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  1. Forbin

    Coronavirus - worldwide spread and control

    An AP article on home quarantine for travelers returning from China features a few quotes from Dr. Ian Lipkin, who, after 14 days, will leave the confines of his home's basement on Tuesday. https://apnews.com/24f0467ead5541ccb228ff70c698eb91
  2. Forbin

    UK Times:'What if the thing that’s making you physically ill is your mind?', Feb 2020, Rumbelow [includes ME]

    No. I'm pretty sure that right at this moment it's this article.
  3. Forbin

    Coronavirus: Advice from ME organisations

    So far as I know, they don't generally test for influenza - but what if there's an outbreak of influenza during this period of "COVID-19" concern? I'd be surprised if there were resources available to test everyone who develops upper-respiratory symptoms in that situation, so how will they...
  4. Forbin

    "Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia... van Campen et al, 2020

    About six months after onset, an otologist suggested that my dizziness might be caused by constriction of the tiny capillaries of the inner ear. It was recommended that I take niacin in an attempt to dilate these tiny blood vessels, but it didn't help (and, in my case, the side effects of niacin...
  5. Forbin

    Coronavirus - worldwide spread and control

    Article from Columbia University|Mailman School of Public Health on response to Wuhan Coronavirus. Ian Lipkin has recently returned from China, but was not allowed to go to Wuhan himself due to U.S. travel restrictions...
  6. Forbin

    "Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia... van Campen et al, 2020

    link to larger image: https://ars.els-cdn.com/content/image/1-s2.0-S2467981X20300044-gr5_lrg.jpg
  7. Forbin

    How to explain the 'fatigue' of ME/CFS to non-sufferers - comparisons they could understand

    This is an interesting analogy, especially if mitochondrial dysfunction is involved. At altitude, mitochondria presumably make less energy due to a lower concentration of oxygen. In mitochondrial dysfunction, however, they can't make enough energy despite the presence of sufficient oxygen - but...
  8. Forbin

    Loooong Headaches

    A few months after onset, I had what seemed like one long, continuous migraine that went on for months. Sometimes it was worse than others, but the only real escape was during sleep. Nothing seemed to help, and, by that point, I had given up on mentioning new symptoms to doctors. I'm pretty...
  9. Forbin

    Editorial: Functional Neurological (Conversion) Disorder: A Core Neuropsychiatric Disorder, 2020,

    A 2015 article in Scientific American about TMS and other "electro-cures." https://blogs.scientificamerican.com/cross-check/return-of-electro-cures-symptom-of-psychiatry-s-crisis/ The only one with good evidence of effectiveness (in 2015, at least) was electroconvulsive therapy (ECT) for severe...
  10. Forbin

    Leonard Jason research finds that many young people have ME/CFS (Simon M blog)

    Another reason why the numbers go up up with age might be that, in the US at least, children up to age 11 or 12, though they may attend schools with hundreds of other students, generally have little interaction with anyone outside of their classroom of 20~30 students. Once they hit middle...
  11. Forbin

    Living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): A description of adult experiences, 2020, Essebo & Joqi

    Also kind of Orwellian (or at least ironic) is that, in Latin, PACE means "with peace." It's usually used as an expression of deference to a respected person's contrary opinion, sort of like starting a sentence with "No offense..." So... "Pace Mike, but I think this study* is for the birds."...
  12. Forbin

    Films

    I recently saw "1917" and thought it was very, very impressive and certainly worthy of winning the Academy Award for Best Picture. Since the only other nominee I've seen to date is "Once Upon A Time in Hollywood," I can't honestly declare that "1917" is the best picture among the nine nominees...
  13. Forbin

    Living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): A description of adult experiences, 2020, Essebo & Joqi

    Can you really be engaged in a strategy to conserve energy while at the same increasing the amount of energy you expend? I feel like a law of thermodynamics is being violated here.
  14. Forbin

    Pathogens associated with triggering ME/CFS - discussion thread

    Yeah - oddly, I only started to have night sweats after the initial fever and sore throat had passed. I don't think I'd ever experienced that before. People can break out into a sweat when a fever breaks, but I assume it's pretty much a one time thing reflecting the system's realization that the...
  15. Forbin

    Pathogens associated with triggering ME/CFS - discussion thread

    If an infection was linked to one's onset, an interesting question might be how severe it seemed compared to other infections you'd had in the past. Mine was among the worst I'd ever had, but there had been prior infections of similar intensity that obviously didn't result in ME. The sore throat...
  16. Forbin

    Pathogens associated with triggering ME/CFS - discussion thread

    In Laura Hillenbrand's award winning article of her experience with ME/CFS, when she finally saw a doctor about her symptoms, she tested positive for strep throat (a bacterial infection, not a virus). She tested positive for strep a couple of more times, and, when she was later tested for EBV...
  17. Forbin

    From illness perceptions to illness reality? Perceived consequences and emotional representations ... in p/with vertigo & dizziness, 2020, Wolf et al

    FWIW, the article was published in the... Journal of Psychosomatic Research Official Journal of the European Association of Psychosomatic Medicine
  18. Forbin

    From illness perceptions to illness reality? Perceived consequences and emotional representations ... in p/with vertigo & dizziness, 2020, Wolf et al

    Yeah, I'm not sure how you can tell if a "patient's cognitive and emotional concepts" of their dizziness and vertigo are inappropriately impacting their degree of handicap - unless you had experienced similar symptoms over a similar duration - and how would you know if the severity of symptoms...
  19. Forbin

    From illness perceptions to illness reality? Perceived consequences and emotional representations ... in p/with vertigo & dizziness, 2020, Wolf et al

    Perhaps I'm misunderstanding this, but it almost sounds like they're suggesting that if patients would only "lighten up" about consequences of dizziness and vertigo then they wouldn't be so handicapped. I'm perfectly willing to let any interested investigators test this theory by riding along...
  20. Forbin

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    I'm surprised it's as high as 83%. It was only several years after onset that I first noticed PEM - by which I mean feeling oddly worse the day after exertion. It took me a long time to make that connection because it's so non-intuitive. I was only able to distinguish PEM after my background...
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