Opinion piece by Jennie Spotila in The Philadelphia Inquirer:
I have a chronic illness. During COVID, isn't my life worth protecting?
Quote:
Almost 30 years ago, I got sick with a virus that led to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) — a debilitating neuroimmune disease...
New blog post from Nina E. Steinkopf in English translation. This time about Lightning Process which she compares with classical red flags of religious sects.
Is the Lightning Process a sect?
Welcome to the forum, @Anne Kielland ! :)
It's great to see you here and lovely that more researchers are finding their way to the forum. It's very kind of you to offer to answer questions and to engage with the patient community, also outside of Norway.
I've seen some talks about the research...
Welcome to the forum, @jornt_h
It's an interesting question you are asking, and I hope members here can help you.
What are the developments in Germany, for instance? @Michiel Tack or others, do you know...
Stuff The narrative of Omicron as a 'milder' variant is dangerous, given what we know about long Covid, experts warn
quotes:
Otago University’s Emeritus Professor Warren Tate is a biochemist who has been studying myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS) for...
RollingStone What the Long Covid Numbers Aren't Telling Us
Quote:
Although the current definitions of Long Covid are incredibly broad, before they existed, there was even less certainty about what “counted” as Long Covid among patients, researchers, and medical professionals. “Long Covid means...
Just saw psychology professor Jonas R. Kunst share this article on twitter commenting that Russian flu was also associated with inflammatory conditions and fatigue reminiscent of Long Covid.
The article is paywalled, so don't know if this is prof. Kunst's thoughts, or if the article is about...
New Scientist Strongest evidence yet that MS is caused by Epstein-Barr virus
quote:
It has long been suspected that the common Epstein-Barr virus can trigger multiple sclerosis (MS). Now, a study of 10 million military personnel in the US has shown that virtually every case of MS is preceded by...
The Norwegian Directorate of Health announced on Facebook today that they have collected some tools and courses that can be useful for those who suffer from after effects of Corona.
They link to an official, public site about health which says to deliver updated information of high quality...
@Dakota15 provided a link that opened the article:
https://www.thetimes.co.uk/article/b48fe264-72e6-11ec-89e9-22d3d9c31ba2?shareToken=0300a38a426b1cd859f4d8f722938150
The twitter thread was a good summary of a good article, until the services from a "pacing coach" was mentioned.
A Q&A with Emily Lim Rogers who is a teacher and has a current research project about ME, "probing what scientific uncertainty about the illness reveals about the fraught gendered and racialized dynamics that determine who is considered ill and examining the uneven uptake of debility in the...
She makes a reference to other post-viral illness in the article where she links to "ME/CFS: Essentials of Diagnosis and Management" by Lucinda Bateman et al and to Brian Hughes', Steven Lubet's and David Tuller's article in Health Affairs.
Quote (my bold):
Understanding how many people have...
Per Magnus from the Norwegian Institute of Public Health and also one of the researchers of the study said on TV today that he believed research into Long Covid could provide insight in other conditions, like ME. We're quite behind in this country when it comes to both Long Covid and ME, but I...
Also the newspaper Morgenbladet had an article about the study, with comments from among other prof. Wyller. It's paywalled, so here's a summary:
First the article introduces the findings. The data was collected when most people were unvaccinated, so next step is to examine long term symptoms...
ScienceNorway has an article about the study
New study on Long Covid: Brain fog, poor memory and shortness of breath one year after infection
quote:
In a preprint published on medRxiv, the researchers write that as their results suggest that different people experience clusters of symptoms...
Article from Canada with among other professor Simon Décary and with several mentions of ME:
Maclean's Chronic exhaustion, derailed lives and no way out. This is long COVID.
Quotes:
ME/CFS’s most notable characteristic is enduring and disabling fatigue. People with ME/CFS, the vast majority...
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