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  1. Wyva

    Increased hunger during PEM crash

    I can't really eat a lot in a bad crash but I simultaneously crave carbs like crazy, especially sweet things, pastry etc. It feels like my body is telling me to get more energy right now.
  2. Wyva

    NHS: GP surgeries; privatisation; physician associates

    I think it is probably a US vs Europe thing. Here people go to medical school directly after secondary school too but is 6 years (plus specializing afterwards).
  3. Wyva

    Review The effect of massage on patients with chronic fatigue syndrome: A systematic review and meta-analysis 2024 Li et al

    Maybe about a year ago someone in my group, a recovered covid long hauler asked me about this. She was very interested in Chinese medicine and recently started learning massage as a hobbi (maybe she even said she had found massage helpful, I don't remember now). She asked me if she could offer...
  4. Wyva

    Impact of COVID-19 on myalgic encephalomyelitis/chronic fatigue syndrome-like illness prevalence: A cross-sectional survey, 2024, Wood, Unger+

    Press release: COVID may trigger chronic fatigue syndrome “Our results offer a snapshot in time, and find that in 2022, 14% of people who had ME/CFS-like illness developed it after COVID,” said senior author Jacek Skarbinski, MD, a research scientist with the Kaiser Permanente Division of...
  5. Wyva

    United Kingdom: News from #There for ME

    Posts moved from United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media ______________ The Times: Patients with severe ME at risk of starvation, doctors say Nearly 200 health professionals have written to the health secretary saying that patients with the...
  6. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    Ádám Dénes neurobiologist researcher was asked to comment on a long covid study on the channel RTL (link to video). I've mentioned Dénes several times here, he is one of the (neuroimmune) long covid researchers here but he also seems to be as unaware (or ignorant) of ME/CFS and post-viral...
  7. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    An article in the women's magazine WMN with pediatricians (resident doctors) Réka Garai and Vivien Herczeg. I occasionally post here conference abstracts from Hungarian pediatricians on long covid, these conference abstracts are from these doctors (my very last post just above this one for...
  8. Wyva

    2024 Stanford MECFS meeting

    And it is "amazing".
  9. Wyva

    Resting-state neural dynamics changes in older adults with post-COVID syndrome and the modulatory effect of cognitive training and sex, 2024, Nagy et

    The participants of the study were older but they were not hospitalized during acute covid. They had a mild or moderate infection.
  10. Wyva

    Resting-state neural dynamics changes in older adults with post-COVID syndrome and the modulatory effect of cognitive training and sex, 2024, Nagy et

    Boglárka Nagy Andrea B. Protzner, Balázs Czigler & Zsófia Anna Gaál Abstract Post-COVID syndrome manifests with numerous neurological and cognitive symptoms, the precise origins of which are still not fully understood. As females and older adults are more susceptible to developing this...
  11. Wyva

    News from Southeastern Europe

    Saw this on Facebook from the Croatian ME/CFS/Fibromyalgia/Dysautonomia patient org. Facebook translation (I guess ME/SKU is ME/CFS?): "Dear all, We invite you to the meeting and congress of Slovenian, Serbian and Croatian societies for ME/SKU, which will be held on the 14th. September in...
  12. Wyva

    Unique genetic and risk-factor profiles in clusters of major depressive disorder-related multimorbidity trajectories, 2024, Gezsi et al

    I'm mostly sharing this because there have been a couple of articles about this study here in Hungary in the media in the last couple of days. And there was one article on a health website that said that the health conditions with the strongest association with depression are CFS, fibro, IBS...
  13. Wyva

    Unique genetic and risk-factor profiles in clusters of major depressive disorder-related multimorbidity trajectories, 2024, Gezsi et al

    Abstract The heterogeneity and complexity of symptom presentation, comorbidities and genetic factors pose challenges to the identification of biological mechanisms underlying complex diseases. Current approaches used to identify biological subtypes of major depressive disorder (MDD) mainly...
  14. Wyva

    Long COVID diagnostic with differentiation from chronic lyme disease using machine learning and cytokine hubs, 2024, Patterson et al

    Bruce K. Patterson, Jose Guevara-Coto, Javier Mora, Edgar B. Francisco, Ram Yogendra, Rodrigo A. Mora-Rodríguez, Christopher Beaty, Gwyneth Lemaster, Gary Kaplan DO, Amiram Katz & Joseph A. Bellanti Abstract The absence of a long COVID (LC) or post-acute sequelae of COVID-19 (PASC)...
  15. Wyva

    Improving Quality in Adult Long Covid Services: Findings from the LOCOMOTION Quality Improvement Collaborative, 2024, Darbyshire, Greenhalgh+

    It was an unreasonable and uncalled for reaction to a quite polite request asking for help. Not surprising though, considering her history of mass blocking (often completely unaware) people on Twitter.
  16. Wyva

    Miguel Bautista’s CFS Recovery ‘recovery jumpstart’

    Bautista apparently sent out a press release about his groundbreaking treatment. CFS Recovery Leads the Way with Brain Retraining for Chronic Post-Viral Syndromes CFS Recovery has introduced a groundbreaking nervous system recalibration program designed to address persistent post-viral...
  17. Wyva

    Management of patients with neurological diseases considering post-pandemic coronavirus disease 2019 (COVID-19) related risks and dangers (...), 2024,

    Updated consensus statement from the European Academy of Neurology. No mention of ME/CFS or PEM. These are their statements on long covid, sorry about the formatting: After recovery from COVID-19, some people may develop fatigue, muscle aches, problems with memory and attention/concentration...
  18. Wyva

    Management of patients with neurological diseases considering post-pandemic coronavirus disease 2019 (COVID-19) related risks and dangers (...), 2024,

    Management of patients with neurological diseases considering post-pandemic coronavirus disease 2019 (COVID-19) related risks and dangers — An updated European Academy of Neurology consensus statement Saša R. Filipović, Serefnur Özturk, Daniel Bereczki, Benedetta Bodini, Francesco Cavallieri...
  19. Wyva

    Severe ME Understanding & Remembrance Day, 8th of August 2024

    Protest in Berlin: People who are affected by ME/CFS during a lie-in demonstration No touch, no light, no sounds - those afflicted with ME/CFS find their daily life severely restricted. This is the focus of a protest by those affected. - People who are affected by ME/CFS during a lie-in...
  20. Wyva

    Maeve Boothby O'Neill - articles about her life, death and inquest

    The Observer letters: ME: we need more funding and more research Two responses to Alastair Miller's awful opinion piece a couple of days ago. Alastair Miller claims there have been “years of well-funded research” into ME (“Maeve Boothby-O’Neill’s harrowing case highlights clashing NHS...
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