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I'm glad numerous people on X have called this out. There really is a widening gulf between AfME and MEA these days.

Also a favourite of RecoveryGrift™ YouTubers

Possibly. I suppose I'll have to wait and find out.

I donated via text but it's not on my mobile plan bill. Has anyone any idea why? I expected it to be added.

I am in full agreement. It's not a way to do science. The LC world is now no less polarized than the ME/CFS world.

From the paper. Very poor going on multiple counts (REF).

You answered the question yourself. The majority of authors are active on X and are seen as 'patient friendly,' because they are not BPS or BPS-adjacent. That is what they have in common.

I thought it was ok, but not hard-hitting enough. Indeed, there was no explicit mention of PEM, just something about 'after activity', which I can't remember now. Nothing on the dire research funding situation. I don't expect the 'politics of ME' to be brought up on a 10-minute segment like...

https://www.bbc.co.uk/appeal/lifeline The segment is due to air today on BBC One at 14.50: https://www.bbc.co.uk/programmes/m002vqbh

Pain is not one of my major symptoms, but the only thing that really helps my muscles feel a tad better is a hot bath (if able). I guess it depends what sort of pain you get. I get a lot of fascial pain, and that sort of lactic acid burn/pain in muscles from doing too much / overwork (which...

Ok. That seems like a big assumption to me.

I didn't even know this was a thing. Is there a brief summary about how this works?

Yes, worth keeping an eye on.

Thanks for highlighting this. A bit concerning. But perhaps worth changing the title of the thread to 'ME/CFS classed as 'Acquired Neurodivergence' in some DWP Access to Work materials' or something similar, before anyone is confused by this. As far as I know, the main DWP classification for...

I'm sure there are other results and conclusions, but this is next to useless.

These are artificially produced clots, by the way — they are not samples from long covid patients. In fact the paper has nothing to do with long covid except for speculation about the presence of microclots in long covid.

This is from a San Francisco-based medical tech start-up/company called Openwater. Their founder is ex-Google. So it's good to see the tech sector getting involved. But I agree with Jonathan: unless this 'LC clots' work is repeated by other labs and begins to be taken seriously, it doesn't seem...

I am fully onboard with the idea that HR increase is a compensatory action for e.g., low blood volume, but, as others have pointed out, that doesn't seem to explain presence of blood pooling, a common symptom of OI. The blood pooling might explain reduced venous return, but what's causing the...

I'm sure you are aware of this, but there's quite a lot of annecdote about patients having the initial trigger/infection, seemingly then on the mend for a week or two, and then crashing bad, and subsequently developing ME/CFS.

Well, he seems to be asking the right questions — notably there is a focus on PEM and why it seems so 'nonlinear' and why different bodily symptoms all seem to fail together, regardless of the form of exertion. I have no idea if his answers are correct, but I do think we need much more research...