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  1. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Opinion piece by Jennie Spotila in The Philadelphia Inquirer: I have a chronic illness. During COVID, isn't my life worth protecting? Quote: Almost 30 years ago, I got sick with a virus that led to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) — a debilitating neuroimmune disease...
  2. Kalliope

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Professor Kunst comments to Garner
  3. Kalliope

    MElivet - Blog posts by Nina E. Steinkopf

    New blog post from Nina E. Steinkopf in English translation. This time about Lightning Process which she compares with classical red flags of religious sects. Is the Lightning Process a sect?
  4. Kalliope

    BPS attempts at psychologizing Long Covid

    Dr. Khan is looking for journal articles regarding minimising Long Covid.
  5. Kalliope

    Tjenesten og MEg | The health service and ME, Sintef FaFo

    Welcome to the forum, @Anne Kielland ! :) It's great to see you here and lovely that more researchers are finding their way to the forum. It's very kind of you to offer to answer questions and to engage with the patient community, also outside of Norway. I've seen some talks about the research...
  6. Kalliope

    Any new guidelines downgrading CBT and rejecting GET

    Welcome to the forum, @jornt_h It's an interesting question you are asking, and I hope members here can help you. What are the developments in Germany, for instance? @Michiel Tack or others, do you know...
  7. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Stuff The narrative of Omicron as a 'milder' variant is dangerous, given what we know about long Covid, experts warn quotes: Otago University’s Emeritus Professor Warren Tate is a biochemist who has been studying myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS) for...
  8. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    RollingStone What the Long Covid Numbers Aren't Telling Us Quote: Although the current definitions of Long Covid are incredibly broad, before they existed, there was even less certainty about what “counted” as Long Covid among patients, researchers, and medical professionals. “Long Covid means...
  9. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Just saw psychology professor Jonas R. Kunst share this article on twitter commenting that Russian flu was also associated with inflammatory conditions and fatigue reminiscent of Long Covid. The article is paywalled, so don't know if this is prof. Kunst's thoughts, or if the article is about...
  10. Kalliope

    Longitudinal analysis reveals high prevalence of Epstein-Barr virus associated with multiple sclerosis, Bjornevik et al (2022)

    New Scientist Strongest evidence yet that MS is caused by Epstein-Barr virus quote: It has long been suspected that the common Epstein-Barr virus can trigger multiple sclerosis (MS). Now, a study of 10 million military personnel in the US has shown that virtually every case of MS is preceded by...
  11. Kalliope

    BPS attempts at psychologizing Long Covid

    The Norwegian Directorate of Health announced on Facebook today that they have collected some tools and courses that can be useful for those who suffer from after effects of Corona. They link to an official, public site about health which says to deliver updated information of high quality...
  12. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    @Dakota15 provided a link that opened the article: https://www.thetimes.co.uk/article/b48fe264-72e6-11ec-89e9-22d3d9c31ba2?shareToken=0300a38a426b1cd859f4d8f722938150 The twitter thread was a good summary of a good article, until the services from a "pacing coach" was mentioned.
  13. Kalliope

    Cogut Institute for the Humanities, Brown University - Emily Lim Rogers: Unraveling the Knot of Myalgic Encephalomyelitis (Chronic Fatigue Syndrome)

    A Q&A with Emily Lim Rogers who is a teacher and has a current research project about ME, "probing what scientific uncertainty about the illness reveals about the fraught gendered and racialized dynamics that determine who is considered ill and examining the uneven uptake of debility in the...
  14. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    She makes a reference to other post-viral illness in the article where she links to "ME/CFS: Essentials of Diagnosis and Management" by Lucinda Bateman et al and to Brian Hughes', Steven Lubet's and David Tuller's article in Health Affairs. Quote (my bold): Understanding how many people have...
  15. Kalliope

    (Preprint) Excess risk and clusters of symptoms after COVID-19 in a large Norwegian cohort by Caspersen et al.

    Per Magnus from the Norwegian Institute of Public Health and also one of the researchers of the study said on TV today that he believed research into Long Covid could provide insight in other conditions, like ME. We're quite behind in this country when it comes to both Long Covid and ME, but I...
  16. Kalliope

    (Preprint) Excess risk and clusters of symptoms after COVID-19 in a large Norwegian cohort by Caspersen et al.

    Also the newspaper Morgenbladet had an article about the study, with comments from among other prof. Wyller. It's paywalled, so here's a summary: First the article introduces the findings. The data was collected when most people were unvaccinated, so next step is to examine long term symptoms...
  17. Kalliope

    (Preprint) Excess risk and clusters of symptoms after COVID-19 in a large Norwegian cohort by Caspersen et al.

    ScienceNorway has an article about the study New study on Long Covid: Brain fog, poor memory and shortness of breath one year after infection quote: In a preprint published on medRxiv, the researchers write that as their results suggest that different people experience clusters of symptoms...
  18. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Article from Canada with among other professor Simon Décary and with several mentions of ME: Maclean's Chronic exhaustion, derailed lives and no way out. This is long COVID. Quotes: ME/CFS’s most notable characteristic is enduring and disabling fatigue. People with ME/CFS, the vast majority...
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