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Well, he has passed today. (After more than a month on the ventilator.) As I said, unfortunately not many people come back from the ventilators here.

To be honest, I don't think that VeryWell Health article is particularly well-written. It says it is fact-checked but then there are sentences like this in it: In 2020, the most pervading symptom documented by long-haulers was fatigue. In 2021, a study by the World Health Organization (WHO)...

The BMJ: Long covid in children and adolescents Risk appears low, but many questions remain Symptoms involving almost every organ system have been reported after SARS-CoV-2 infection.123 Estimates of the prevalence of long covid (also called post-covid-19 condition, post-acute sequelae of...

Dr Charles Shepherd's comment from the MEA website: (Though I couldn't find where the authors noted the similarity with ME/CFS. Maybe it was in a different article I haven't come across.)

I don't know if anyone here noticed but this part is actually missing from the now published version.

Eventually they will say that symptomatic covid infection doesn't exist, it is just psychosomatic, caused by pandemic-related distress in people who are psychologically prone to it. That would be awesome, finally it would be obvious to the whole world how BPS ideology is more of a religion than...

(Don't learn geography from that map though, they mixed up the Czech Republic with Hungary. Otherwise, it is of course interesting.)

Yes, I've had this thought for a while now that even when an unshakeably good biomarker is found, they will just say: "But they do that with their mind!" :yuck:

This post has been copied and following posts moved from this thread: Physios for ME

Key Points Question What is the association of a COVID-19 diagnosis and mobility and physical function among community-living middle-aged and older Canadians during the initial pandemic lockdown in 2020? Findings This cohort study of 24 114 participants found that community-living...

I also believe that there is a cultural element for this very reason. I know that in Hungary most people never heard of EBV or mononucleosis unless they actually had it. I know I had no idea of their existence, had a hard time explaining even mono to quite a lot of people and also never met...

I honestly hope they won't ruin any kid's life with some surgery. Or even worse, series of surgeries. :(

I've read this article too and it also recommend treatments such as GET, yoga, hypnotherapy, improving sleep habits, mindfulness etc. I wasn't impressed at all either, so good job giving feedback, @boolybooly

I also actually have it, although for me it is air hunger, a feeling of not enough air coming into my lungs even though I breathe normally. Of course it can get worse with exertion but that is not the source for me and if I have it then I have it even if I just sit and do nothing (once I felt I...

Oh no. Raelan Agle, Pamela Rose etc are all these ME/CFS coaches who have even recommended the Lightning Process or NLP. I actually have a lot of issues with them and their YouTube videos in my own ME/CFS group because people keep sharing their material. They think all those recovered patients...

Additional info: this is not just an Australian thing but an update to the original guideline endorsed by the organization World Physiotherapy. Originally, PEM wasn't mentioned, so this is a new addition. The guideline has been translated to many different languages...

As you can see, this is not a new article but I thought it was worth sharing. Written by a family physician. Not really about ME/CFS but this general attitude would be really beneficial for us too of course. “I don’t know.” It’s an answer patients hate to hear. It is also an answer we doctors...

I'm posting this after getting a Google Scholar alert because the entire paper was translated to Hungarian. This paper was mostly written by Australians involved in physiotherapy. PEM is mentioned: ME/CFS is not mentioned (I haven't read the whole paper though).

Abstract This document provides an update to the recommendations for physiotherapy management for adults with coronavirus disease 2019 (COVID-19) in the acute hospital setting. It includes: physiotherapy workforce planning and preparation; a screening tool for determining requirement for...