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  1. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Sorry, this is probably just poor translation from my side. Norway is not member of EU, and FOI was the only translation I could think of on the spot. The literal translation from Norwegian of its "FOI" law is the "right to insight". ETA: It's quite easy to do, and you can do it through a...
  2. Kalliope

    News from Finland

    Gerd Kvale is also speaking. She is behind a 4 day intervention for anxiety and OCD which had good results in clinical trials. Now there's a clinic in Norway - Helse in Hardanger - based on this approach to other diagnoses as diabetes, chronic back pain, fatigue, long covid etc. One of the...
  3. Kalliope

    The Norwegian Institute of Public Health announces study to see if masks reduce infection

    I have some doubts whether this study will bring us any more clarity to the issue..
  4. Kalliope

    The Norwegian Institute of Public Health announces study to see if masks reduce infection

    The institute (FHI) shared the news today that they are recruiting 5 000 participants for a randomised trial where one group will wear masks in crowds and public places for 14 days, and the other group will not wear a mask. This is to "find out if the usage of masks reduces the probability to...
  5. Kalliope

    Long Covid in the media and social media 2023

    BMJ: As a doctor with long covid, I feel abandoned by the NHS quote: One key feature of everyone I know with long covid is that we “pushed through” the initial stages of our illness, believing that we could get better by carrying on and ignoring our bodies. As a doctor, the system I worked in...
  6. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Patient advocate Nina E. Steinkopf has written an excellent reply to the article which just got published on the newspaper's website: Den stadige svertingen av ME-syke google translation: The constant slandering of ME sufferers quote: It is not without reason that ME patients want to know...
  7. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Professor Reme was btw the same who recently was out in the media saying ME patients were out to get them, that they couldn't publicly announce an ME-seminar she organised, and that the seminar had to have the police on standby. Patient advocate Nina E. Steinkopf contacted the police and they...
  8. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    A weird article today in an newspaper for academia and research. Professor in psychology Silje Reme complains of how absurd it is that people are using their right to access for information regarding their study on Lightning Process. Research director at the Norwegian Institute for Public...
  9. Kalliope

    Webinar with Leonard Jason: Predictors of ME/CFS following mono: Implications for Long-Covid

    The webinar was organised by the Norwegian ME Association
  10. Kalliope

    Long Covid in the media and social media 2023

    This was a very good interview with Hannah Davis and Dr. Bhupesh Prusty on Long Covid and ME. Available as audio and transcript. Science Friday Here's What We Know About Long COVID Three Years Later
  11. Kalliope

    Long Covid in the media and social media 2023

    Long Covid article from The New York Times with brief mention of ME: Long Covid Is Keeping Significant Numbers of People Out of Work, Study Finds quote: “A lot of people can’t afford to not work and so they’re working when they really shouldn’t be, continuing to work while they’re sick,” said...
  12. Kalliope

    Effect of using a structured pacing protocol on post-exertional symptom exacerbation and health status in a longitudinal cohort... 2022 Parker et al

    This study was mentioned by dr. Daniel Griffin in his clinical update podcast with This Week in Virology. The way he presented it sounded like GET, but he called it pacing. Professor Racaniello asked if this would result into the same problems as with in ME/CFS, where patients say exercise...
  13. Kalliope

    Long Covid in the media and social media 2023

    I agree. The best way to avoid Long Covid must be to avoid Covid. I wonder if excessive use of antivirals may have the same problems as with antibiotics? Can a virus mutate into becoming more resilient to antivirals?
  14. Kalliope

    Long Covid in the media and social media 2023

    Article by Katherine J. Wu on antiviral treatment to reduce chances of developing Long Covid The Atlantic: Trying to Stop Long COVID Before It Even Starts quote: For anyone who is newly infected, “we don’t have any interventions that are known to work,” says Akiko Iwasaki, an immunologist and...
  15. Kalliope

    Long COVID: major findings, mechanisms and recommendations, 2023, Davis, Topol et al

    RNZ Risk of debilitating illness from long Covid could grow - epidemiologist Michael Baker quote: "It basically results in a vast array of different symptoms," University of Otago epidemiologist Michael Baker told Morning Report on Tuesday. "Weakness and fatigue, neurological symptoms -...
  16. Kalliope

    Recruiting: Minicro - Mental training and nicotinamide riboside for symptoms after COVID-19, Wyller et al

    I've never heard of this particular cognitive therapy before, but wonder if it might surface from the "Mind-Body Lab" where Wyller and LP coach Live Landmark are part of the team. This lab was started by psychology professor Silje Reme (behind a qualitative LP study and the one who also recently...
  17. Kalliope

    Recruiting: Minicro - Mental training and nicotinamide riboside for symptoms after COVID-19, Wyller et al

    Information about a planned study from professor Wyller surfaced today. They are recruiting 310 adults to explore treatment with Mind-Body Reprocessing Therapy and nikotinamid ribosid. More about the study...
  18. Kalliope

    Long COVID: major findings, mechanisms and recommendations, 2023, Davis, Topol et al

    The Sydney Morning Herald ´We're all vulnerable': One in 10 people will end up with long COVID, new study says quotes: The report’s researchers believe there are significant similarities between long COVID and some chronic health conditions, such as myalgic encephalomyelitis/chronic fatigue...
  19. Kalliope

    #MEAction podcasts - Chronically complex

    Trial by Error by David Tuller After Last Year's Tub Talk, Here's an Interview-Clothed-for #MEAction's Podcast quote: ...here is my clothed interview with Jaime, #MEAction’s director of science and medical outreach, and Steven, the filmmaker who produces the organization’s videos–about my...
  20. Kalliope

    Long COVID: major findings, mechanisms and recommendations, 2023, Davis, Topol et al

    Nature reviews microbiology Long COVID: major findings, mechanisms and recommendations Abstract Long COVID is an often debilitating illness that occurs in at least 10% of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infections. More than 200 symptoms have been identified with...
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