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What a dreadful piece. I agree there are patterns being repeated here. Sometimes it's rather obvious, as in this opinion piece a few years ago in a medical newspaper asking if gender dysphoria is the new ME. google translated quote: A persistent search for imaginary somatic explanations can...

The Guardian 'No one is talking about it': the cruelty of long Covid in the global south quotes: As research focuses on richer parts of world, people in less developed countries suffer from lack of awareness and support .... Dr Caroline Hilari, who coordinates a long Covid study in children...

Nature Gene linked to long COVID found in analysis of thousands of patients quotes: It’s very important that this type of study is being done,” says Chris Ponting, who studies medical bioinformatics at the University of Edinburgh, UK. “It will gain momentum and greater power as the case number...

Thank you for the link @EndME The relationship between Long Covid and ME/CFS is discussed in a separate section: Box 3 Lessons from and for ME/CFS and the case of ‘long SARS’ It is hard to discuss or present data on long COVID without being challenged about the relationship of findings to...

The article is paywalled. According to the references, there seems to be a couple of mentions of ME/CFS.

Yes, it's such a pity this field is full of vague words. "Fatigue" "pain" "(post exertional) malaise" etc. Pacing is not a good word either. I guess the patients in the PACE trial kind of paced up and down the hallway in the 6 minutes walking test, without pacing at all :confused:

I wonder if Dr. Griffin might belive that pacing is the treatment protocol from the PACE trial?

In the latest This Week in Virology podcast with Clinical update with Dr. Daniel Griffin the paper "High incidence of autonomic dysfunction and postural orthostatic tachycardia syndrome in patients with long COVID" is discussed. Both Professor Racaniello and Dr. Griffin mention being in...

The German Minister of Health on Twitter (auto translated): Next Wednesday I will present ⁦@C_Scheibenbogen our initiative #LongCovid and #ME /CFS. Useful therapy concepts are slowly being developed. Unfortunately, research into truly breakthrough drugs is underfunded google translation of the...

Is Long Covid starting to make societal changes? I've been wondering if a huge increase of chronic illness could help with better adaptations for workers with disabilities, that something good could come out of it as a more inclusive work life. But it's no good if people are forced into...

Agree. Do you know if this is used in their Long Covid trial?

This web site has been doing the rounds on Twitter today. It's from Mind Body Lab with among other LP researcher and Professor in psychology Silje Reme. It provides advice on faster recovery with different CBT methods and LP inspired visualisations etc. It's in Norwegian but there's google...

BMJ Retract or be damned: a dangerous moment for science and the public By editor in chief Kamran Abbasi Quote: Two troubling themes emerge from John Rasko and Carl Power’s examination of Macchiarini’s legacy (doi:10.1136/bmj.p1367).3 First is the apparent unwillingness of institutions to admit...

I watched the talk by Dr. Dag Storla who is the doctor at Røysumtunet, an institution with an offer for severe ME patients in Norway. I've heard about people making improvements there, and was interested in what kind of treatment programme they have. Dr. Storla talked about 4 steps in their...

There is also one taking place in Sweden with 400 participants titled imPROving Quality of Life In the Long COVID Patient (PROLIFIC)

Medpage Today Stanford Study of Paxlovid for Long COVID Stopped Early Quote: Two sources familiar with the STOP-PASC study told MedPage Today that trial enrollment had been halted. One was told by a study coordinator that a preliminary review found "inconclusive evidence" for the primary...

They have done that before, so chances are good they'll do it again :-) Here is the YouTube channel to the Swedish patient organisation RME with talks from previous conferences: https://www.youtube.com/@rmesverige1475

The Swedish patient organisation RME has organised a big ME conference every autumn for several years in a row. This year they are organising a new conference together with the patient organisations in Norway, Finland and Denmark. The conference will take place in Stockholm and in Göteborg. It...

Thread from Dr. Binita Kane saying history of treatment of children with ME is repeating itself with Long Covid:

Was it this article? https://www.nrk.no/rogaland/sterk-sammenheng-mellom-korona-og-sykefravaer-med-trotthet-og-slapphet_-1.16443369 It's based on a recent press release from NAV which has more details and statistics...