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The Norwegian ME Association has shared lectures from a recent seminar: Lucinda Bateman: ME/CFS Clinical Coalition Guidelines: Informing Assessment and Management Jørgen Jelstad on the NICE guidelines (in Norwegian) Caroline Kingdon: What should implementation of the 2021 NICE Guideline mean...

Am a bit confused myself. The first proposition I believe is an answer to what the research project "TjenestenogMEg" has revealed, that case workers have been asked to be specifically thorough when patients with ME or with drug/alcohol addiction applies for disability benefits. The second...

New article from the Norwegian broadcaster NRK about 25 year old Aurora who suffers from severe ME and now has lived against her will in a care institution for old people for over nine months. Local politicians are now asking the municipality to do something. Her wish is to move back home and...

Yesterday there was a debate about ME in the Norwegian Parliament and these two propositions got a majority of votes (google translated): - The Parliament asks the Government to go review regulations and practice to ensure that CFS/ME sufferers right to equal treatment is safeguarded in view of...

Two more contributions to the current ME debate in Aftenposten. One from Paul Garner who says Reme, Flottorp and Wyller's opinion piece was well received among British colleagues who are researching ME, and among clinicians. He therefore got worried when he read Tuller's misguided comment and...

@dave30th has received a response from Henrik Vogt google translation: ME: Recovery Norge's stories show that you can recover quote: Finally, Tuller writes that our stories are not suitable for supporting the claim that one can be "completely cured of ME with the help of cognitive...

A huge thank you to @dave30th for writing a reply to this opinion piece. It was published yesterday on the newspaper's website: Tullprat om ME google translation: Nonsense about ME quote: In a debate article in Aftenposten on 26 October , three Norwegian researchers (Silje Endresen Reme, Signe...

Center for Infectious Disease Research and Policy (CIDRAP) has an article about the study. It's worrying if the risk of Long Covid are nearly the same for children and adolescents as for adults. This doctor's response in the CIDRAP article wasn't very reassuring (my bold): Daniel Blatt, MD, a...

Plos Medicine Post-COVID-19-associated morbidity in children, adolescents, and adults: A matched study including more than 157.000 individuals with COVID-19 in Germany - Roessler et al Abstract: Background Long-term health sequelae of the Coronavirus Disease 2019 (COVID-19) are a major public...

Recovery Norge has a list of professionals who are officially endorsing the organisation, and one of the authors of the study, Aase Aamland, is on the list. https://www.recoverynorge.org/om-oss-recovery-norge/fagfolk-om-recovery-norge/ In interviews and lectures she's been clear that she...

Thank you for the summary, @rainy I've not had the stomach to listen to the podcast episodes

This got a response today from Ola Didrik Saugstad, Nina E. Steinkopf and Rolf Rønning titled: Recovery Norge is hindering better help to ME-sufferers Summary: They argue that Recovery Norge (RN) is legitimising actors that claim even severe ME can be cured with cognitive methods and LP. At the...

Leader of Recovery Norge, Henrik Vogt with two board members who are previous ME sufferers wrote an answer 28th October titled: There is no "Recovery Norge-movement". It's behind paywall, so here's a summary: They describe Recovery Norge as an organisation of people who have experienced...

I'm reading it now and doesn't look good. @dave30th , you are referred to as well: One of the loudest voices decrying the PACE trial was that of a Berkeley academic named David Tuller, who in 2015 wrote a three-part, 15,000-word post that found fault with its protocol. His main criticism was...

This is a very long article, and I haven't read it yet myself, but see names as Bateman and Garner in it. Intelligencer: Has Long COVID Always Existed? https://nymag.com/intelligencer/2022/11/is-long-covid-actually-chronic-fatigue-syndrome.html This post has been copied and following...

This post has been copied and the following discussion moved from: Long Covid in the media and social media 2022 This is a very long article, and I haven't read it yet myself, but see names as Bateman and Garner in it. Intelligencer: Has Long COVID Always Existed...

A follow up article from Morgenbladet. This time an interview with researcher Anne Kielland from the research project TjenesteogMEg who is looking into ME patients meeting with the health care services. Title and ingress: - When people don't take ME sufferers seriously, we have to put the foot...

Here's more summary of the Dagbladet article. Beware my translation may be imprecise: Title: TV2 journalist: Held fundraising hidden Ingress: The TV2-journalist did a feature about research he had participated in financing. - He obviously played a double part here - both as activist and...

Flottorp from the Norwegian Institute for Public Health is interviewed in the Dagbladet-article. She is also quoted today in a Morgenbladet-interview with Kielland, who researches ME patients' meeting with the Norwegian health system, where Flottorp is accusing the research project of being...

I agree with the correction with this as additional information. But want to emphasise that Schaatun never fundraised for the researchers or any specific research project, but for the Norwegian ME Association who then chose to allocate money to Haukeland. I worry some readers might misunderstand...