemia are actually due to abnormal autonomic response to feeding. Eating triggers POTS-like symptoms for me.

I think it's possible that this is a component of the problem, though not the whole problem. I don't think gastroparesis can be dismissed out of hand because severe ME/CFS patients are usually too sick to undergo invasive investigations so research is done on the less severe. I also think...

I recently became aware of a case of a woman in her early 30s with preexisting POTS, anxiety and depression. Long story short, symptoms that were initially dismissed as anxiety etc. turned out to be a NSTEMI.

Multidisciplinary approach is a codeword for getting psych involved.

He was talking about clinical practice not trials. You can find a trial out there for any quackery for cancer including Chinese herbs.

Complete bald faced lie. No one has ever used CBT to relieve symptoms of cancer or RA. CBT is used to treat comorbid anxiety and depression in those populations.

Grin over on twitter alleges that outcomes are getting worse because of the belief that ME/CFS is a biological disease rather than a functional disorder. Complete inversion of reality. NHS staff almost all adhere to the psychosomatic ideology and we can see that the geniuses involved in this...

Yep. Nothing will change unless they are exposed to personal legal liability. As long as they can continue to blame complex systems and other nebulous issues like lack of guidelines or training, they will continue to behave with impunity towards us.

Yep. And when it comes to medical advice, it doesn't even have to come under the official banner of GET to maim you. I started to have (mild in hindsight) symptoms of abnormal fatigue and prolonged recovery from exertion back in 1993-1994. Back in those days in the country I was living in no one...

Having been in a situation where I was down to just a few hundred calories a day of liquid diet due to severe ME/CFS in the past, I can confirm that the gag/cough reflex starts to deteriorate as you start to move toward the very severe end of the spectrum. I was often finding myself choking on...

Goal setting, graded eating therapy, all the usual nonsense. These people will just never get it.

I think these tidbits tell us all we need to know about the true opinions held by this witness.

I personally never click on these Reddit threads anymore, they just make me despair.

Every Reddit thread we looked at on this forum going back years has been like this. This is because the view that ME/CFS is a functional disorder is the prevailing paradigm they are taught. Most doctors adhere to this view, it’s just that most of them are too smart to post their views on social...

Because when they get better they might realise they have memory loss and sue the consultant saying they were too sick to understand what they were agreeing to.

Unfortunately in the UK 90% of patients are still getting bilateral ECT for reasons that are unclear to me. This is not the case in many other countries. I'm guessing it's because no ECT research is being done in the UK and none of the work done abroad has penetrated NHS practice because NHS...

Capacity assessment for ECT has nothing to do with whether you want or don't want the treatment. Some patients are quite placid and agreeable to go along with whatever is being suggested but are deemed not to have capacity because they can't understand the complex information regarding risks and...

Huh? There were several prominent cases with a fatal outcome from 20+ years ago. None of this is new. The only thing that’s new is that families are utilising social media to push back against BPS witchcraft in NHS hospitals instead of suffering in silence.

That comment about patient selection really annoyed me. The whole point is that the treatments worked for nobody (recovery rate approx 5%).

This case had a fatal outcome. If people are too sick to attend in person they could have been asked to give evidence from home via Teams.