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  1. Kalliope

    Norway: Articles from TV2 about ME. Interviews with researchers as Fluge, Rekeland, Sommerfelt, Kielland and an interesting patient case

    Christine who recovered from ME after treatment for breast cancer raised money for research into ME at Haukeland University Hospital. She managed to raise 700 000 NOK (65 800 Euro, 58 000 Pound, 7080 USD). Nettavisen has written an article about the fundraising and have also interviewed Kari...
  2. Kalliope

    Experience with LDN? low dose naltrexone

    For me LDN has correlated with a slight improvement of cognitive issues. No revolution, I am not able to read long texts or to write much and I can still get completely confused quite often and memory is still awful. But after taking LDN I have been able to take some online classes. The courses...
  3. Kalliope

    Experiences with Paxlovid

    just spotted this on twitter
  4. Kalliope

    Trisha Greenhalgh on ME/CFS and Long Covid

    If she hadn't blocked the whole ME community, I'm sure she'd get lots of help with this one. I see Alan Carson assist her though with: If you’re willing to be open minded i d be happy to take you through why many in neurosciences think this ... Maybe the problem is your use of dismissed...
  5. Kalliope

    News from Scandinavia

    Article today from TV2 about 36 year old Heidi Andresen who suffers from ME. For the last 13 years her ME has been quite stable, and she's been able to work part time and have a bit of social life as well. Then she deteriorated after the third dose of covid-19 vaccination. TV2 say they've been...
  6. Kalliope

    What can PwME hope for in 2023?

    I'm rather curious on Avindra Nath's study based on the NIH in-house testing of ME-patients, including Brian Vastag. I believe it is to be published soon?
  7. Kalliope

    Blog: ME/CFS Skeptic: 2022: "Looking back at a year of ME/CFS research"

    That was an impressive writeup! Very well written and easy to understand. Thank you!
  8. Kalliope

    Compilation of ME articles in 2022

    November The Sydney Morning Herald We failed Australians with chronic fatigue. Will we do the same with long COVID? BMJ Long Covid - What can we learn about the cause and management from ME/CFS? Los Angeles Times How patients wrote ’the first textbook’ on long COVID Medscape ME/CFS and Long...
  9. Kalliope

    Compilation of ME articles in 2022

    August Medscape Treatments Explored to Ease Post-Viral Symptoms of ME/CFS and Long COVID Medscape Increasing Data Link ME/CFS, Long COVID, and Dysautonomia Medscape Clinicians Can Help People With Severe ME/CFS, Even Unseen wbur To solve the mystery of long COVID, researchers look to an older...
  10. Kalliope

    Compilation of ME articles in 2022

    April SRF Das Chronische Fatigue-Syndrome - ein Albtraum für Betroffene (The Chronic Fatigue Syndrome - a nightmare for sufferers) Göteborgs-Posten Benjamin blir sjuk av att ta en promenad (Benjamin becomes ill by taking a walk) Göteborgs-Posten Postcovid kan ge upprättelse till ME-sjuka (Post...
  11. Kalliope

    Compilation of ME articles in 2022

    Here's a compilation of the largest ME articles mentioned in the weekly news brief throughout the year. This is the fourth year in a row we've had such an overview. In 2019 it was 10 articles that made the list. In 2020 it was 46. In 2021 it was 99. This year it's 107. Last year there was a...
  12. Kalliope

    Self-Reported Long COVID and Its Association with the Presence of SARS-CoV-2 Antibodies in a Danish Cohort up to 12 Months after Infection 2022 Fogh

    This study is hitting the news big time today in Norway. I fear many will use it as an excuse to ridicule Long Covid. I thought antibodies could vain quickly, so if you can't detect them 12 months after an infection it doesn't necessarily mean there never was an infection? Here's an article...
  13. Kalliope

    Long Covid in the media and social media 2022

    Thanks for sharing, @ahimsa Just watched it and Dr. Koroshetz mentions ME very briefly towards the end: I would say that the key thing in doing small trials is that, as I mentioned before, sometimes you see a signal that looks like it's going above the noise, but when you increase the numbers...
  14. Kalliope

    Norway: Opinion piece on "Facts and myths about ME" by Reme, Flottorp and Wyller

    An excellent short opinion piece from Mark Vink from Nov. 26th: Dårlig underbygde beskyldninger om ME google translate: Poorly substantiated allegations about ME quote: I read with interest the article Facts and myths about ME by Silje Endresen Reme, Signe Flottorp and Vegard Bruun Bratholm...
  15. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Anne Kjersti Befring is associate professor of law at the Faculty of Law at the University of Oslo and also deputy chairman at the National Research Ethics Committees (NEM). She is interviewed today for the research news site forskning.no and in short asks some researchers to pull themselves...
  16. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    The debate continues here in Norway. Professor in psychology Jonas Kunst and psychologist Sidsel Fjelltun wrote an opinion piece a few days ago in Nettavisen criticising Flottorp and the LP study: Overraskende at forskere tviholder på slike utdaterte påstander google translate: It's surprising...
  17. Kalliope

    Norway: Article about ME seminar with security

    Patient advocate Nina E. Steinkopf did the digging the journalist who wrote about this seminar with security should have done. There seems to be no record of communication between the University and the police about this seminar. Professor Reme has said it's easy to document threats and...
  18. Kalliope

    Long Covid in the media and social media 2022

    Article about Long Covid in English from Finland. It says treatment is uncoordinated and doctors disagree with each other over what it is. YLE Over 21,000 cases of long Covid diagnosed in Finland Quote: There is, for example, a debate among doctors about whether it is an actual physical...
  19. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I think "mission" is a good translation, perhaps "social mission" or "societal responsibility" could work too. Thank you for bringing these news to the forum @Midnattsol I'm angry too, but not very surprised and kind of glad that this has been brought out in the open. My guess it there's lots...
  20. Kalliope

    Thank you for the "News in Brief"

    This made my day, @DokaGirl , thank you! So glad that you find it useful. And a huge thanks to @Trish who came up with the idea, did it all by herself in the beginning and still does a major part. :emoji_bouquet:
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