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  1. Wyva

    Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?

    Personal anecdote, not about questionnaires but similar about gaming etc these: I was abused as a kid and there was this occasion when I was seen by a psychologist. I was quite little, definitely 10 or younger at primary school. I remember that I had to do a couple of different tasks that were...
  2. Wyva

    Maeve Boothby O'Neill - articles about her life, death and inquest

    The Guardian: Maeve Boothby-O’Neill’s harrowing case highlights clashing NHS narratives on ME by Alastair Miller "Given this, it was perhaps sadly inevitable that some people would question whether ME/CFS was a “real disease” or was “all in the mind”. Indeed, the original description of ME...
  3. Wyva

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    This reminds me of the time when I sent a letter to the Hungarian Academy of Sciences after Professor Janszky, a neurologist, made same pretty horrible unsupported claims about ME/CFS patients at the long covid symposium of the academy. He was just regurgitating stuff Sharpe and the BPS crowd...
  4. Wyva

    issue of 'chronic fatigue' without the syndrome being used by media and others and probably pwme

    Just adding my recent anecdote about this. Background info: there is basically no original local coverage of ME/CFS or LC here. Almost all the articles you can read about these diseases here in the media are translated from foreign articles (from English or German-language media). Usually it is...
  5. Wyva

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome After SARS-CoV-2 Infection, 2024, Unger et al

    Another article in US News: COVID-19 Won't Raise Odds for Chronic Fatigue Syndrome: Study The news outlets are picking up the press release, more of these articles may come.
  6. Wyva

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome After SARS-CoV-2 Infection, 2024, Unger et al

    An article: Research finds no difference in chronic fatigue syndrome prevalence caused by COVID-19, other illnesses
  7. Wyva

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome After SARS-CoV-2 Infection, 2024, Unger et al

    Key Points Question Does prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)–like illness differ between individuals with an acute infection–like index illness who are COVID-19 positive or negative? Findings In this cohort study of 4378 participants, the weighted...
  8. Wyva

    Visual media for learning biology/medicine

    This reminded me of the French animated series Once Upon a Time... Life that aired when I was little. All I remember now is the red blood cell characters always carrying oxygen on their back and that sometimes an invader arrived that needed to be fought (a virus, etc). It was for little children...
  9. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    An abstract from the PhD Scientific Days in Budapest just a few days ago: Viral infection associated pediatric gastrointestinal disturbances in the context of the COVID-19 pandemic Author(s) Dr. Réka Garai1, Dr. Vivien Herczeg1, Dr. Fanni Kovács1, Dr. Anna Máthé2, Dr. Ágota Nyírő3, Dr. Péter...
  10. Wyva

    Repeating testing

    Yes, another endocrine disorder is hypothyroidism where you test your thyroid hormones for diagnosis. Then you get medication and you have to keep doing the tests to see if it works or you need to increase or decrease the dose, especially as time passes (first every 3 months, if it's good then...
  11. Wyva

    Review Post-acute sequelae of SARS-CoV-2 infection (Long COVID) in older adults, 2024, Russell et al

    These are the papers on ME/CFS in the references section: Apostolou E, Rizwan M, Moustardas P, et al. Saliva antibody-fingerprint of reactivated latent viruses after mild/asymptomatic COVID-19 is unique in patients with myalgic-encephalomyelitis/chronic fatigue syndrome. Front Immunol...
  12. Wyva

    Review Post-acute sequelae of SARS-CoV-2 infection (Long COVID) in older adults, 2024, Russell et al

    Samantha J. Russell, Karen Parker, Andrea Lehoczki, David Lieberman, Indu S. Partha, Serena J. Scott, Linda R. Phillips, Mindy J. Fain & Janko Ž. Nikolich Abstract Long COVID, also known as PASC (post-acute sequelae of SARS-CoV-2), is a complex infection-associated chronic condition...
  13. Wyva

    Hairstylists Have Always Been Mental Health Caretakers. Now, They’re Being Trained for It

    My hairdresser is a racist far-right anti-science anti-vaxxer and very chatty (well, guess how I know these). The only reason why I go to her salon is because the salon is in our building, so I literally just have to go to the ground floor. I'm not sure I'd like to start getting mental health...
  14. Wyva

    Tool to see daily view counts on popular pages of MEpedia

    So for example here is the latest such update of the Google search algorithm, happening just now actually: https://www.searchenginejournal.com/google-launches-june-2024-spam-update/520281/ They keep saying these updates are against spam, AI, low quality content etc but you can find plenty of...
  15. Wyva

    Tool to see daily view counts on popular pages of MEpedia

    Can the Google algorithm be also responsible, at least in part? They have messed with changing the algorithm in the past year or two a few times and it really badly affected some websites, including mine (even in the past few weeks there was a huge drop in traffic). I don't even look at where my...
  16. Wyva

    The impact of the COVID-19 pandemic on the psychosomatic status of emeritus professors: The importance of active lifestyles, 2024, Takács et al

    Haven't read it yet but the title sounds impressive. ;) This is the same team @dave30th addressed once both on his blog and in a letter after this study where they "found" some unjustified causal relationship between physical activity and reduced number of symptoms after covid infection in young...
  17. Wyva

    The impact of the COVID-19 pandemic on the psychosomatic status of emeritus professors: The importance of active lifestyles, 2024, Takács et al

    Abstract Purpose The COVID-19 pandemic has had an enormous negative impact on the psychosomatic status of the general population, and especially of more vulnerable populations, such as older people. The present study aimed to assess changes in psychosomatic status before and after the COVID-19...
  18. Wyva

    Protocol Faecal microbiota transplantation (FMT) in Norwegian outpatients with mild to severe ME/CFS: protocol (...), 2024, Skjevling et al. Comeback Study

    Full title: Faecal microbiota transplantation (FMT) in Norwegian outpatients with mild to severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): protocol for a 12-month randomised double-blind placebo-controlled trial Abstract Introduction The observed alteration of the...
  19. Wyva

    Michael Rosner - Chiari and stenosis surgeries

    Not Michael Rosner, but Dr Bolognese, who seems to be the go-to spinal surgeon for ME/CFS patients in the US right now. You can find a couple of similar articles on legal sites or smaller local news sites. ME/CFS is not mentioned in these stories and these particular cases may have nothing to do...
  20. Wyva

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Koroshetz has been saying this since the beginning of the pandemic but this is such BS. They could have done prospective studies on EBV-triggered ME/CFS (or other strongly suspected infections). The Dubbo study did it, Leonard Jason did it, it is not rocket science and NIH has the money for such...
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