Search results

  1. Kalliope

    Norway: Articles from TV2 about ME. Interviews with researchers as Fluge, Rekeland, Sommerfelt, Kielland and an interesting patient case

    TV2 has asked ME patients to send in pictures for the article, so this is how ME is illustrated. Thanks to everyone who contributed!
  2. Kalliope

    Norway: Articles from TV2 about ME. Interviews with researchers as Fluge, Rekeland, Sommerfelt, Kielland and an interesting patient case

    New ME article from TV2: Researcher Anne Kielland calls the treatment of ME patients symbolic violence and say they are horrified by the results of their study into how ME patients are met in the health care system. Professor Emeritus Kristian Sommerfelt is not surprised by the findings and...
  3. Kalliope

    Norway: Articles from TV2 about ME. Interviews with researchers as Fluge, Rekeland, Sommerfelt, Kielland and an interesting patient case

    TV2 had a segment on the news tonight and an article on their website about ME sufferer Christine Moen who developed severe ME after mononucleosis. She was badly treated by the health care system as ME patient. In 2019 she got diagnosed with breast cancer and said when she received treatment...
  4. Kalliope

    Long Covid in the media and social media 2022

    Medscape Will Fatalism Kill the Needed Response to Long COVID? Commentary by David Putrino, PhD quotes: Given the enormous numbers of people who develop long COVID symptoms following acute infection, and the general air of fatalism that we are observing toward long-term public health policy to...
  5. Kalliope

    Long Covid in the media and social media 2022

    Wisconsin Public Radio "Medically maligned Chronic Fatigue Syndrome holds clues to long Covid" Great 20-minute interview with Dr. David Kaufman and Jamie Seltzer with a Q&A session. Description: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a complex chronic illness that has...
  6. Kalliope

    News from Scandinavia

    I have been there. Twice. A beautiful place, but they were completely clueless about ME even though they claimed to have something to offer this patient group. It was several years ago though, so hopefully they are more up to date now. Anthroposofic doctors have a medical degree as well. Have to...
  7. Kalliope

    Norway - 2 comedy podcasters cause controversy by misrepresenting ME/CFS, October 2022

    The newspaper Dagsavisen has an article about yesterday's debate with Frøydis Lilledalen, Harald Eia and the general secretary of the Norwegian ME Association. ME-syk: Frykter stigmatisering etter podkast google translation: ME-sufferer: Fear stigmatisation after podcast - I was called by...
  8. Kalliope

    Norway - 2 comedy podcasters cause controversy by misrepresenting ME/CFS, October 2022

    Should also add that the other comedian, Tore Sagen, has his own podcast where he once interviewed Henrik Vogt about Long Covid and was presented with the usual from Vogt.
  9. Kalliope

    Norway - 2 comedy podcasters cause controversy by misrepresenting ME/CFS, October 2022

    Part 2: Host: You said that you were going to tell the truth? Eia: I see. But that is because this is an entertainment program. So I’m sending my commando soldier Tore Sagen out, because I am in this context… It’s always hard to talk about these things.. But I have to do this. I will endure...
  10. Kalliope

    Norway - 2 comedy podcasters cause controversy by misrepresenting ME/CFS, October 2022

    So this all started with a podcast with the comedians Harald Eia and Tore Sagen. Harald Eia is also a sociologist and has made some TV programs with a combination of entertainment and information. He's also been host of "Brille", a Norwegian copy of QI, among many other things. I've never heard...
  11. Kalliope

    Norway - 2 comedy podcasters cause controversy by misrepresenting ME/CFS, October 2022

    This has received quite some attention and the comedian did not come out well from yesterday's TV debate. He's name is trending on Twitter with a lot of criticism. Nina E. Steinkopf, who was the other part of the debate was excellent. I will try to do a transcript of the debate in English, but...
  12. Kalliope

    Review of new film 'The Lost King'; main character has ME

    This is from a review in the Norwegian newspaper Klassekampen. No mention of ME, but the reviewer seems to find the main character irritating: One of the film's problems is that Langley sees ghosts in broad daylight. During a performance of Shakespeare's "Richard III", she allows herself to be...
  13. Kalliope

    Ongoing long covid studie Sweden: Utvärdering av effekten av hjärnträningsmetoder hos long covid patienter”

    @MittEremltage has provided a summary on Twitter of her latest blog post series on brain training and ME Here is an auto translated version: Good Friday afternoon. I thought I'd make an attempt to summarize my recent exploration into brain training research for people with #LongCovid in a...
  14. Kalliope

    Dr Björn Bragée and the Bragée ME-center in Stockholm, Sweden

    There's a reference in the article concerning ME/CFS on a thesis by Canadian Alysha Renouf from 2020 titled: Chronic Fatigue Syndrome: Holistic Understanding and the Impact of Social Support on Distress, 2020. The thesis has not been discussed on the forum.
  15. Kalliope

    Dr Björn Bragée and the Bragée ME-center in Stockholm, Sweden

    This is written by Britt Bragée who is the wife to Björn Bragée. She's a physiotherapist and has worked with psychosomatic issues for many years. They published a book together in 1999 titled 'The body's wrath: a book about pain'. Google translated presentation of the book (here it says she's...
  16. Kalliope

    Activity monitoring and patient-reported outcome measures in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients, 2022, Rekeland et al

    The charity "Fokus på ME" has shared an update from the researchers about the Fitbit-study. Oppdatering frå Haukeland om Fitbit-studien september 2022, på norsk: google translation: Update from Haukeland on the Fitbit study September 2022... quotes: The purpose of this study was to...
  17. Kalliope

    Case report: The emerging therapeutic role of casirivimab/imdevimab, Ballotta et al - 2022

    Full title: Frontiers in Oncology: Case report: Long-lasting SARS-CoV-2 infection with post-COVID-19 condition in two patients with chronic lymphocytic leukemia: The emerging therapeutic role of casirivimab/imdevimab - Ballotta et al Abstract: Post-coronavirus disease 2019 (post-COVID-19)...
  18. Kalliope

    Long Covid in the media and social media 2022

    The Scientist Multiple Possible Causes of Long COVID Come into Focus quotes: Taken together, studies suggest that long COVID and its many symptoms may not have just one cause, and may not be just be one disease. “There may not be a single mechanism for all long COVID—there could be multiple...
  19. Kalliope

    The Atlantic - Long COVID Has Forced a Reckoning for One of Medicine's Most Neglected Diseases - by Ed Yong

    I think so too. I've done an annual compilation of the biggest ME articles mentioned in the weekly news brief and these are the results so far: 2019 - 10 articles 2020 - 46 articles 2021 - 99 articles Long Covid and the NICE guideline are probably important reasons for the increase in number...
Back
Top Bottom