The Conversation
Existential crisis: how long COVID patients helped us understand what it's like to lose your sense of identity and purpose in life
quotes:
Over an 18-month period from October 2021, we conducted three rounds of interviews with 80 people from diverse age groups, geographical...
Tweet from STAT:
“We estimated that there were approximately 10 million people in the first year of the pandemic in the US who are in this predicament: who got Covid, got long Covid, but tested negative for Covid," said @IgorKoralnik
STAT (Paywalled)
New study suggests people who teste negative for Covid-19 can still develop long Covid
quote:
Of the 103 million confirmed cases of Covid-19 in the U.S., an estimated one-thirdhave led to long Covid — a condition that ranges in severity, but can be debilitating. A new study...
Neurology - Neuroimmunology & Neuroinflammation
SARS-CoV-2-Specific Immune Responses in Patients With Postviral Syndrome After Suspected COVID-19
Abstract
Background and Objectives Millions of Americans were exposed to SARS-CoV-2 early in the pandemic but could not get diagnosed with COVID-19...
I am so sorry to hear that. WHO is even more clear, (use mask, keep distance, stay at home when ill and so on) so I don't understand how we are able to ignore it all completely here :-(
https://www.who.int/emergencies/diseases/novel-coronavirus-2019/advice-for-public
Ah, yes. And in another interview today (he's been busy) he says won't be bothered to test himself if he has symptoms. That's our top epidemiologist in our country, that is. :unsure:
Science News Health risks can persist at least 2 years after COVID-19, new data suggest
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“When it comes to a symptom clinicians have never heard of before, like PEM, [health records don’t capture] the full picture,” says Jaime Seltzer, an expert on myalgic encephalomyelitis/chronic...
Fortune Long COVID. Shorter Life? New research reveals an arduous road to recovery
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According to a paper published today in Nature Medicine, the physical fallout from long COVID may last two years or longer–and it can take a toll on quality of life even for those whose initial cases...
CNN health Long Covid symptoms create a greater burden of disability than heart disease or cancer, new study shows
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...long Covid creates a higher burden of disability than either heart disease or cancer, which cause about 52 and 50 DALYs for every 1,000 Americans, respectively...
Abstract
Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection can lead to postacute sequelae in multiple organ systems, but evidence is mostly limited to the first year postinfection.
We built a cohort of 138,818 individuals with SARS-CoV-2 infection and 5,985,227 noninfected...
This article gave a great explanation of the study for a wider audience:
Science Alert This Protein Could be Responsible For The Exhaustion in Chronic Fatigue Syndrome
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Baffling perhaps to medical doctors who have long dismissed ME/CFS, but not so much to researchers who have steadily...
The article has now been professionally translated into English:
Science Norway Can long Covid be treated in three days?
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During the three days, patients learn about COVID-19 and how it affects the body.
“We combine teaching with a number of different types of physical training and...
Science A protein that disrupt cell's energy centers may be a culprit in chronic fatigue syndrome
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“It’s extremely encouraging” to see this kind of detailed molecular approach applied to an understudied illness like ME/CFS, says Mady Hornig, a physician-scientist studying the condition at...
Medscape Children and Long COVID: How Many Are Affected?
Children are at lower risk for contracting COVID and often experience milder symptoms. But the virus is now widespread, and a recent study found that around 16% of pediatric patients with COVID go on to develop symptoms that last more...
Eric Topol Long Covid: Mitochondria, the Big Miss, and Hope
quote:
This week there was news on Long Covid in two very different directions—emergence of strong data to support mitochondrial dysfunction as the basis for the condition in some people—and learning how the $1.15 billion allocation...
Simon Décary on Twitter:
If I understand this paper right, this may be one of the most important piece of data to date to demonstrate how SARS-CoV-2 inhibits mitochondrial homeostasis, which could explain the pathophysiology of post-exertional malaise.
The study is briefly discussed in today's TWiV Clinical update with Dr. Daniel Griffin and Prof. Vincent Racaniello wonders if this finding may be relevant for other viruses too.
Nina E. Steinkopf has made a compilation of ME studies of bad quality and about how they are used to influence treatment offers. This made my blood boil.
Poor quality of ME research
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Science on ME is misused. Research affects how ME patients are treated. Poor quality research leads to...
Merged thread
The article has interviews with Ron Davis, Maureen Hanson and Alain Moreau
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While there’s currently no simple biological marker for ME/CFS — patients’ routine laboratory tests generally fall within normal values — Hanson emphasized that patients with ME/CFS are...
Long Covid SOS:
The #LongCovid revolution Analysing tweets from the very first by @elisaperego78 to recognition from @DrTedros after our conference with @WHO in August 2020, this article shows how the power of patient advocacy can bring about real change
Tedros Adhanom Ghebreyesus:
The voices...
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