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Agreed. The reason I gave up advocacy for almost a year (and only write stuff occasionally now) was due to this cognitive hurdle and worsening. I could do so much without physically over-exerting myself on the advocacy front but cognitive PEM just kills me.

The Boston Globe: Actually, we can’t yet ‘ignore COVID’ Responses from readers to an article written by Dr Ashish Jha and which was titled “With a few basic steps, most of us can finally ignore COVID” There were two pop-up windows for me, I closed one and refreshed the page afterwards and the...

For the record, I used my laptop with a mouse when I got my result upthread. Cognitive dysfunction, slow reactions, difficulty concentrating etc are among my most debilitating symptoms which are present (although to a lesser extent) even without PEM, so I'm not surprised. I did it again today...

I got the same result as you, except that my response time was slower. Suboptimal. Edit: it was 437 msec

Actually, this is what the CCC says about the absence of pain: "*There is a small number of patients who have no pain or sleep dysfunction, but no other diagnosis fits except ME/CFS. A diagnosis of ME/CFS can be entertained when this group has an infectious illness type onset."...

The article is now published. I could read it without a problem, there was no paywall. What Fatigue Really Means Everyday tiredness is nothing like the depleting symptom that people with long COVID and ME/CFS experience. By Ed Yong

Btw, interesting tidbit about the corresponding author, Tamás Constantin, who is a well-known pediatrician here (a rheumatologist): He streamed a Facebook video very early into long covid, which was a discussion of pediatric long covid with three other pediatricians. I watched it back then and...

The part about long covid: Interesting that out of all things the authors think it is the aftereffects of toxic shock syndrome that neuro long covid is strikingly similar to.

Abstract The COVID-19 pandemic caused by the coronavirus 2 of the severe acute respiratory syndrome (SARS-CoV-2) has significantly affected people around the world, leading to substantial morbidity and mortality. Although the pandemic has affected people of all ages, there is increasing...

Abstract Background Long COVID is a debilitating chronic condition that has affected over 100 million people globally. It is characterized by a diverse array of symptoms, including fatigue, cognitive dysfunction and respiratory problems. Studies have so far largely failed to identify genetic...

I heard about it just in general when I was a teen, without knowing about any specific conditions. I did believe it was a real thing but in my mind I automatically put it in the "X-Files" category of psychology, along with stuff like split personality (based on my movie experiences of course!)...

The BMJ: ME/CFS: Researchers question credibility of NICE guidance by Elisabeth Mahase, paywalled Guidance from the National Institute for Health and Care Excellence (NICE) on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) “deviated from usual scientific standards” and could cause...

And they call PEM the way I translate it on my website in their translation. Great! They usually translate PEM pretty horribly (on the rare occasion anyone even translates it), because the translator has no idea what it actually means. I don't know if my website was a source for translating the...

Btw, I've just checked the Hungarian version of the text and while the English text uses the term ME/CFS, the Hungarian one consistently says myalgic encephalomyelitis. Not sure what is going on there as Hungary is definitely a CFS country as far as naming goes. I find it hard to get even...

Maybe this thread would have a better place in a different subsection of the forum? Because there seems to be lots about long covid and ME/CFS in this resolution, not just the epidemic itself. Edit: btw, I've been also wondering a lot recently if it is worth creating a regional thread for...

I copy the relevant sections here, let me know if I omitted some other interesting part: The European Parliament (...) – having regard to its resolution of 18 June 2020 on additional funding for biomedical research on Myalgic Encephalomyelitis (ME/CFS)2 , (...) – having regard to the DG IPOL...

Veterinarian and virologist professor Miklós Rusvai frequently talks about covid in the media, here is an article where he also mentions long covid (Google Translate):

Marina Diamandis, singer Article in the Rolling Stone: Marina Opens Up About Tiring Illness: ‘It’s Been Hard to Remember What Healthy Feels Like’ Marina Diamandis, the pop singer who performs using just her first name, opened up on Wednesday about her recent diagnosis of chronic fatigue...

This one probably from the website of King's College? Researchers produce systematic critique of 2021 NICE guideline on CFS and ME

Also published in the Evening Standard and The Independent. -- Another article but by a different author, Helen McArdle: 'Flawed and harmful': Scientists blast ban on exercise therapy for chronic fatigue