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Abstract Purpose To examine retinal and corneal neurodegenerative and retinal microvascular changes in patients after mild or asymptomatic COVID-19 disease compared to age-matched controls. Methods Thirty-five (35) patients after PCR-proven SARS-CoV-2 infection and 28 age-matched controls were...

Shared it in my group and will probably share it a few more times for visibility but I don't expect a lot of signatures. I think for a lot of people here Cochrane and this "academic debate" is a bit obscure. I tried my best to explain it though and hopefully those a bit more interested in...

Basically they retrospectively asked people treated with the therapy at their clinic about their symptoms and the results are based on their replies. No control group or anything. I just took a quick glance but I'm not sure we even know how many didn't reply, probably we don't. There may be even...

Abstract Post-COVID-19 condition, also known as long COVID-19 syndrome and post-acute sequelae of SARS-CoV-2, encompasses an array of symptoms that persist well beyond the initial phase of the viral infection. These symptoms can range in intensity, from mild and manageable to severe and...

Posted by the Austrian patient org on FB (translated by FB): This seems to be the long covid guideline they mentioned (Google translated version of the website): https://oegam-at.translate.goog/artikel/leitlinie-s1-und-webtool?_x_tr_sl=auto&_x_tr_tl=en&_x_tr_hl=en&_x_tr_pto=wapp I haven't...

ME, CFS & Fibromyalgia Alliance condemns benefits abuse The Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS) & Fibromyalgia (FM) Alliance has condemned the benefits fraud abuse, questioning why people suffering with Fibromyalgia and Myalgic Encephalomyelitis are being...

Is that the kind of forgiveness expert that tells abuse victims to forgive their abusers, no matter what, even if the abuser never even admitted the harm? Because then I have no more questions. OK, according to this article, yes, he is that type.

Yep, everyone knows that even healthy people need to work out every day because if they skip even one day, they might risk ending up as reverse Captain America. And that's if they are lucky and don't get disabled after a super lazy day.

I had to realize that when I say I have a good day I totally mislead people and should just stop using it altogether. Because having a good day simply means not having a bad day (or a terrible day). Even on good days I'm still symptomatic, I'm still not my old self but I can somewhat manage...

Yes, but these tests are used the same way by desperate patients to get a "confirmed" diagnosis. This is another lab that gets recommended to members in my group from time to time and some people see a positive result as a confirmation that thay have ME/CFS, POTS, SFN. I'm not sure this is...

There are also the CellTrend tests for ME/CFS, POTS, long covid, small fiber neuropathy in Germany, which aren't really validated as far as I remember but sold to patients: https://www.celltrend.de/en/pots-cfs-me-sfn/

This is a constant issue in my group, to the point that I had to include the word "Lyme" in my moderation alerts. Because some people there are convinced they have chronic Lyme and they pretty aggressively try to convince others too that it is actually Lyme disease they have, not long covid or...

Oh, I've only checked the thread titles to see if it was already posted. :)

Abstract Background Although COVID-19 is primarily an acute respiratory infection, 5%–40% of patients develop late and prolonged symptoms with frequent neurological complaints, known as long COVID syndrome. The presentation of the disease suggests that COVID infection may cause functional...

They mean the first SARS outbreak (SARS-Cov-1), which happened back then but on a much smaller scale. Still, there were a few studies even back then about the prolonged symptoms people had (even linking them to the then definition of CFS). (And this is why it is even weirder when people say that...

Abstract Postinfectious syndromes have been described since the Spanish influenza pandemic of 1918. A similar syndrome—post-COVID condition (PCC)—is common; it occurs months after COVID-19 infection and involves fatigue, postexertional malaise, dyspnea, memory loss, diffuse pain, and...

Well, most of my workouts were quite insane and the goal was to push yourself to the edge of your capacity and even over, either with the weights or with the intensity, so I think that's why I ended up with this bit more prolonged muscle weakness/muscle fatigue every once in a while. (Luckily...

Not from a pwME perspective: I had this happen to me occasionally during and after some of my workouts, back when I was physically very trained pre-ME. I did super intense workouts, not something beginners could complete or get even halfway through, mostly HIIT and strength training. Yet, when...

This is what the ME Association posted on Facebook about the potential TV programme on the PACE trial: THE BBC REGRETS THEY'RE UNABLE TO PACK THE PACE TRIAL INTO THIS PROGRAMME... The 2011 PACE Trial just packs too much controversy into it to sit comfortably within the format of a...

Greek