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So in the end I sent a message similar to what you suggested. In short: - thanked them for drawing a parallel with ME/CFS in their studies - asked them if they are planning to research ME/CFS more or research ME/CFS along with long covid - told them that patients are extremely grateful for any...

The study is explained in this article: Cerebrospinal Fluid Offers Clues to Post-COVID ‘Brain Fog’ Over-Stimulated Immune System May Be Impetus to Cognitive Symptoms, UCSF-Led Study Shows

Abstract Cognitive post-acute sequelae of SARS-CoV-2 (PASC) can occur after mild COVID-19. Detailed clinical characterizations may inform pathogenesis. We evaluated 22 adults reporting cognitive PASC and 10 not reporting cognitive symptoms after mild SARS-CoV-2 infection through structured...

This is a new paper from the same Hungarian team who published this one last year: Severe Fatigue and Memory Impairment Are Associated with Lower Serum Level of Anti-SARS-CoV-2 Antibodies in pw Post-COVID (...), 2021, Molnar et al Again, they mention CFS: Chronic fatigue syndrome (CFS) is...

Abstract Background: Long COVID is a condition characterized by long-term sequelae persisting after the typical convalescence period of COVID-19. Previous reports have suggested the role of an unsatisfactory immune response and impaired viral clearance in the pathogenesis of long COVID...

So there was this study a couple of months ago in Hungary: Severe Fatigue and Memory Impairment Are Associated with Lower Serum Level of Anti-SARS-CoV-2 Antibodies in pw Post-COVID (...), 2021, Molnar et al You can see in the thread that the researchers also made comparisons with ME/CFS and...

Yes, a lot of them, it is quite a common symptom. Here is the NHS website mentioning it for example: https://www.nhs.uk/conditions/coronavirus-covid-19/long-term-effects-of-coronavirus-long-covid/

Two articles this time: First: Prime example of how little these people understand what's going on and I'm only sharing this because it's so ridiculous that I don't know if I should laugh or cry: Many struggle with anxiety, sleep disorders, but also with the weight of grief and trauma - Covid...

Cancer is a great topic for this. I get the impression that here in Hungary BPS people focus way more on cancer than on us. They just published an onco-psychological guideline here, which I kind of skimmed through and realized that biopsychosocial is an outdated term now, instead it is now...

It is possible to get the 4th shot here now. I'm kind of thinking about it, as I had my third one back in August. But I read all kinds of conflicting things about it, so I'm not sure if it is really worth getting it. Is it useless against omicron and the possible later variants? Does it still...

I think he means this (from a different preprint paper - EP=Pretorius): Yes there is potential Competing Interest. MK is a non-executive director and shareholder of Gknowmix (Pty) Ltd. EP is the managing director of BioCODE Technologies. The other authors have no competing interests to declare...

If someone is interested, the preprint version is available in full: https://www.medrxiv.org/content/10.1101/2021.06.11.21258564v2.full-text

There was this study last year: Infections in temporal proximity to HPV vaccination and adverse effects following vaccination in Denmark..., 2021, Krogsgaard et al. It is not simply about vaccination though but it examined vaccination and infection happening relatively close to each other in...

This study didn't only involve people with mild covid infections but many were hospitalized. There is a New York Times article where some experts comment on it, including Avindra Nath: https://www.nytimes.com/2022/01/25/health/long-covid-risk-factors.html But the thing is that it mentions...

Highlights Longitudinal multiomics associate PASC with autoantibodies, viremia and comorbidities Reactivation of latent viruses during initial infection may contribute to PASC Subclinical autoantibodies negatively correlate with anti-SARS-CoV-2 antibodies Gastrointestinal PASC uniquely present...

Another thing for whoever is interested in this topic: Whenever the weather is killing me, I see a whole bunch of people in the long covid group complain about the same. Whatever this is, some of the long haulers have it too. I also believe this is probably quite dependent on geography/climate...

I'm not sure we have the same issue (I'm honestly never sure with ME/CFS) but I'm severely affected by weather changes and I can at least tell you my story. So to begin with: even before ME/CFS weather fronts affected me, however, only in a normal way, meaning that they only very slightly...

Something similar was found in Hungary too a few months ago, although using a shorter time frame. And they also mentioned the similarities with ME/CFS. I posted it here: Severe Fatigue and Memory Impairment Are Associated with Lower Serum Level of Anti-SARS-CoV-2 Antibodies in pw Post-COVID...

I saw it too, but at least some parts of the article have been corrected. Not the central sensitization part, but now there is an explanation added that says CBT and GET are outdated. (Although I had to admit there are still some issues even with that explanation.)

Abstract Background: Long COVID, an illness affecting a subset of individuals after COVID-19, is distressing and poorly understood. Exploring the experiences of people with long COVID could help inform current conceptualizations of the illness, guide supportive care strategies, and validate...