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  1. Forbin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This might not be the right thread to bring this up in, but it might be interesting to see how samples from "post-Covid" patients with ME-like symptoms respond when they're run by the nanoneedle.
  2. Forbin

    Has anybody with ME not contracted Covid-19 even when a household member has had it (or is suspected to have had it)

    In order to know this for sure, the ME/CFS patient would have to have been tested for the virus (which seems like something that would likely have been done if someone else in the house had Covid-19). I'm just saying that since you can apparently be infected and asymptomatic (especially if you...
  3. Forbin

    dry eyes

    If you wear contacts and your eyes dry out, the less pliable contact lenses can cause friction with the conjunctiva surrounding the eye, leading to GPC (giant papillary conjunctivitis). This can be really quite painful, even to the point of preventing sleep, and it takes quite a while to heal. I...
  4. Forbin

    MEA: Real People. Real Illness. ME Awareness Month 2020.

    I realize that not everyone can do this, but I was able to record the audio and then play it back in sync to the video (with the video's audio disabled), more or less by trial and error. The audio does not gradually fall out of sync (which can happen on youtube under some circumstances), so...
  5. Forbin

    Judy Mikovits

    I will say this... I think ME/CFS research and advocacy (in the US, at least) would be in a much different place today were it not for the XMRV debacle - a place a lot more like 2009 than 2020. To quote John F. Kennedy:
  6. Forbin

    Contribution of individual psychological and psychosocial factors, Dubbo Infection Outcomes Study, 2019, Cvejic, Hickie et al

    "Emotional lability" (mood swings) is one of the symptoms that Ramsey noted, so the illness could actually be causing symptoms that look like neuroticism. Add to that the fact that the symptoms actually cause a loss of function and control and I question whether rational patient concern over...
  7. Forbin

    Event: Grand Rounds: Pathophysiology of Exercise Intolerance in Chronic Fatigue Syndrome Event Date: May 5th, 2020 David Systrom, MD

    For me, the most interesting part was toward the end (starting at 36.05). If I understood this correctly, there's a particular group of patients (the high blood flow group) that has the highest impairment of oxygen extraction. In other words, when their blood returns to their hearts, it has...
  8. Forbin

    Coronavirus - worldwide spread and control

    The IHME projections have been updated again. They have changed considerably. In fact, the model has been altered to a new "hybrid model" to try to compensate for erratic reporting (by smoothing data) and a slower than expected down slope in daily deaths. [05/04/20 current estimates projected...
  9. Forbin

    Films

    I've never seen the 1955 British horror omnibus film "Three Cases of Murder," but this short sequence is so nicely done that I wish there was some way that I could. [The Spanish subtitles are part of the film clip and can't be turned off.]
  10. Forbin

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    I didn't know/remember this, but it seems as though the CDC's budget for CFS ($5.4M in 2019) was actually part of the budget of the National Center for Emerging and Zoonotic Infectious Diseases (NCEZID). https://www.cdc.gov/ncezid/who-we-are/budget.html
  11. Forbin

    Solving the ME/CFS criteria and name conundrum: the aftermath of IOM, 2020, Jason & Johnson

    Yes. I suspect that distinguishing PEM from delayed PEM may be very important. Dr. Komaroff has said that delayed PEM is something that he's never seen in any patients other than those with chronic fatigue syndrome. Delayed PEM may not be noticable in all ME/CFS patients at all times, however...
  12. Forbin

    Human Herpesvirus-6 Reactivation, Mitochondrial Fragmentation, and the Coordination of Antiviral and Metabolic Phenotypes in ME/CFS - 2020 - Schreiner

    FWIW... I've mentioned this before but, maybe a month into ME/CFS, I woke up with a rash of scattered, flat, pinkish spots on my neck, torso, abdomen and arms. The spots averaged about the diameter of a pencil's eraser and the rash only lasted a day or two, but I'd never had any other kind of...
  13. Forbin

    Human Herpesvirus-6 Reactivation, Mitochondrial Fragmentation, and the Coordination of Antiviral and Metabolic Phenotypes in ME/CFS - 2020 - Schreiner

    I wonder if this lends credence to the reports of some patients who have reported resistance or "immunity" to the flu after the onset of ME/CSF. ETA:
  14. Forbin

    Coronavirus - worldwide spread and control

    The IHME projections have been updated once again. On Monday (4/13) the US total projected COVID-19 deaths rose to 68,841 (it had been 60,415 five days earlier). Today, 4/17, it has been revised back downward to 60,308 (range of 34k -140k). Way back on 4/6 (way back 11 days ago, that is) the...
  15. Forbin

    Symptoms of Covid-19

    I don't know about the reliability of the source, but this article talks about a "strange neurological symptom" being reported by a couple of people in the wake of Covid-19 infection. One person talks about feeling like their brain occasionally "short circuits," and another says "Yeah I know...
  16. Forbin

    Advice from 'experts' on post-viral fatigue following Covid-19 (NHS Oxford Health, Science Media Centre, ...)

    Wow. This pamphlet contains the best medical advice since Huckleberry Finn explained to Tom Sawyer how to cure warts.
  17. Forbin

    Coronavirus - worldwide spread and control

    Maybe it's just me, but I find it a little bit odd that the models at the IHME (https://covid19.healthdata.org) haven't been updated with real data since last Sunday - this just as the "peak" was about to hit. The model for California hasn't been updated since last Saturday. At first I thought...
  18. Forbin

    ME severity scales - discussion

    I get a slightly different set of definitions from the ICC document here: http://www.investinme.org/Documents/Guidelines/Myalgic Encephalomyelitis International Consensus Primer -2012-11-26.pdf 4. Symptom severity & impact: ....Mild: meet criteria and have a significant reduction in activity...
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