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May Svenska Yle “Det är inget annat än hjärntvätt” - HUS förespråkar kontroversiell vård till patienter, också postcovidpatienter har hänvisats till samma klinik (“It’s the same as brainwashing” - Helsingfors University Hospital recommends controversial treatment to patients, also post covid...

Here's a compilation of the largest ME articles mentioned in the weekly news brief throughout the year. This is third year in a row such an overview has been made for the forum. In 2019 it was 10 articles that made the list. In 2020 it was 46. This year it's 99 articles. The high number is...

British Journal of Anaesthesia has published a pre-proof paper titled "Impaired systemic oxygen extraction long after mild COVID-19: potential preoperative implications. The paper is paywalled, but prof. Akiko Iwasaki commented on Twitter: In #longCOVID patients, “exercise capacity was...

Al Jazeera A world forever transformed: Life with Long COVID Quote: There is vulnerability, too, to the aftershock of Long COVID, to suffering from a disease that appears on medical records like a specter. Is it there? Can we prove it? Long COVID’s symptoms are amorphous, its timeline...

Thank you for sharing the links @Ravn This is nightmarish stuff indeed. Just adding a quote from the article "Sick in a health care system on the wrong track" and adding that if you want to read Marie Louise's own account of a stay at Aarhus University Hospital it's the last of the links @Ravn...

Great! Haven't watched this talk by Anne Kielland, but have seen previous talks from her. She is working on an ongoing research project about health care services and ME and really gets what the problematic aspects are, so should be worth watching.

Professor Mady Hornig's lecture at the conference has now been uploaded to YouTube. Title: Robust evidence for ME as a biological disease. Immune signatures in ME suggest immune dysregulation CNS as a function of subgroup and disease course. Duration: 39 minutes Language: English + subtitles...

@Tom Kindlon skimmed more thoroughly and shared the following comments on Twitter: - New CPD course on #MyalgicEncephalomyelitis /#ChronicFatigueSyndrome for healthcare professionals I quickly skimmed the slides & noticed under fatigue "goal-directed & non-fatiguing exercise" which I wouldn't...

Just skimmed this, but looks good.

Released: 12/21/2021 A Fresh Look at Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Diagnosis and Management of a Multisystem Illness This activity is intended for primary care physicians, nurses, nurse practitioners, and other healthcare providers (HCPs) involved in the diagnosis and...

Interview with professor Brendan Delaney from the Faculty of Medicine at Imperial College London: IPS 'With Long Covid, there's a minimisation push' quote: From a policy perspective, it would be naïve to think that SARS-CoV-2 would be different from other various infections. Unfortunately...

More pushback from Scandinavia. This time in a Danish medical newspaper interviewing Marianne Rosendal, senior researcher, specialist in general medicine at the Department of Functional Disorders at Aarhus University Hospital and front person for the Danish Society for Functional Disorders...

Professor Kringlen has received another reply. This time from the professors Ola Didrik Saugstad and Rolf Rønning titled The High Priest of the Humiliators. They say Kringlen is making fun of several diagnoses which he believes were created by the patients themselves and their doctors. They...

A great answer today from ME patients saying that the NICE guidelines gives them hope. They don't find it right that Recovery Norge with their 260 members should raise themselves above biomedical research, health authorities from other countries and the Norwegian ME Association's near 6 000...

MD and professor Petter C. Borchgrevink has written a short and rather sharp reply accusing psychiatrist Kringlen for despising patients and for insinuating that ME patients are simulating their illness. He says it's obvious that Kringlen has not kept himself updated for many years when it comes...

The Norwegian public broadcaster has today an article about a treatment offer in Bergen municipality for Long Covid. It is run by a physiotherapist and an occupational therapist who saw the need for rehabilitation for these patients, but that a suitable offer for the patient group was lacking...

Professor in social policy, Rolf Rønning, has written an interesting opinion piece for the newspaper Dagsavisen about why ME patients became an underclass in healthcare. Quotes: I have been following social policy debates in Norway for fifty years. A year ago, I began to familiarize myself...

A frustrating opinion piece in the Norwegian newspaper Klassekampen today by psychiatrist Einar Kringlen. He's an old school psychiatrist who has rejected ME for decades. The article is paywalled, so here's a summary: He claims ME are among many diagnoses that isn't listed in ICD-10 or DSM-III...

George Monbiot said on Twitter yesterday that he's keen to write about the NICE guideline, but overworked and exhausted.

The authors are from the same university, probably even same department, where the Lightning Process study was supposed to be led from before its ethical approval was removed. Are they paving the way for a new attempt?