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  1. Kalliope

    The #longcovid revolution: A reflexive thematic analysis, by Turner et al, 2023

    Abstract Research has identified long COVID as the first virtual patient-made condition (Callard and Perego, 2021). It originated from Twitter users sharing their experiences using the hashtag #longcovid. Over the first two years of the pandemic, long COVID affected as many as 17 million people...
  2. Kalliope

    The plasma metabolome of long COVID-19 patients two years after infection, 2023, Yamille Lopez-Hernandez et al

    CIDRAP Long-COVID patients have altered metabolite levels 2 years after infection quote: "Mitochondrial dysfunction, redox state imbalance, impaired energy metabolism, and chronic immune dysregulation are likely to be the main hallmarks of long COVID even two years after acute COVID-19...
  3. Kalliope

    News from the USA, United States of America

    We discussed this back in May in the Long Covid social media thread when he had just shared the news about his Long Covid. But it was early days then since the acute infection, and he's said in his podcast that he is now fully recovered. So I'm unsure how precise it is to call it Long Covid even...
  4. Kalliope

    Long Covid in the media and social media 2023

    MarketWatch Meals skipped, lights shut off: Long COVID linked to severe financial strains, researchers say quote: One in 10 adults with long COVID say they stopped working because of their symptoms, according to an Urban Institute study based on a survey conducted late last year. Only about...
  5. Kalliope

    News from Scandinavia

    A rather precise summary of the BPS model in the review: The relationship between the role of biological, psychological and social factors in people's well-being is a recurring theme. But questions about how these are related and their respective meaning are often left hanging in the air, and...
  6. Kalliope

    This Week in Virology #1029 - David Tuller Long COVID ME/CFS

    Description: David Tuller returns to TWiV to provide an update on ME/CFS, the PACE trial, developments related to the NICE guidelines, and how similar practices and ideologies are being applied to long COVID.
  7. Kalliope

    Office of National Statistics: Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: Updates

    I don't quite understand these numbers. I thought previous ONS data had shown that the Long Covid prevalence in UK was around 2 million people. But here it seems to be 400 000?
  8. Kalliope

    Office of National Statistics: Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: Updates

    ONS: Rising ill-health and economic inactivity because of long-term sickness, UK: 2019 to 2023 1. Main points More working-age people are self-reporting long-term health conditions, with 36% saying that they had at least one long-term health condition in Quarter 1 (Jan to Mar) 2023, up from...
  9. Kalliope

    A safe and effective micro‑choice based rehabilitation for patients with long COVID: results from a quasi‑experimental study 2023, Frisk et al

    Yes, a very disappointing and naive article. A spokesperson from the clinic who offers this "treatment" says in the article that the patients are tested in the beginning in order to see if their health is good enough. "This in order to make them secure that there is nothing physically wrong from...
  10. Kalliope

    Long Covid in the media and social media 2023

    RNZ Prof Danny Altmann: the burden of long COVID quote: Another disease noted for similarities with long Covid is ME/CFS - myalgic encephalomyelitis, also known as chronic fatigue syndrome. "They are terribly similar. And it's really helpful and illuminating to join up those discussions,"...
  11. Kalliope

    Norway: Røysumtunet, a centre for severe ME patients

    TV2 has an article today about Kristine Kornelia Paulsen and her stay at Røysumtunet. The article describes her development from mono to severe ME, and that she has improved a bit at Røysumtunet. She is by the way also an awesome graphic designer who has made some terrific illustrations about...
  12. Kalliope

    BPS attempts at psychologizing Long Covid

    No, it seems to be concerning the acute infection. But he seems to transfer it to Long Covid as well. I think this is the study: Experiencing COVID-19 symptoms without the disease: The role of nocebo in reporting og symptoms
  13. Kalliope

    BPS attempts at psychologizing Long Covid

    The Norwegian news site Nettavisen had an article about Long Covid yesterday titled: "Long covid": normal bodily conditions may be interpreted as symptoms The article is behind paywall, so here's a summary: Researchers say that media articles, negative messages from the doctor and discussions...
  14. Kalliope

    Daily Maverick - Collusion to exclude Long Covid - the long history of energy limiting disability denial by insurance firms

    oh, I'm sorry. Think I linked to the front page when this was top story. This link should get you to the article https://www.dailymaverick.co.za/article/2023-07-17-collusion-to-exclude-long-covid-the-long-history-of-energy-limiting-disability-denial-by-insurance-firms/
  15. Kalliope

    IIMEC 2023: Maureen Hanson

    oh, that's interesting. I was so ill I got hospitalised, had had 40 degrees in fever for a week with antibiotics and not feeling better. Throat so painful I couldn't drink so was dehydrated and liver and spleen enlarged. Suspected mono, but negative test at hospital. Later had antibodies. Hmm....
  16. Kalliope

    Daily Maverick - Collusion to exclude Long Covid - the long history of energy limiting disability denial by insurance firms

    quote: We must go back more than five decades to understand how the venal back-scratching politics of one cabal of powerful men in the global medico-industrial complex led to what one British MP has called “one of the biggest medical scandals of the … century”...
  17. Kalliope

    Professor Gerd Kvale on Long Covid

    Spotted this today on Twitter. It's the professor and psychologist Gerd Kvale sharing her opinions about Long Covid. Gerd Kvale has developed a fast version of CBT for anxiety and OCD, with good results in clinical trials. She has also published a paper with psychiatrist Bjarte Stubhaug (who...
  18. Kalliope

    Long Covid in the media and social media 2023

    Time Scientists Are Just Beginning to Understand COVID-19's Effect On the Brain quotes: If you were to look at the brain of someone infected by certain viruses, like rabies, you would see “virus teeming everywhere. It’s black and white” that the brain is infected, says Dr. Avindra Nath...
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